MS information - treatments and research Posted: 09-23-08 19:49pm
Hi everyone, My Aunt has suffered from MS
for over 10 years, I've gathered TONS of
info from her BUT..I'm hoping to branch
out and get more info from other people.
Info like...
Medications?
Out of the Ordinary Treatments?
Do you think enough is being done to help
MS suffers?
My paper is focusing on if there is enough
being done. I don't think there is but I
open to everyone's opinions!!! THANK YOU!
|
zigemyster
Moderator
Joined: 16 Aug 2008 Posts: 353 Location: ,
Thanks: 40
Thanked:18
online
Posted: 09-23-08 21:26pm
MS treatments has come a long way in
helping people manage MS symptoms.
As you are probably aware MS takes many
forms and not everyone who has MS
experiences the exact issues or length of
a flare. There is Relapsing Remitting MS,
Primary Progressive MS, Secondary
Progressive MS & Benign MS.
There are also free magazines that are
dedicated just to MS which are loaded with
resources and devices to help people like
us.
Less than 20 years ago there was no
medication on the market to slow down the
progression of MS, only medication to
treat the symptoms caused by it. Since
then, thanks to research, there were three
approved drugs, all injectables...Avonex,
Betaseron, Copaxone. Over the past few
years other approved drugs have come on
the market and some taken off the market
due to serious side effects which included
death...I believe it to be Tysbari however
it is back on the market apparently after
being tweaked. With that said there are
other drugs on the horizon, double-blinded
studies are currently being done. Some of
these drugs could be taken orally
(YES!!!).
I question why do you think enough is not
being done? What form of MS does your
Aunt have? Does she have or attend a
support group? Is she mobile, how is her
speech, vision, strength, etc? Does she
have a neurologist that she trusts, etc?
I have found that as far as 'out of
ordinary treatment: I changed my diet to
more natural...if it is man-made then I do
not eat it (well, I do sometimes but it is
rare). Light exerise to keep muscles from
atrophy, get plenty of rest and live a
stress free life as much as possible.
Listen to your body and if it is tired,
rest...if you have energy, do something
but not too much.
To sum it up...Yes, there is a lot being
done in the research and development of MS
treatment and a continued active search to
pinpoint a gene or genes responsible for
MS as well to hopefully find a cure for
MS. The more money that can be raised the
more research that can be done. There
must be reseach to help people with all
form of MS, one drug that is developed for
RRMS may be ineffective for a person who
has PPMS. So there is a lot of research
and action being taken to help us who
suffer from MS.
If I can help shed light on anything else
for your paper, please ask. I've been
officially dx'd with MS for 8
years...probably had it for 20+ years and
the support that I have received from the
MS community has been great.