My daughter was diagnsosed with this. Does
anyone have same condition? How serious is
this? Also if you have any
references/websites.
Irma
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edgaras
Supporter
Joined: 15 Feb 2008 Posts: 79 Location: Chicago, IL
Posted: 03-03-08 03:31am
Rosy, I am happy you posted here, nice to
hear from you, and please know that you
are not alone in the quest to find
answers.
You can check pubmed.com for research on
this subject.
Here is something I found by doing simple
search:
Oral Maxillofac Surg Clin North Am. 2007
May;19(2):223-34.
Department of Oral and Maxillofacial
Surgery, Massachusetts General Hospital,
Harvard School of Dental Medicine, 55
Fruit Street, Warren Bldg. 1201, Boston,
MA 02114, USA.
Idiopathic condylar resorption almost
exclusively affects women. Its exact
etiology and pathogenesis remain unclear.
It has been associated with rheumatoid
arthritis, temporomandibular joint
internal derangement, condylar fractures,
connective tissue or autoimmune diseases,
orthodontic treatment, and orthognathic
surgery. In most cases, however, there is
no identifiable precipitating event, hence
the term "idiopathic condylar resorption."
The female predisposition to this
condition may be attributed to the
influence of estrogen and prolactin on the
bone response. Treatment of idiopathic
condylar resorption is controversial.
Condylectomy and reconstruction with
costochondral graft offer definitive
management of active idiopathic condylar
resorption.
---
Am J Orthod Dentofacial Orthop. 2007
Jan;131(1):89-97.
Retreatment of a patient who presented
with condylar resorption.
Bilodeau JE.
This case report describes the
retreatment of a patient whose initial
nonextraction treatment several years
earlier had been unsuccessful. When she
sought new treatment, she had an open
bite, proclined incisors, and severe
temporomandibular joint derangement with
almost complete resorption of the
condyles. The new treatment, which
included extractions and surgery, gave her
balanced and harmonious facial
proportions, a Class I occlusion with
normal overjet and overbite, and a healthy
dentition. There was no further loss of
condylar tissue and the temporomandibular
joints were asymptomatic.
This are abstracts of medical journal
articles. University medical libraries
might have more information as well -
books, journals. I wish that someone who
has experienced this would comment and
provide you with more information.
I would say that more information is
needed before you can find out if it is
serious or not. If condyle suffers
to much brakedown then I would assume it
might cause a problem with proper joint
function.
Please tell us how old is your daughter
and if she has pain, also, how was this
diagnosis made? Did they do CT or MRI scan
and noticed this? Did you see an oral
surgeon or some other specialist? Wish you
and your daughter strength and find a good
doctor.
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edgaras
Supporter
Joined: 15 Feb 2008 Posts: 79 Location: Chicago, IL
I thought abstracts where public domain Posted: 03-04-08 00:13am
I thought I would not get reviewed for
posting abstracts, they are public domain
published by our own government. I have
inquired before with pubmed on this matter
and they grant such rights to republish as
long as we include reference.
Now, the full article, it appears that
the doctor who wrote it, has his own site,
and allows people to download it for free.
I am very sorry - if you are so upset with
it. I am just trying to help.
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edgaras
Supporter
Joined: 15 Feb 2008 Posts: 79 Location: Chicago, IL
My daughter was diagnosed
with this. Does anyone have same
condition? How serious is this? Also if
you have any references/websites.
Irma
Rosy, go to pubmed.com and enter "condylar
resorption". It would get you the
articles, I know my library at university
has computers on which you can freely
access all the journals. So it might take
a visit, or some browsing to find full
medical articles. And it just recently, I
have this idea, of trying to find a doctor
based on the fact of how many published
medical papers he has out.
Some doctors never do independent
research, it's unbelievably! Doing so I
think is important sign that doctor is up
to date and is not beyond new advances.
You can only know that if he/she publishes
medical reports and continues to do so
even after they start practicing
privately. That's when you know you have a
good doctor. I'm abit upset as I've seen
doctors that appear clueless, and then I
end up bringing in medical literature to
support and back up what I am sayings,
otherwise they think you're nuts, while in
fact, it is some of the doctors that have
outdated knowledge and fail to read new
publications.
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Tmddyan
Moderator
Joined: 13 Jun 2006 Posts: 3986 Location: post falls, id usa
Thanks: 60
Thanked:42
Re: I thought abstracts where public domain Posted: 03-04-08 13:51pm
edgaras
wrote:
I thought I would not get
reviewed for posting abstracts, they are
public domain published by our own
government. I have inquired before with
pubmed on this matter and they grant such
rights to republish as long as we include
reference.
Now, the full article, it appears that
the doctor who wrote it, has his own site,
and allows people to download it for free.
I am very sorry - if you are so upset with
it. I am just trying to
help.
the post was ok--dont worry about that
--we just had to take out an email
address.
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ramblerec
New User, Becoming EHEALTHy
Joined: 28 Apr 2008 Posts: 3
Condylar resorption Posted: 04-28-08 11:16am
I am just starting this long journey. My
son has been diagnosed w/ idopathic
condylar resorption. The initial
diagnosis was made two years ago, when he
was 12. We were just starting the
orthodontic process and they did x-rays.
We were referred to Mayo Clinic and told
nothing could be done until he was done w/
puberty. Now, at age 14, we went back for
another visit and will soon start
treatment!! No changes in the condyles,
they are "burnt" all the way down.
Waiting for the orthodontist to receive
the info from Mayo. I am wondering, since
this is a medical condition, is it
possible for the orthodontic work to be
covered under medical insurance rather
than dental insurance? Any ideas out
there??
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edgaras
Supporter
Joined: 15 Feb 2008 Posts: 79 Location: Chicago, IL
coverage- insurance Posted: 04-28-08 20:52pm
I know my last policy had limit of $2000
for TMJ related treatments. There might be
a way around ( I am hoping) if it is
surgical and can be shown to be medically
necessary (you are not addressing popping,
clicking, or general appearance of smile
for aesthetic purposes). I think insurance
companies really need a kick in the butt
and pressure from Congress to include all
treatments if they are medically
necessary.
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ramblerec
New User, Becoming EHEALTHy
Joined: 28 Apr 2008 Posts: 3
Condylar resorption Posted: 05-12-08 11:50am
I am SOOOOOO angry. I checked into my
dental and medical insurance and
absolutely nothing is covered. About the
only thing that will be paid for is the
extraction of impacted wisdom teeth. My
medical policy excludes malocclusion. I
can appeal or send a grievance, but I am
totally at a loss as to how this can
happen. It's not cosmetic, it's an
idiopathic condition!!!
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Tmddyan
Moderator
Joined: 13 Jun 2006 Posts: 3986 Location: post falls, id usa
Thanks: 60
Thanked:42
Posted: 05-12-08 15:34pm
oh yes beleive me ---most of us can relate
to your anger----i usually warn every one
that tmj is an exclusing. beleive me im
mad too
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edgaras
Supporter
Joined: 15 Feb 2008 Posts: 79 Location: Chicago, IL
Posted: 05-13-08 02:26am
Don't give up. I read somewhere that one
lady had Medicare who denied
her jaw surgery and she had to take them
to court to pay, and they did eventually
paid because it was medically necessary.
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Tmddyan
Moderator
Joined: 13 Jun 2006 Posts: 3986 Location: post falls, id usa
Thanks: 60
Thanked:42
Posted: 05-13-08 12:24pm
yeah you can do that but it costs more
money
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ramblerec
New User, Becoming EHEALTHy
Joined: 28 Apr 2008 Posts: 3
Posted: 05-13-08 14:52pm
I received a letter from the insurance
saying that I can appeal or file a
grievance. They carbon copied the doctor
at Mayo. So I plan on giving him a call
to see what they can do to help. I'm sure
they see this quite often.
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Tmddyan
Moderator
Joined: 13 Jun 2006 Posts: 3986 Location: post falls, id usa
Thanks: 60
Thanked:42
Posted: 05-13-08 15:08pm
yes unfortunately we do----not just us as
patients but the companies and the doctors
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