Joined: 04 Dec 2007 Posts: 1709 Location: , KS USA
Thanks: 34
Thanked:19
Thanks to the person who cautioned me on retinoblastoma!!! Posted: 04-02-08 23:29pm
I don't remember your name, so if you are
around, please remind me of who you are.
I want to thank you for notifying me about
this problem of "white glow" in the eyes
of my daughter whose pictures I posted
here back in January after my baby was
born. She is only three years old, and she
doesn't have retinoblastoma, but after
getting a second opinion today about
having to wear glasses and farsightedness,
I have found an excellent optometrist who
has diagnosed her with a condition that I
can't remember, but it is extreme
farsightedness which can only be corrected
with pediatric contacts.
The reason why there was a glow in her
pictures was not from eye cancer, but from
the hazy unfocused reflection in her
farsighted eyes. If this isn't detected
early enough, a child can be blind in a
matter of years.
Although her condition breaks my heart and
it is going to be very hard to learn about
contacts (no one in my family even wears
glasses and I have no experience with any
eye conditions) I am truly grateful to you
for bring up the question which caused me
to have her eyes examined and find this
condition before it was too late.
Thanks to you, in a few weeks she will
have her new contacts and be seeing things
more clearly and her eyes and brain will
be learning how to see things for the
first time.
Thanks to ehealth and thanks to Tmddyan
for bring me here as well. I am forever in
your debt.
Vanessa
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Tmddyan
Moderator
Joined: 13 Jun 2006 Posts: 4346 Location: post falls, id usa
Thanks: 93
Thanked:63
Posted: 04-03-08 12:33pm
Vanessa, Im very sorry about this, it is
sad that she has to go through that. but
it will make her strong. you arent alone
in this ---im sure that the vision and eye
disorder forum will be a avalanch of
information for you. if there is anything
that i can do for you you just let me
know.
hugs to you and cc---xoxo
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mominashoe
Supporter
Joined: 04 Dec 2007 Posts: 1709 Location: , KS USA
Thanks: 34
Thanked:19
Posted: 04-03-08 12:39pm
Thanks Dyan. I guess as a person who
already wears glasses, I geuss it isn't as
hard for you to imagine someone else
having to wear contacts for the rest of
her life. I've never had problems and
somehow didn't ever have an eye exam when
the rest of you went with mom.
But you are right, it is going to make her
stronger. I just have to try to convince
myself that it isn't my fault and I'm
having a really hard time doing that.
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Tmddyan
Moderator
Joined: 13 Jun 2006 Posts: 4346 Location: post falls, id usa
Thanks: 93
Thanked:63
Posted: 04-03-08 12:47pm
no it isnt your fault ---not at all. I
think she is a very special little girl
and there is a reason for this. God has
something in mind and He sees CC as
someone that He can give suffering to and
that will use it to help others with.
You are very special to have her as well.
You are a great mom--those kids, though
they dont know it and dont appreciate you
right now will grow up and say "Wow, thats
my mom, I didnt realize how lucky we were
to have her. How I wish i behaved better
and didnt complain and whine like I
did----Thankyou Mommy for being there for
me"
I think that you to ---with your back can
imagine what its like to have something
for the rest of your life too---yes its
different, but it will always be there.
Hang in there, when i have enough money
for two or 3 tickets we will all go to
Lourdes, France. hang in there. im
here for you
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mominashoe
Supporter
Joined: 04 Dec 2007 Posts: 1709 Location: , KS USA
Thanks: 34
Thanked:19
Posted: 04-03-08 13:22pm
Thanks hun, means a lot
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Tmddyan
Moderator
Joined: 13 Jun 2006 Posts: 4346 Location: post falls, id usa
Thanks: 93
Thanked:63
Posted: 04-03-08 13:25pm
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Fairy*Godmother
Supporter
Joined: 11 Oct 2003 Posts: 1428 Location: , Georgia USA
Thanks: 63
Thanked:77
Hi Sweetie! Me Fairy*Godmother Posted: 04-05-08 16:06pm
Hi Vanessa, You are one very special lady
and your daughter is going to be just
wonderful. Thank God for modern science
and the miracle of the invention of
contact lens. Just think, on down te orad,
such a now they have the laser eye surgery
for no need for contacts or glasses.
Hopefully one day, this will be an option
for CC. You can not blame yourself for
genetics sweetheart. You are a terrific
Mother. You are so smart and I have
learned so very much from your contributed
comments....who says you can't teach an
old dog new tricks? I am moving you from
my contacts to my "friends" contacts list.
You have a beautiful little girl who will
one day SEE her Mother as the beautiful
person that I see. Hugs! Lynne
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mominashoe
Supporter
Joined: 04 Dec 2007 Posts: 1709 Location: , KS USA
Thanks: 34
Thanked:19
Posted: 04-05-08 23:07pm
Ty so much Lynne ........those are
really touching words, you are too kind!!
hang in there. im
here for you
