Joined: 11 Apr 2007 Posts: 112 Location: most boring state, USA,
Eagle's syndrome Posted: 04-07-08 18:40pm
I am only posting again here because I
would feel guilty not to share this with
all of you. After over 2 years of
constant, and I mean every single day,
pain, my internist referred me to a
neurologist she had met at a conference.
I didnt want to go because I am sick of
doctors who dont help at all. But she
talked me into going so I did, and this is
what he found, I have an extremely rare
condition called Eagles Syndrome, it
involves a pointy little bone which comes
off the skull called the Styloid Process.
Mine is way too long, and it is basically
sticking into my jaw and throat area. The
best part is, there is a surgery for it. I
went all this time thinking it was TMJ,
seeing a Tmj specialist who didnt help at
all because in the words of my neurologist
"there is nothing wrong with your jaw".
It hurts there so it was assumed that the
jaw was the problem.
I havent seen the surgeon yet but I
will have surgery as soon as possible. I
just wanted to tell all of you who are in
excruciating pain and throwing money away
to get checked for this condition, it
really does masquerade as TMJ disorder.
You can Google it to read more about it.
This is just my personal experience.
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Tmddyan
Moderator
Joined: 13 Jun 2006 Posts: 4346 Location: post falls, id usa
Thanks: 93
Thanked:62
Posted: 04-07-08 19:29pm
hey --this is good news. I wonder how many
of us have this with out even knowing it.
the jaw is so complex even doctors are
still learning about it
let us know what is going on with
you,when the surgery is etc. ill be
praying for you
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metalcrystal
Experienced User , Rather EHEALTHy
Joined: 11 Apr 2007 Posts: 112 Location: most boring state, USA,
Posted: 04-07-08 21:13pm
thanks so much.
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catswold
Supporter
Joined: 10 Oct 2005 Posts: 404 Location: Flint, Michigan
Posted: 04-08-08 12:47pm
That is great news! And very
interesting. I've never heard of this
condition before. I hope you will keep us
updated. We've been thru a lot and I want
this to be fixed for you so much. I'll be
praying for you.
God bless...
Carol
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metalcrystal
Experienced User , Rather EHEALTHy
Joined: 11 Apr 2007 Posts: 112 Location: most boring state, USA,
Posted: 04-08-08 13:31pm
According to the doc is is EXTREMELY rare
to have pain from it, even tho a small
percentage of people do have an elongated
styloid process. This neurologist is
suposed to be quite amazing. One thing I
didnt like was the Neurontin he had me
try, I was so spaced out! I really dont
need another drug in the mix!
