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paininok

New User, Becoming EHEALTHy
Joined: 16 Sep 2005
Posts: 3
Location: , OK US
Lupus,Fibro,OAgradeIV,DDD total spine,Heart problems
Posted: 07-09-08 23:31pm

I fell at work on Jan 5, 2005 and had to wait 4 months before my first knee surgery (W/C and Dr. fought about getting a TKR on both knees) Had to go through shots, meds, rehab first. I found out on my first MRI, I have claustrophobia. Major damage lots of work. 6 months before my other knee surgery. More damage lots of work. I not only put holes in both knees and tore both knees meniscus, but I also found out I had grade 4 OA and malalignment in both knees. I didn't have a good knee to lean on for the other knee to get better. It got worse and worse. After 2nd knee surgery I hemorrhaged inside knee and had to go to Dr. to get a needle inserted in incision and pull out as much blood as they could! This is insane. Had to be admitted 1 week later (When my Dr. was on vacation) for DVT. SOOO much pain! Put on dilaudid and slept finally! {My Dr. wanted to do TKR%u2019s on both knees because of the OA but Work Comp denied it because it wasn%u2019t done in my fall.} During this time I was in so much pain. More I think than I have ever been, for longer than I have ever been. (W/C started backing out of everything. Denying I got hurt at work at all. Major stress. My husbands insurance wouldn%u2019t pay for anything because it was work related.)
Right after I fell I started having low back pain down leg. During a shower, my right knee went out on me and I fell HARD on the side of the tub. I had a huge deep hematoma on my total left butt cheek and down my whole left thigh. It took 3 months to go away and traveled down my whole leg. More tests. I found out from a Neurosurgeon I had two herniated discs in my lumbar region. I went through months of rehab and steroid injections to no avail. I was terminated from my job. Depression started.
During all of this I was going through so much stress trying to get W/C. Had to go to several of their Drs. and their tests (again claustrophobia!) Depositions, delayed court dates. Anxiety started.
Started having severe pain in abdomen. More tests. I found out I had 15 gallstones and had to have Gallbladder out. I went to knee and back rehab the day after surgery with a drainage bag! To me this was so minute compared to what I had already been through. During rehab on my knees and back I got ITBS in my right knee. It is still there today if I do anything to aggravate it. Couldn%u2019t do rehab anymore. Can%u2019t exercise at all
Started having severe pain in neck, shoulder and arm. Numbness in arm and hand. Loss of strength in hand. More tests. Had carpal tunnel syndrome in both wrists and I had a herniated disc in my neck and it was serious. It was causing irreparable nerve damage in my left arm and hand. Tried shots, said it wouldn%u2019t hurt but he hit a nerve! SEVERE streaming pain for 2 minutes! Did this twice and it didn%u2019t work. I went through months of having steroid injections in both my knees, back and neck. None of them helped. Had all the tests again DDD in my total spine.
Neurosurgeon said I had to get neck done before back. It was more serious. Fibromyalgia started. Right before my neck surgery I go by Ambulance to ER with heart rate of 215 twice in two weeks. More tests by Electro physiologist? Electro cardiologist? Can%u2019t remember what he was, but he was the only one in my State! Before Neurosurgeon would do my neck surgery he said I had to have Cardiologist release me from heart problems first. This was a lot of stress! I didn%u2019t know if I was going to die or what. Dr. said I had SVT and had to have some extra cells on the inside of my heart removed, because they were making my heart fire too much. After many tests (More claustrophobia!) He went in through my groin and neck with a wire and camera and burned off the extra cells. It%u2019s called a cardiac ablation. He said it was a classic text book case of SVT.
Then I had a neck fusion with a cadaver bone and wore a brace for 6 weeks continuously or I could get paralyzed.
Then I got a temporary Spinal Chord Stimulator put in for lumbar pain. Wore battery on outside and had one wire placed inside my thoracic spinal column on outpatient basis. Worked for 3 days and then slipped in column and put both legs to sleep! Had to have permanent SCS put in with special features. My Pain Management Dr. and My Neurosurgeon both had to go in and surgically cut my bones in back and place three wires that were laminated in to spinal column so it wouldn%u2019t move again. Then they cut a big incision on my hip to place battery inside of my body. This was sooo painful to recover from and it did help some of the pain in my legs and butt but not my low back. Nothing will I guess.
I had to have Carpal tunnel surgery by Neurosurgeon after recovering from neck. It was pretty bad he said. It was a pretty easy surgery to get over, I thought. Nothing like the rest I had been through!
Then I started noticing I couldn%u2019t swallow! More tests and Radiologist wrote at the end of the report in the discussion he saw only a small hiatal hernia and proof of gerd. It%u2019s the end of 2007 now and my husbands insurance changed effective 1/1/2008, as well as all my Drs. and Hospital too!
Went to new PCP on 1/3/2008 with all my records from all my Drs. (12) and took them to my new PCP. I read them and before I gave him a copy I noticed in the report from the radiologist, who did my throat scan, wrote a note that he saw a 1cm nodule on the side of my thyroid. But he didn%u2019t write it in the discussion at the bottom of the report which is all the Drs. usually read. I mentioned it to my new PCP and he felt my thyroid and sent me for more tests!
New PCP wasn%u2019t going to prescribe me the Duragesic 50 Patch or my Zanaflex 4mcg; I was on, because he said he didn%u2019t like to prescribe that. I called my old Dr. (I had been with him for 7 years so he knew I was no drug addict. Actually I hated pain killers. After all of this I am now allergic to about 12 different meds of which are HBP meds, antibiotics, and pain meds.) My old PCP called my new PCP and explained what all I had been through and he started all my meds immediately.
Tests showed my thyroid to be covered with nodules. More blood tests. (I should be out of blood by now!) I was DX%u2019ed with Hypothyroidism 2/2008. Put on Synthroid to destroy my thyroid so nodules would go away. Still trying to get it regulated.
Sent to a Rheumatologist because of blood work in February. DX%u2019ed with Lupus SLE 3/2008, ovarian cyst and kidney stones 4/2008. Did a 24hr. urine test and found protein in urine again. Being sent to a Nephrologist on 7/29). Tests also showed high liver enzymes. More tests. Hasn%u2019t told me about liver yet for sure other than it is inflamed.
SOOOO from Jan. 2005-current I have had 5 joint surgeries, 3 organ surgeries, DX%u2019ed with Lupus SLE, DDD total spine, OA grade IV (both knees), Fibromyalgia, Claustrophobia, high blood pressure, hiatal hernia, gerd, depression, anxiety disorder, agoraphobia, hypothyroidism, Breast Fibroids (2 ½ hour mammogram so they could get pictures of all of them and they are sooo tender, I cried the whole time), Heart Ablation, Kidney & Gallbladder stones, thyroid nodules, colon polyp removal (I wake up screaming when colonoscopy is done because I have such a sensitive colon. I have had 3 done with same results. Gastroenterologist says he has never given anyone as much meds as me! They will have to knock me out the next time, because I always wake up screaming!! I wonder if this has to do with the Fibromyalgia), ovarian cyst, Kidney and Liver inflammation, depression, anxiety, MVP, Spinal Chord Stimulator, Cervical fusion with metal and cadaver bone inserted, waiting for age 55 to get TKR's unless they come up with an alternative before then. PLEASE!
I have hemorrhaged 3 times in my lifetime. When I was 12 years old I had a T&A and did. When I was 22 I hemorrhaged after I had my daughter. I hemorrhaged after my second knee surgery. I guess you could say I hemorrhaged when I fell in shower too. But I fell hard! My blood tests show I have a high platelet count though. Wonder why? My son is 22 and still has nosebleeds everyday. Even after having 3 sinus surgeries. Mine bleeds all the time also. What%u2019s with that? I don%u2019t think I want to know so I am not bringing it up! LOL

Am I doomed to getting more problems and to keep go down hill? Has anyone else had similar circumstances? Is Lupus causing all this? Why is so much happening??? I'm only 47 yrs. old and only saw a Dr. once or twice a year before all of this. My life has changed so dramatically. Sit in chair with legs up or sleep continuously. Duragesic Patch and Plaquenil are helping but this is no life. My poor husband and kids. My mind is screwed up also. Any help is appreciated!
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