Joined: 17 Jan 2008 Posts: 3 Location: Phoenix, AZ USA
lightheadedness, fatigue, shortness of breath Posted: 01-17-08 16:54pm
For the past 8 weeks or so I've been
experiencing some relatively bizarre and
(so far) unexplained symptoms:
I went to visit my family in Dallas for
Thanksgiving. The day after Thanksgiving,
I was riding with a friend to meet up with
my brother and cousin at a local bar to
watch a hockey game. On the way there,
though, I started experiencing some
inexplicable lightheadedness, fatigue and
(most notably) shortness of breath. I
tried to play it off, but the feeling(s)
started to increase rapidly -- ultimately,
to the point where I seriously felt like I
was going to die. So, as a result, I
convinced my friend to take me to the ER.
By this point I'm admittedly panicking. To
expand a little more on the symptoms:
* The most disruptive one is difficulty
breathing. I feel a definite tightness in
my throat, but it's kind of coupled with a
tightness in my chest. That's accompanied
by an ache that feels kind of fluish.
Like, when you go for a jog when it's cold
outside and you breathe in cold air too
deeply for too long...that kind of ache.
* The fatigue can get to the point where I
almost feel like I'm about to lose
consciousness. However, it kind of doesn't
bother me all that much because, to be
honest with you, sometimes when this is
going on, I wish that I would lose
consciousness so I wouldn't have to deal
with not being able to breathe. I know it
sounds morbid, but it is what it is.
* The lightheadedness is almost always
accompanied with my hands and feet
becoming uncomfortably and noticeably
cold. When this is happening, I'll usually
have momentary bouts of confusion. %u2014
Weird, right?
Long story short: every nurse and doctor
in the house decided to weigh in on my
issue. By the time I left, the possibility
of hypoglycemia had been introduced to me,
as well as asthma, an acute allergic
reaction and, of course, the blanket
answer; panic attack. So, they basically
pump me up with Valium, write me a 10 dose
prescription for Xanax and send me on my
way. By this time, I'd pretty much
accepted the fact that I'd had a panic
attack. The Valium seemed to help in that,
my symptoms were still there, but I wasn't
flipping out about them anymore. I went to
sleep that night assured that everything
would be back to normal when I woke up.
Well, it wasn't. In fact, I've had the
same symptoms pretty much 24/7 since that
evening, even after returning to Phoenix.
Of course, the degree(s) vary and not all
of the symptoms are constant (except for
the difficulty breathing -- no matter
what. The fatigue and lightheadedness only
come in what I'd refer to as "attacks"
which can last anywhere from 15 minutes to
2 hours and happen anywhere from 1-3 times
a day (mostly at night, for some reason).
Since then, I've had two extensive
physicals from two different GP's. Blood
work, x-rays, EKG's, breathing tests...you
name it, I've done it...twice. And,
surprise-surprise, I've got no answers. --
It should be noted that the first Dr did
make it a point to A) not listen to
anything I said and B) treat me like I was
completely out of my mind. After two
visits with her, she had written me
prescriptions for Xanax, Celexa (sp?) and
some sort of bizarre "blue starter kit"
for bi-polar disorder (after I had a
really intense adverse reaction to the
Celexa).
Dr #2 has come up with zilch, also after
two visits. But, on the bright side,
they're actually trying to treat my
symptoms. On the first visit, I was
prescribed an Albuterol inhaler and
Bioxcin for acute bronchitis. This
surprisingly seemed to help a lot for the
week I was on it. The constant pressure
and ache in my chest and throat was still
there, but I felt a definite change for
the better after Day #2. However, that was
about a 5-6 weeks ago and the symptoms
were back in full swing after about 6-7
days after I started taking Bioxcin.
So, now what I do in between fruitless Dr
visits is basically try to deal with the
symptoms as they come with a cocktail of
Ibuprofen, Xanax and Albuterol. The
Ibuprofen seems to alleviate the swelling
feeling I get in my throat and the aching
tightness in my chest to some degree. The
inhaler is a nice touch, but it only helps
to a certain extent. The Xanax is kind of
last resort for me. I treat these little
guys like they're radioactive (a few years
ago I became desperately addicted to
benzodiazepines - namely Xanax - and it
was a long, hard road getting out %u2014
needless to say, I don't want to deal with
that again). I usually only take Xanax
before I fly, as that can be particularly
stressful on my breathing condition or if
things get to a point where if I don't
take it, I'll eventually just get so
worked up that I'll aggravate the
symptoms. To give you an idea of how much
Xanax I take: I was prescribed 30 .5mg
tabs with refills every 30 days. That was
about 7-8 weeks ago and I've taken about
12 of them total. In that time, I've taken
3 round trip flights.
Does anybody have any idea what's
going on here??
Now, while I appreciate all input on this
topic, if your answer is anything along
the lines of "panic disorder", please
don't waste your time posting. I've dealt
the panic my entire life (see:
benzodiazepine addiction) and this is not
panic. Believe me, I know. However, I will
admit that I do in fact panic from time to
time when these symptoms occur. But I
think it's a natural panic. As in, if I
didn't panic sometimes when this is
happening, I might need to consider the
fact that I'm dead. Imagine laying on your
back while 12-year-old kid balances on
your neck and upper chest and tell me that
wouldn't make you just a little uneasy. In
fact, since I've been dealing with this
every day for like, 2 months, I've almost
become blasé about the whole thing (EG the
panicking has all but died off entirely
%u2014 now I just sort of sit and wait for
the attacks to end).
Aside from that, I invite any thoughts or
theories you might have. I've seriously
considered everything: thyroid
complications, asthma, allergies, "valley
fever", bronchitis, acid reflux and, yes,
even panic.
Some things that might be important to
know about me:
* 24 year old male
* Average height, weight, build etc.
* No known preexisting conditions
* Up until these symptoms, I was pretty
physically active %u2014 however, I've
been slowed to the pace of a turtle
* Recently quit smoking about 3 months
ago
* Strict pescatarian diet (vegan, except I
eat fish/shellfish)
* I've lived in Phoenix for about 4 years
(some people seem to think this is
important to know)
P.S. A couple of things that I forgot to
mention: for some reason alcohol and
coffee seem to either aggravate or
actually cause these attacks to
occur. I can't really tell which. I
realize that I might just be a little too
analytical but coffee has been one of the
only common denominators in all of these
attacks. Oh, and I'm also developing a
slight cough when the breathing thing
really clamps down...so...fun. Anyways, I
thought those were all noteworthy. Do with
them what you will.
Thanks in advance!
|
fellow
New User, Becoming EHEALTHy
Joined: 26 Jun 2008 Posts: 1
hello Posted: 06-26-08 15:18pm
hi. i would like to know if you have been
able to find a name or a cure for your
symptoms. i have been sufferin from some
of what you have also been dealin with and
i would be VERY interested in knowing if
you have managed to find a resolution.
|
shaixhulud
New User, Becoming EHEALTHy
Joined: 17 Jan 2008 Posts: 3 Location: Phoenix, AZ USA
Re: hello Posted: 06-26-08 16:13pm
fellow
wrote:
hi. i would like to know if
you have been able to find a name or a
cure for your symptoms. i have been
sufferin from some of what you have also
been dealin with and i would be VERY
interested in knowing if you have managed
to find a
resolution.
Actually, after a lot of being shifted
around from doctor to doctor I was finally
diagnosed as having an ASD (Atrial Septal
Defect) which, as you might have guessed,
is a heart condition. It's similar to but
not quite as common as a PFO (Patent
Foramen Ovale).
Basically...it was a hole in the heart.
Unoxygenated blood from one atrium was
mixing with oxygenated blood in the other
atrium, thus making me feel like total
s*#t and overworking my heart.
If this turns out to be the case with you,
don't be freaked out. It's actually really
common and the surgery is a breeze. And if
you're still relatively young and your
heart is enlarged as a result of the hole,
it's not that big of a deal, apparently. I
started feeling better gradually. It's
been 4 months now and I'm 100% back to
normal.
Just a word of warning though; there are A
LOT of cardiologists that think that
having symptoms from an ASD or PFO is
totally ridiculous (which, in and of
itself is ridiculous -- how could you not
have an long term negative effects from A
HOLE IN YOUR HEART??). However, I mean,
come on...you can't argue with results. I
had my ASD patched and now 3 months later
I'm as good as new. These Dr's are totally
archaic and should probably be sent back
to medical school...but what do I know?
|
tittye
New User, Becoming EHEALTHy
Joined: 06 Jul 2008 Posts: 1
hello Posted: 07-06-08 02:09am
I am a 24 y/o male who went to the
hospital for the following symptoms:
Unable to recall events between a half
hour to the next day. I would go into
"auto pilot" where i would function but
not lay down tracks of memory. I would go
through motions and end up not knowing
where i am or sometimes who i am. I ended
up going to the hospital because i could
not recall events of the night prior to
going to the hospital. I ended up
collapsing and striking my face on the
curb. The next morning i did not recall
anything 6 hours prior to an hour after i
woke up. I had severe lacerations to my
face and ended up in the hospital. I had
shortness of breath and chest pains. So
when i ended up in the hospital they did
and EEG, X-ray, CT scan, EKG, MRI, and an
ultra sound of my chest due to the chest
pains. The ultra sound showed a small hole
in my heart. And they suggested i follow
up with a cardiologist and neurologist.
I followed up with both. My cardiologist
performed a TEE which revealed a medium to
large ASD. My neurologist suggested it
might be siezures, but believes its more
cardiac then anything else. He believes
its a lack of oxygen in my blood going to
my brain. My cardiologist believes it was
asthma thats causing the shortness of
breath and the chest pain is just anxiety.
This is been going on since January 2008.
I have been in and out of the hospital for
chest pains and shortness of breath.
Nothing has changed in my symptoms. I
still have chest pains and shortness of
breath. I cant do much exercise without
getting extremely tired and lathargic and
chest pain. I havent had any episodes
lately where i dont know where i am, but
still have trouble with remembering a lot
of things. I still have the punching
feeling where i feel extremely
lightheaded.
I am on 11 different medications now. I
have been on xanax, effexor, ativan,
before they decided to put me on klonopin
and celexa. Like i said, i am on 11
different medications. None of my
medications are for my chest pain. I am on
advair and adbudoral for shortness of
breath. Even though i did the asthma tests
and came up negative for asthma. On keppra
for seizures even though my neurologist
thinks its more cardiac, but to be on the
safe side, gave me keppra. I am seeing a
physchiatrist because of the medication,
(military rules to see them when on a lot
of meds). He perscribed celexa and
klonopin to fight against the negative
side effects of the keppra. And allegra
and flonase for allergies. Nexium for acid
reflux, and flexeral, and neproxyn for
falling down the stairs on the way to the
hospital. Had the chest pains. Went to the
hospital and as i was walking down the
stairs had the punching feeling and
collapse at the top of the stairs and
messed up my back.
Needless to say the only facts i have is
that i have an ASD. Not sure the size. But
still have chest pains and everything
else. My primary care doctor has tried to
send me to cardiologists to get my hole
fixed, but cardiologists dont want to or
dont feel the need to fix the hole. My
physician, neurologist, phychiatrist,
phychologist, and a handful of physicians
at the hospital say its cardiac related.
I am at my wits end with this. This has
been going on since January. I am a
firefighter for the military, and since
all of this has started i cannot do my
job. I miss my job and want to get back to
being active again. I use to play hockey
and lacrosse and fight fire. How do i get
back to enjoying my life again? Where did
you go to finally get fixed? And how did
you get it done?
|
shaixhulud
New User, Becoming EHEALTHy
Joined: 17 Jan 2008 Posts: 3 Location: Phoenix, AZ USA
Re: hello Posted: 07-06-08 18:52pm
tittye
wrote:
I am at my wits end with
this. This has been going on since
January. I am a firefighter for the
military, and since all of this has
started i cannot do my job. I miss my job
and want to get back to being active
again. I use to play hockey and lacrosse
and fight fire. How do i get back to
enjoying my life again? Where did you go
to finally get fixed? And how did you get
it done?
I know what you mean. It's definitely
rough. I didn't really have as many of the
neurological side effects as you've
experienced, but I did deal with some
memory loss as a result of my ASD. Also,
towards the end I was definitely
experiencing chest pains. I mean, if you
think about it, it makes sense. The heart
and the area surrounding the heart
obviously have nerves. If you're heart and
lungs are overworked, over sized and
exhausted as a result of an ASD or PFO,
then pain is often natural.
I went to several Dr's who suggested
psychiatric drugs, and for a time I
entertained the idea. But, I'm telling
you, ASD's do produce symptoms. Sometimes
really intense and possibly life
threatening symptoms. However, a lot of
cardiologists just plain don't believe in
this concept. I know because I dealt with
a lot of them. And, you know what? They
were all wrong. Every last one of them.
As a I mentioned in my last post, you
can't really argue with results. I had an
ASD, they patched it, symptoms gone. The
end.
There are even still a lot of extremely
respected facilities like the Mayo Clinic
that basically say "ASD's are totally
harmless and would never in any plain of
reality produce symptoms." Needless to
say, thank Christ I didn't end up at the
Mayo Clinic.
Basically, what you need to do is get with
your GP and just really insist that they
refer you to a new cardiologist. Do your
homework on ASD's and make sure you're
really on top of your appointments, get
your records transfered (or make sure you
have physical copies). If that
cardiologist doesn't get on your side then
go to another one. Eventually, you'll find
one that will understand your case and
believe in your problem.
ASD repair is a somewhat recent
development, I've come to understand and
there are still a lot of non-believers out
there...which is scary. But you just have
to keep plugging away and, for God's sake,
you need to get PROACTIVE and start
harassing your Dr's to do something for
you. Remember, Dr's treat symptoms, not
patients. They don't really care about
your quality of life, at the end of the
day...honestly. So, I mean, none of them
are going to pick you up as a charity case
because they feel bad for you. Get on the
phone, get in their offices, ask the right
questions, as a lot of questions, get all
the tests done, do everything you can. If
you end up with a cardiologist that seems
aloof or uninterested in your problem,
don't get discouraged...just find another
one and hope they'll listen.
Dr's by nature are extremely arrogant I've
noticed. If they can't figure out what's
wrong they'll usually just pump you full
of psychiatric drugs. That's total BS and
you need to get off of all that garbage
ASAP. Furthermore, don't mention to any
cardiologists you might deal with in the
future that you were on psychiatric drugs.
Dr's tend to take you less seriously, I've
noticed. It's kind of messed up, but it's
true.
Oh...and I had my procedure done at The
Arizona Heart Hospital and my regular
cardiologist (who actually performed my
surgery) is at the Arizona Heart
Institute. Fantastic hospital. Great docs.
Super understanding and super sympathetic
to my cause.
And think of it this way; you NEED to get
the ASD patched no matter what. Even if
it's not the cause of your symptoms, at
least you can rule that out later.
Best of luck to you. Hopefully you can
find a cardiologist that will perform the
procedure.