Digestive and Bowel Disorders Forum - Abdominal pain/bowel problems

Please help, this is my first time posting. My 16 yr. old formerly healthy daughter normally pooped twice a day. Her b.m.'s started to change over a one month period of time and she became constipated. Several visits to the pediatrician finally put us in touch with a specialist. We took her to the Gastro and he prescribed over several weeks miralax and amitiza for abdominal pain. The pain is right above the belly button and moves in a circular motion. He performed cat scan, and saw that she was filled with a lot of poop. He said she needed to do a colon prep to clean her out like she was having a colonoscopy. We did this and she felt better for a few days and then the constipation started again. He then put her on bentyl for abdomen spasms, no help at all. She also vomited in the a.m. before school a few times and continued to have abdominal pain.

After a month of on off pain in the abdomen and constipation she began getting severe bloating and abdominal pain that would NOT STOP. It was constant to the point that she couldn't sleep. We went to the E.R. twice and each time they sent us home with go lightly to clean her out. After two weeks of more pain she was hospitalized for severe constipation and had a 24hr drip which they put in her nose and down into her stomach. After several enemas she was clean.

She came home from the hospital and was very weak and could hardly walk. Doctor was very surprised, said she should feel like a million bucks. Went for strep test, mono test, flu test, all negative. Pain in abdomen got worse and continued to be constant.

Bowel Movements are extremely painful. She is screaming and crying because of the pain. She will struggle to have a b.m. and only a small amount comes out. After being home for a week she suddenly got a sharp pain in her rectum which only got worse over the next two days and persisted for almost a month. The pain would come about 30 times a day to the point that she was screaming. Her anus is extremely soar. We had her checked for roids and fissures with a sigmoidoscopy and they didn't see anything. She is now using lidocane after each b.m. and the pain is horrible. She can't even stand the water from the shower to fall down her back onto her anus because she is so sensitive. To put the lidocane on is a nightmare.

So far she has had colonoscopy, no colitis, no chron's , two upper endoscopies, stomach empty test, sigmoidoscopy, Cat scan, ultra-sound of pelvis, MRI of pelvis, MRI of lumbar, thoracic , cervical spine, all negative. Her brain MRI shows some white matter which we'll find out more about this week. She had the Brain MRI because she has Obsessive Compulsive disorder which has been stable for the last four years. The neurologist diagnosed her with sustained clonus a briskness of the reflexes in her body so he wants to look further at her central nervous system. She also had a anal manometry test which showed some problem with the reflex to push out the poop. They are recommending bio-feedback for this. They told us because her colon got so stretched out she will have to continue to take miralax 3-4 times a day to help her eliminate. She does not have the feeling to push out the b.m..

We have tried every over the counter drug for pain and nothing works. The only relief she gets is from the vicadin the Doctor prescribed and even that hardly works. She hates taking it because she is very woozy on it and doesn't like how her breathing feels.

Right now her days are spent just managing the pain and waiting for the horrible b.m.. The doctors want her to have at least two b.m.'s a day.

She has always had a healthy diet. We took her to a wellness Doctor and she put her on a 30 day yeast cleanse and wants us to follow a celiac diet. She has never had any food allergies, always been able to tolerate any foods.

The past two days we did another cleanse and she is still bloated and in constant pain. Her stomach is very distended and hard. She needs to have the heating pad on to give her a little relief. Almost all of the day is either spent in bed or on the couch. It hurts to walk. She is sooooo frustrated and very sad. We're trying real hard to keep her up and hopeful that we'll find out what's going on.

Please help if you have any guidance. I can't seem to find anyone with the sensitivity in the rectum that is so severe. Does anyone have this or ever experienced it? It's almost as if she is burned.

I'm waiting to see if we can get a sitzmark test for the small bowel and possibly drink the liquid die and see how it moves through the digestive system.

Sorry this is so long, any help would be a blessing. Thank you.