Lupus,Fibro,OAgradeIV,DDD total spine,Heart problems Posted: 07-09-08 23:31pm
I fell at work on Jan 5, 2005 and had to
wait 4 months before my first knee surgery
(W/C and Dr. fought about getting a TKR on
both knees) Had to go through shots, meds,
rehab first. I found out on my first MRI,
I have claustrophobia. Major damage lots
of work. 6 months before my other knee
surgery. More damage lots of work. I not
only put holes in both knees and tore both
knees meniscus, but I also found out I had
grade 4 OA and malalignment in both knees.
I didn't have a good knee to lean on for
the other knee to get better. It got worse
and worse. After 2nd knee surgery I
hemorrhaged inside knee and had to go to
Dr. to get a needle inserted in incision
and pull out as much blood as they could!
This is insane. Had to be admitted 1 week
later (When my Dr. was on vacation) for
DVT. SOOO much pain! Put on dilaudid and
slept finally! {My Dr. wanted to do
TKR%u2019s on both knees because of the OA
but Work Comp denied it because it
wasn%u2019t done in my fall.} During this
time I was in so much pain. More I think
than I have ever been, for longer than I
have ever been. (W/C started backing out
of everything. Denying I got hurt at work
at all. Major stress. My husbands
insurance wouldn%u2019t pay for anything
because it was work related.)
Right after I fell I started having low
back pain down leg. During a shower, my
right knee went out on me and I fell HARD
on the side of the tub. I had a huge deep
hematoma on my total left butt cheek and
down my whole left thigh. It took 3 months
to go away and traveled down my whole leg.
More tests. I found out from a
Neurosurgeon I had two herniated discs in
my lumbar region. I went through months of
rehab and steroid injections to no avail.
I was terminated from my job. Depression
started.
During all of this I was going through so
much stress trying to get W/C. Had to go
to several of their Drs. and their tests
(again claustrophobia!) Depositions,
delayed court dates. Anxiety started.
Started having severe pain in abdomen.
More tests. I found out I had 15
gallstones and had to have Gallbladder
out. I went to knee and back rehab the day
after surgery with a drainage bag! To me
this was so minute compared to what I had
already been through. During rehab on my
knees and back I got ITBS in my right
knee. It is still there today if I do
anything to aggravate it. Couldn%u2019t do
rehab anymore. Can%u2019t exercise at all
Started having severe pain in neck,
shoulder and arm. Numbness in arm and
hand. Loss of strength in hand. More
tests. Had carpal tunnel syndrome in both
wrists and I had a herniated disc in my
neck and it was serious. It was causing
irreparable nerve damage in my left arm
and hand. Tried shots, said it
wouldn%u2019t hurt but he hit a nerve!
SEVERE streaming pain for 2 minutes! Did
this twice and it didn%u2019t work. I went
through months of having steroid
injections in both my knees, back and
neck. None of them helped. Had all the
tests again DDD in my total spine.
Neurosurgeon said I had to get neck done
before back. It was more serious.
Fibromyalgia started. Right before my neck
surgery I go by Ambulance to ER with heart
rate of 215 twice in two weeks. More tests
by Electro physiologist? Electro
cardiologist? Can%u2019t remember what he
was, but he was the only one in my State!
Before Neurosurgeon would do my neck
surgery he said I had to have Cardiologist
release me from heart problems first. This
was a lot of stress! I didn%u2019t know if
I was going to die or what. Dr. said I had
SVT and had to have some extra cells on
the inside of my heart removed, because
they were making my heart fire too much.
After many tests (More claustrophobia!) He
went in through my groin and neck with a
wire and camera and burned off the extra
cells. It%u2019s called a cardiac
ablation. He said it was a classic text
book case of SVT.
Then I had a neck fusion with a cadaver
bone and wore a brace for 6 weeks
continuously or I could get paralyzed.
Then I got a temporary Spinal Chord
Stimulator put in for lumbar pain. Wore
battery on outside and had one wire placed
inside my thoracic spinal column on
outpatient basis. Worked for 3 days and
then slipped in column and put both legs
to sleep! Had to have permanent SCS put in
with special features. My Pain Management
Dr. and My Neurosurgeon both had to go in
and surgically cut my bones in back and
place three wires that were laminated in
to spinal column so it wouldn%u2019t move
again. Then they cut a big incision on my
hip to place battery inside of my body.
This was sooo painful to recover from and
it did help some of the pain in my legs
and butt but not my low back. Nothing will
I guess.
I had to have Carpal tunnel surgery by
Neurosurgeon after recovering from neck.
It was pretty bad he said. It was a pretty
easy surgery to get over, I thought.
Nothing like the rest I had been through!
Then I started noticing I couldn%u2019t
swallow! More tests and Radiologist wrote
at the end of the report in the discussion
he saw only a small hiatal hernia and
proof of gerd. It%u2019s the end of 2007
now and my husbands insurance changed
effective 1/1/2008, as well as all my Drs.
and Hospital too!
Went to new PCP on 1/3/2008 with all my
records from all my Drs. (12) and took
them to my new PCP. I read them and before
I gave him a copy I noticed in the report
from the radiologist, who did my throat
scan, wrote a note that he saw a 1cm
nodule on the side of my thyroid. But he
didn%u2019t write it in the discussion at
the bottom of the report which is all the
Drs. usually read. I mentioned it to my
new PCP and he felt my thyroid and sent me
for more tests!
New PCP wasn%u2019t going to prescribe me
the Duragesic 50 Patch or my Zanaflex
4mcg; I was on, because he said he
didn%u2019t like to prescribe that. I
called my old Dr. (I had been with him for
7 years so he knew I was no drug addict.
Actually I hated pain killers. After all
of this I am now allergic to about 12
different meds of which are HBP meds,
antibiotics, and pain meds.) My old PCP
called my new PCP and explained what all I
had been through and he started all my
meds immediately.
Tests showed my thyroid to be covered with
nodules. More blood tests. (I should be
out of blood by now!) I was DX%u2019ed
with Hypothyroidism 2/2008. Put on
Synthroid to destroy my thyroid so nodules
would go away. Still trying to get it
regulated.
Sent to a Rheumatologist because of blood
work in February. DX%u2019ed with Lupus
SLE 3/2008, ovarian cyst and kidney stones
4/2008. Did a 24hr. urine test and found
protein in urine again. Being sent to a
Nephrologist on 7/29). Tests also showed
high liver enzymes. More tests.
Hasn%u2019t told me about liver yet for
sure other than it is inflamed.
SOOOO from Jan. 2005-current I have had 5
joint surgeries, 3 organ surgeries,
DX%u2019ed with Lupus SLE, DDD total
spine, OA grade IV (both knees),
Fibromyalgia, Claustrophobia, high blood
pressure, hiatal hernia, gerd, depression,
anxiety disorder, agoraphobia,
hypothyroidism, Breast Fibroids (2 ½ hour
mammogram so they could get pictures of
all of them and they are sooo tender, I
cried the whole time), Heart Ablation,
Kidney & Gallbladder stones, thyroid
nodules, colon polyp removal (I wake up
screaming when colonoscopy is done because
I have such a sensitive colon. I have had
3 done with same results.
Gastroenterologist says he has never given
anyone as much meds as me! They will have
to knock me out the next time, because I
always wake up screaming!! I wonder if
this has to do with the Fibromyalgia),
ovarian cyst, Kidney and Liver
inflammation, depression, anxiety, MVP,
Spinal Chord Stimulator, Cervical fusion
with metal and cadaver bone inserted,
waiting for age 55 to get TKR's unless
they come up with an alternative before
then. PLEASE!
I have hemorrhaged 3 times in my lifetime.
When I was 12 years old I had a T&A and
did. When I was 22 I hemorrhaged after I
had my daughter. I hemorrhaged after my
second knee surgery. I guess you could say
I hemorrhaged when I fell in shower too.
But I fell hard! My blood tests show I
have a high platelet count though. Wonder
why? My son is 22 and still has nosebleeds
everyday. Even after having 3 sinus
surgeries. Mine bleeds all the time also.
What%u2019s with that? I don%u2019t think
I want to know so I am not bringing it up!
LOL
Am I doomed to getting more problems and
to keep go down hill? Has anyone else had
similar circumstances? Is Lupus causing
all this? Why is so much happening??? I'm
only 47 yrs. old and only saw a Dr. once
or twice a year before all of this. My
life has changed so dramatically. Sit in
chair with legs up or sleep continuously.
Duragesic Patch and Plaquenil are helping
but this is no life. My poor husband and
kids. My mind is screwed up also. Any
help is appreciated!