DAD DIED FROM MYELOFIBROSIS & DIABETES - VIETNAM Posted: 09-18-08 01:58am
My father (and best friend), was in
Vietnam, on the DMZ for two tours in
1968-9. He was a cheif in the navy
seabees, and it was his job to drive from
base to base in an open jeep, and check
for safe building practices.
When he came home, we were all so
greatfull that he made it back, alive.
Then within the next year, he was
diagnosed with Myelofibrosis (bone
marrow). He was a very healthy and active
man, and extremely stoic. He never showed
his pain or other emotions of someone with
such a deadly disease.
In 1990, he and my mother drove cross
country from California to Casper, WY. to
help take care of my grandparents house,
since they had both died. He arrived and
he and my mother, checked into a motel,
and withing hours he was having a very
hard time breathing. He was taken to the
Casper Medical Center, and after about a
week, the doctors were confounded by his
declining condition. My sister and I
drove him back to California, on Oxygen,
in his own van.
I stayed with him overnight, at his house,
thinking that the sea-level altitude of
the California coast (at near sea level),
would make it easier for him to breath.
It didn't. The following morning, I got
him to the van, and took him to the local
Regional Medical Center. He was tested
for every virus, bacteria and problem that
could be conceived of. They could find
nothing, other than the Myelofibrosis. He
continued on his downhill journey and was
finally taken to UCLA Medical Center, in
LA. After over a week there, the doctors
(pulmonary and cardiologists) could not
find anything out of line... but was
having very difficult breathing, and was
put on higher and higher doses of Morphine
Sulfate drip.
Finally the day came when the doctors told
us that no more could be done for him, and
that he would probably be more emotionally
better off, back in the Oxnard Regional
Medical Center, closer to family. After
several months, he finally succumed to his
long (3 month) ordeal, which was just as
hard on us, his family. He died on
Thanksgiving Eve, and it was devestating.
After his funeral, I began researching any
connection between agent orange and
Vietnam. The government claimed that AO
had no connection to Myelofibrosis. I am
convinced it is. I got the Army spray
maps for Operation Ranch Hand (the
spraying of AO), as I suspected, the time
frame he was there was almost solid spray
coverage by the Army. This was due to the
fact that this was TET and the hottest
time of the war.
I swore when he died, that I would keep
searching for the connection, to get his
name on the Vietnam Memorial in D.C. I
still haven't succeded. But I won't stop
until I succeed or die. That is the least
I can do for the man that was the best
father one could ever have.
Looking at this site, I see many similar
cases. Don't give up hope... someday the
U.S. Government will admit what they
probably already know.
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Users who thank BRUNOinVIETNAM for this post:
Jami09
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Milofibrosis Posted: 11-02-08 13:17pm
Someone very near and dear to me was just
recently told they had Milofibrosis. A
very healthy person who has always been
into sports, works out daily. I guess I
want to feel if we go into this with a
totally positive attitude, I want to learn
more about what others have done. Please
Help!
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Jami09
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Myelofibrosis Posted: 11-10-08 15:30pm
My Grandpa died at 63 just a month ago
from Myleofibrosis. The Doctors said he
inherited it from his father. I don't
believe that I think we got it from
working at Eli Lily, working with all the
chemicals. My grandpa only lived a year
and a half when he was diagnosed but he
was in the later stages. Also he couldn't
receive the treatment because he had a
heart transplant and he was on blood
thinner. So he died sooner than expected.
I'm very sorry for all those who have it,
but my grandpa did not die a horrible
death, he was sleeping when he died so I
am thankful for that.