Joined: 11 Apr 2007 Posts: 112 Location: most boring state, USA,
Eagle's syndrome Posted: 04-08-08 13:27pm
Has anyone ever been told they had this
and /or had the surgery for it? I have
just been diagnosed after it was mistaken
for TMJ disorder for years.
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CarolDiane
Supporter
Joined: 23 Sep 2007 Posts: 2396
Thanks: 111
Thanked:156
Posted: 04-11-08 11:08am
I personally have not heard of this. I am
going to research it so I know what it is
and what causes it. Sugery? Most be
connected to Tempral Mandibular Joint and
the bone surrounding it. Is it hard to
chew? Can you feel it slip out of place
from time to time?
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metalcrystal
Experienced User , Rather EHEALTHy
Joined: 11 Apr 2007 Posts: 112 Location: most boring state, USA,
Posted: 04-11-08 14:23pm
It does hurt to chew, BUT, it is not a
joint problem. The tmj specialist was
confounded and never was able to help me.
A neurologist is the one I got this
diagnosis from. It is caused but an
elongated styloid process. I go back next
week to see what is the next step. The
chief symptom, although there are others,
is constant pain for the last 2 years. Hey
Carrie do you know anything about
Neurontin? I was suposed to try it to get
me off some of the narcotics but it made
me so dizzy and spacey I quit taking it.
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CarolDiane
Supporter
Joined: 23 Sep 2007 Posts: 2396
Thanks: 111
Thanked:156
Posted: 04-11-08 15:53pm
Not really. Just that it supposed to help
with pain and RLS. And also can be used
for siezures and antidepressant. It is
related to the Lamictal family in sort. I
can cover many different symtoms. Kinda an
all around broad spectrum medication. I
just know that it has been know to treat
many things.
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caliwine
New User, Becoming EHEALTHy
Joined: 04 Aug 2008 Posts: 1
Posted: 08-04-08 12:17pm
Hi Metalcrystal,
I was just diagnosed with Eagle’s
Syndrome after years of pain. Have you
found anything that has helped you?
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metalcrystal
Experienced User , Rather EHEALTHy
Joined: 11 Apr 2007 Posts: 112 Location: most boring state, USA,
eagles syndrome Posted: 08-05-08 19:22pm
Well, unfortunately I am back at square
one. The eagles syndrome that the
neurologist was so sure i had was not
confirmed on the x-rays, they showed the
elongated styloid but not to the degree he
thought they might. So he sent me to an
ENT surgeon, who pretty much laughed at
that diagnosis. Needless to say I never
went back to him. SOOOOO, here i am,
exactly where I was a year ago, still on
pain meds, eating soft food and definately
not seeing any more specialists! I go to
the chiropractor
twice a week and have trigger point
massage every week also. I am managing the
pain but have still not found the cause. I
personally think arthritis in the jaw is a
good bet.