Ear, Nose and Throat Disorders Forum - Eagle's syndrome
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Eagle's syndrome

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metalcrystal

Experienced User , Rather EHEALTHy
Joined: 11 Apr 2007
Posts: 112
Location: most boring state, USA,
Eagle's syndrome
Posted: 04-08-08 13:27pm

Has anyone ever been told they had this and /or had the surgery for it? I have just been diagnosed after it was mistaken for TMJ disorder for years.
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CarolDiane

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Joined: 23 Sep 2007
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Posted: 04-11-08 11:08am

I personally have not heard of this. I am going to research it so I know what it is and what causes it. Sugery? Most be connected to Tempral Mandibular Joint and the bone surrounding it. Is it hard to chew? Can you feel it slip out of place from time to time?
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metalcrystal

Experienced User , Rather EHEALTHy
Joined: 11 Apr 2007
Posts: 112
Location: most boring state, USA,

Posted: 04-11-08 14:23pm

It does hurt to chew, BUT, it is not a joint problem. The tmj specialist was confounded and never was able to help me. A neurologist is the one I got this diagnosis from. It is caused but an elongated styloid process. I go back next week to see what is the next step. The chief symptom, although there are others, is constant pain for the last 2 years. Hey Carrie do you know anything about Neurontin? I was suposed to try it to get me off some of the narcotics but it made me so dizzy and spacey I quit taking it.
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CarolDiane

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Posted: 04-11-08 15:53pm

Not really. Just that it supposed to help with pain and RLS. And also can be used for siezures and antidepressant. It is related to the Lamictal family in sort. I can cover many different symtoms. Kinda an all around broad spectrum medication. I just know that it has been know to treat many things.
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caliwine

New User, Becoming EHEALTHy
Joined: 04 Aug 2008
Posts: 1

Posted: 08-04-08 12:17pm

Hi Metalcrystal,

I was just diagnosed with Eagle’s Syndrome after years of pain. Have you found anything that has helped you?
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metalcrystal

Experienced User , Rather EHEALTHy
Joined: 11 Apr 2007
Posts: 112
Location: most boring state, USA,
eagles syndrome
Posted: 08-05-08 19:22pm

Well, unfortunately I am back at square one. The eagles syndrome that the neurologist was so sure i had was not confirmed on the x-rays, they showed the elongated styloid but not to the degree he thought they might. So he sent me to an ENT surgeon, who pretty much laughed at that diagnosis. Needless to say I never went back to him. SOOOOO, here i am, exactly where I was a year ago, still on pain meds, eating soft food and definately not seeing any more specialists! I go to the chiropractor
twice a week and have trigger point massage every week also. I am managing the pain but have still not found the cause. I personally think arthritis in the jaw is a good bet.
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