Well, here is my story. In Sept. of 2004 I
had my gallbladder removed. After that
everything went downhill. My bowel
movements were like pure bile The doctor
said that was normal after gallbladder
removal and things would get better. After
5 months of this and constant trips to the
bathroom my doctor that removed my
gallbladder referred me to a GI doc. Feb.
2005. She did a colonoscopy and said it
was Crohn's disease. Said there was alot
of inflammation and several ulcers at the
terminal ileum. I started out on
sulfasalazine and Took that for 6 months
then started Pentasa. After a year on the
meds I was doing much better, seemed to
have things under control. Doctor told me
she didn't think it was Crohn's disease
after all because she thought the ulcers
may have had to do with the
anti-inflammitorys and antibiotics I was
on for a sinus infection I was so relieved
this was Feb. of 2006. I was finally off
all the medications. Well, in March of
2007 the symptoms started coming back full
force. I believed it was just stress and
read alot about gallbladder removal, and
thought this was all normal. Finally in
August of 2007 being totally exhausted and
wondering what this could be I went back
to my GI doc. She did another colonoscopy
and said it was definatly small bowell
Crohn's disease I was floored. This
couldn't be happening. She started me on
sulfasalazine again and Entocort for three
months. Then, onto pentasa again. After
going off the entocort things started
getting worse again. After 10 days of
being off Entoctort she put me back
on it for another two months. I have been
off of that for three months now but still
taking the pentasa, and many vitamins
Folic acid iron twiceTwice-a-day a day,
vit. D,Calcium Magnesium , mutivitamin,
and omeprezole. She did another
calprotectin test and sent it to the mayo
clinic, it came back
Back at 413 (o-50) being normal. Aug. of
2007 it was 455, then in Dec. down to 339,
then in march 229. I was sure it would be
closer to normal at least hoping I guess.
Anyway, she wants to do another
colonoscopy in two weeks and for sure
start me on 6-mp or Imuran. Maybe humira
or remicade. I am so terrified of going on
any of these. All I read about is all the
bad side effects and it scares me to death
If anyone is on any of these please give
me some advice. I have been reading on
natural substances like barleygrass and
that all sounds good but not sure if it
would actually help seeing how bad this
flare has gotten...Please help....
