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lightheadedness, fatigue, shortness of breath

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shaixhulud

New User, Becoming EHEALTHy
Joined: 17 Jan 2008
Posts: 3
Location: Phoenix, AZ USA
lightheadedness, fatigue, shortness of breath
Posted: 01-17-08 16:54pm

For the past 8 weeks or so I've been experiencing some relatively bizarre and (so far) unexplained symptoms:

I went to visit my family in Dallas for Thanksgiving. The day after Thanksgiving, I was riding with a friend to meet up with my brother and cousin at a local bar to watch a hockey game. On the way there, though, I started experiencing some inexplicable lightheadedness, fatigue and (most notably) shortness of breath. I tried to play it off, but the feeling(s) started to increase rapidly -- ultimately, to the point where I seriously felt like I was going to die. So, as a result, I convinced my friend to take me to the ER.

By this point I'm admittedly panicking. To expand a little more on the symptoms:

* The most disruptive one is difficulty breathing. I feel a definite tightness in my throat, but it's kind of coupled with a tightness in my chest. That's accompanied by an ache that feels kind of fluish. Like, when you go for a jog when it's cold outside and you breathe in cold air too deeply for too long...that kind of ache.

* The fatigue can get to the point where I almost feel like I'm about to lose consciousness. However, it kind of doesn't bother me all that much because, to be honest with you, sometimes when this is going on, I wish that I would lose consciousness so I wouldn't have to deal with not being able to breathe. I know it sounds morbid, but it is what it is.

* The lightheadedness is almost always accompanied with my hands and feet becoming uncomfortably and noticeably cold. When this is happening, I'll usually have momentary bouts of confusion. %u2014 Weird, right?

Long story short: every nurse and doctor in the house decided to weigh in on my issue. By the time I left, the possibility of hypoglycemia had been introduced to me, as well as asthma, an acute allergic reaction and, of course, the blanket answer; panic attack. So, they basically pump me up with Valium, write me a 10 dose prescription for Xanax and send me on my way. By this time, I'd pretty much accepted the fact that I'd had a panic attack. The Valium seemed to help in that, my symptoms were still there, but I wasn't flipping out about them anymore. I went to sleep that night assured that everything would be back to normal when I woke up.

Well, it wasn't. In fact, I've had the same symptoms pretty much 24/7 since that evening, even after returning to Phoenix. Of course, the degree(s) vary and not all of the symptoms are constant (except for the difficulty breathing -- no matter what. The fatigue and lightheadedness only come in what I'd refer to as "attacks" which can last anywhere from 15 minutes to 2 hours and happen anywhere from 1-3 times a day (mostly at night, for some reason).

Since then, I've had two extensive physicals from two different GP's. Blood work, x-rays, EKG's, breathing tests...you name it, I've done it...twice. And, surprise-surprise, I've got no answers. -- It should be noted that the first Dr did make it a point to A) not listen to anything I said and B) treat me like I was completely out of my mind. After two visits with her, she had written me prescriptions for Xanax, Celexa (sp?) and some sort of bizarre "blue starter kit" for bi-polar disorder (after I had a really intense adverse reaction to the Celexa).

Dr #2 has come up with zilch, also after two visits. But, on the bright side, they're actually trying to treat my symptoms. On the first visit, I was prescribed an Albuterol inhaler and Bioxcin for acute bronchitis. This surprisingly seemed to help a lot for the week I was on it. The constant pressure and ache in my chest and throat was still there, but I felt a definite change for the better after Day #2. However, that was about a 5-6 weeks ago and the symptoms were back in full swing after about 6-7 days after I started taking Bioxcin.

So, now what I do in between fruitless Dr visits is basically try to deal with the symptoms as they come with a cocktail of Ibuprofen, Xanax and Albuterol. The Ibuprofen seems to alleviate the swelling feeling I get in my throat and the aching tightness in my chest to some degree. The inhaler is a nice touch, but it only helps to a certain extent. The Xanax is kind of last resort for me. I treat these little guys like they're radioactive (a few years ago I became desperately addicted to benzodiazepines - namely Xanax - and it was a long, hard road getting out %u2014 needless to say, I don't want to deal with that again). I usually only take Xanax before I fly, as that can be particularly stressful on my breathing condition or if things get to a point where if I don't take it, I'll eventually just get so worked up that I'll aggravate the symptoms. To give you an idea of how much Xanax I take: I was prescribed 30 .5mg tabs with refills every 30 days. That was about 7-8 weeks ago and I've taken about 12 of them total. In that time, I've taken 3 round trip flights.

Does anybody have any idea what's going on here??

Now, while I appreciate all input on this topic, if your answer is anything along the lines of "panic disorder", please don't waste your time posting. I've dealt the panic my entire life (see: benzodiazepine addiction) and this is not panic. Believe me, I know. However, I will admit that I do in fact panic from time to time when these symptoms occur. But I think it's a natural panic. As in, if I didn't panic sometimes when this is happening, I might need to consider the fact that I'm dead. Imagine laying on your back while 12-year-old kid balances on your neck and upper chest and tell me that wouldn't make you just a little uneasy. In fact, since I've been dealing with this every day for like, 2 months, I've almost become blasé about the whole thing (EG the panicking has all but died off entirely %u2014 now I just sort of sit and wait for the attacks to end).

Aside from that, I invite any thoughts or theories you might have. I've seriously considered everything: thyroid complications, asthma, allergies, "valley fever", bronchitis, acid reflux and, yes, even panic.

Some things that might be important to know about me:

* 24 year old male
* Average height, weight, build etc.
* No known preexisting conditions
* Up until these symptoms, I was pretty physically active %u2014 however, I've been slowed to the pace of a turtle
* Recently quit smoking about 3 months ago
* Strict pescatarian diet (vegan, except I eat fish/shellfish)
* I've lived in Phoenix for about 4 years (some people seem to think this is important to know)

P.S. A couple of things that I forgot to mention: for some reason alcohol and coffee seem to either aggravate or actually cause these attacks to occur. I can't really tell which. I realize that I might just be a little too analytical but coffee has been one of the only common denominators in all of these attacks. Oh, and I'm also developing a slight cough when the breathing thing really clamps down...so...fun. Anyways, I thought those were all noteworthy. Do with them what you will.

Thanks in advance!
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fellow

New User, Becoming EHEALTHy
Joined: 26 Jun 2008
Posts: 1
hello
Posted: 06-26-08 15:18pm

hi. i would like to know if you have been able to find a name or a cure for your symptoms. i have been sufferin from some of what you have also been dealin with and i would be VERY interested in knowing if you have managed to find a resolution.
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shaixhulud

New User, Becoming EHEALTHy
Joined: 17 Jan 2008
Posts: 3
Location: Phoenix, AZ USA
Re: hello
Posted: 06-26-08 16:13pm

fellow wrote:
hi. i would like to know if you have been able to find a name or a cure for your symptoms. i have been sufferin from some of what you have also been dealin with and i would be VERY interested in knowing if you have managed to find a resolution.


Actually, after a lot of being shifted around from doctor to doctor I was finally diagnosed as having an ASD (Atrial Septal Defect) which, as you might have guessed, is a heart condition. It's similar to but not quite as common as a PFO (Patent Foramen Ovale).

Basically...it was a hole in the heart. Unoxygenated blood from one atrium was mixing with oxygenated blood in the other atrium, thus making me feel like total s*#t and overworking my heart.

If this turns out to be the case with you, don't be freaked out. It's actually really common and the surgery is a breeze. And if you're still relatively young and your heart is enlarged as a result of the hole, it's not that big of a deal, apparently. I started feeling better gradually. It's been 4 months now and I'm 100% back to normal.

Just a word of warning though; there are A LOT of cardiologists that think that having symptoms from an ASD or PFO is totally ridiculous (which, in and of itself is ridiculous -- how could you not have an long term negative effects from A HOLE IN YOUR HEART??). However, I mean, come on...you can't argue with results. I had my ASD patched and now 3 months later I'm as good as new. These Dr's are totally archaic and should probably be sent back to medical school...but what do I know?
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tittye

New User, Becoming EHEALTHy
Joined: 06 Jul 2008
Posts: 1
hello
Posted: 07-06-08 02:09am

I am a 24 y/o male who went to the hospital for the following symptoms: Unable to recall events between a half hour to the next day. I would go into "auto pilot" where i would function but not lay down tracks of memory. I would go through motions and end up not knowing where i am or sometimes who i am. I ended up going to the hospital because i could not recall events of the night prior to going to the hospital. I ended up collapsing and striking my face on the curb. The next morning i did not recall anything 6 hours prior to an hour after i woke up. I had severe lacerations to my face and ended up in the hospital. I had shortness of breath and chest pains. So when i ended up in the hospital they did and EEG, X-ray, CT scan, EKG, MRI, and an ultra sound of my chest due to the chest pains. The ultra sound showed a small hole in my heart. And they suggested i follow up with a cardiologist and neurologist.

I followed up with both. My cardiologist performed a TEE which revealed a medium to large ASD. My neurologist suggested it might be siezures, but believes its more cardiac then anything else. He believes its a lack of oxygen in my blood going to my brain. My cardiologist believes it was asthma thats causing the shortness of breath and the chest pain is just anxiety. This is been going on since January 2008. I have been in and out of the hospital for chest pains and shortness of breath.

Nothing has changed in my symptoms. I still have chest pains and shortness of breath. I cant do much exercise without getting extremely tired and lathargic and chest pain. I havent had any episodes lately where i dont know where i am, but still have trouble with remembering a lot of things. I still have the punching feeling where i feel extremely lightheaded.

I am on 11 different medications now. I have been on xanax, effexor, ativan, before they decided to put me on klonopin and celexa. Like i said, i am on 11 different medications. None of my medications are for my chest pain. I am on advair and adbudoral for shortness of breath. Even though i did the asthma tests and came up negative for asthma. On keppra for seizures even though my neurologist thinks its more cardiac, but to be on the safe side, gave me keppra. I am seeing a physchiatrist because of the medication, (military rules to see them when on a lot of meds). He perscribed celexa and klonopin to fight against the negative side effects of the keppra. And allegra and flonase for allergies. Nexium for acid reflux, and flexeral, and neproxyn for falling down the stairs on the way to the hospital. Had the chest pains. Went to the hospital and as i was walking down the stairs had the punching feeling and collapse at the top of the stairs and messed up my back.

Needless to say the only facts i have is that i have an ASD. Not sure the size. But still have chest pains and everything else. My primary care doctor has tried to send me to cardiologists to get my hole fixed, but cardiologists dont want to or dont feel the need to fix the hole. My physician, neurologist, phychiatrist, phychologist, and a handful of physicians at the hospital say its cardiac related.

I am at my wits end with this. This has been going on since January. I am a firefighter for the military, and since all of this has started i cannot do my job. I miss my job and want to get back to being active again. I use to play hockey and lacrosse and fight fire. How do i get back to enjoying my life again? Where did you go to finally get fixed? And how did you get it done?
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shaixhulud

New User, Becoming EHEALTHy
Joined: 17 Jan 2008
Posts: 3
Location: Phoenix, AZ USA
Re: hello
Posted: 07-06-08 18:52pm

tittye wrote:
I am at my wits end with this. This has been going on since January. I am a firefighter for the military, and since all of this has started i cannot do my job. I miss my job and want to get back to being active again. I use to play hockey and lacrosse and fight fire. How do i get back to enjoying my life again? Where did you go to finally get fixed? And how did you get it done?


I know what you mean. It's definitely rough. I didn't really have as many of the neurological side effects as you've experienced, but I did deal with some memory loss as a result of my ASD. Also, towards the end I was definitely experiencing chest pains. I mean, if you think about it, it makes sense. The heart and the area surrounding the heart obviously have nerves. If you're heart and lungs are overworked, over sized and exhausted as a result of an ASD or PFO, then pain is often natural.

I went to several Dr's who suggested psychiatric drugs, and for a time I entertained the idea. But, I'm telling you, ASD's do produce symptoms. Sometimes really intense and possibly life threatening symptoms. However, a lot of cardiologists just plain don't believe in this concept. I know because I dealt with a lot of them. And, you know what? They were all wrong. Every last one of them.

As a I mentioned in my last post, you can't really argue with results. I had an ASD, they patched it, symptoms gone. The end.

There are even still a lot of extremely respected facilities like the Mayo Clinic that basically say "ASD's are totally harmless and would never in any plain of reality produce symptoms." Needless to say, thank Christ I didn't end up at the Mayo Clinic.

Basically, what you need to do is get with your GP and just really insist that they refer you to a new cardiologist. Do your homework on ASD's and make sure you're really on top of your appointments, get your records transfered (or make sure you have physical copies). If that cardiologist doesn't get on your side then go to another one. Eventually, you'll find one that will understand your case and believe in your problem.

ASD repair is a somewhat recent development, I've come to understand and there are still a lot of non-believers out there...which is scary. But you just have to keep plugging away and, for God's sake, you need to get PROACTIVE and start harassing your Dr's to do something for you. Remember, Dr's treat symptoms, not patients. They don't really care about your quality of life, at the end of the day...honestly. So, I mean, none of them are going to pick you up as a charity case because they feel bad for you. Get on the phone, get in their offices, ask the right questions, as a lot of questions, get all the tests done, do everything you can. If you end up with a cardiologist that seems aloof or uninterested in your problem, don't get discouraged...just find another one and hope they'll listen.

Dr's by nature are extremely arrogant I've noticed. If they can't figure out what's wrong they'll usually just pump you full of psychiatric drugs. That's total BS and you need to get off of all that garbage ASAP. Furthermore, don't mention to any cardiologists you might deal with in the future that you were on psychiatric drugs. Dr's tend to take you less seriously, I've noticed. It's kind of messed up, but it's true.

Oh...and I had my procedure done at The Arizona Heart Hospital and my regular cardiologist (who actually performed my surgery) is at the Arizona Heart Institute. Fantastic hospital. Great docs. Super understanding and super sympathetic to my cause.

And think of it this way; you NEED to get the ASD patched no matter what. Even if it's not the cause of your symptoms, at least you can rule that out later.

Best of luck to you. Hopefully you can find a cardiologist that will perform the procedure.
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