Pardon my spelling, I know it's bad =).
Anyway, I have had Kidney disease all my
life, I had a transplant when I was seven,
but it failed when I was 17, and so Ive
been on Hemo-Dyalsys since, but I have bad
reactions to the treatment, every time I
come off the machine my blood Pressure
usually goes to 190-200 / 90-116, and the
doctors have tried everything, they said
it was anxiety, so they gave me
medications that seemed to work for a bit
but it doesnt stop the Blood pressure so
now, I dont show up to every treatment,
because im scared that something will
happen on the machine, and the transplant
team in my area pretty much refuses to
even put me on a list that will take upto
2 years, and it's not because of my
health, so I looked into Pertonial
Dyalsys, but because of the amount of
surgery Ive had on that area, it's only
40% that it will work and it might fail so
bad that I will have organ damage, Im
guess im just trying to say im tired of
being scared to go, Im gonna try the
surgery, but in the mean time if that
fails, im 19 and I cant focus I cant even
walk around the f**** block im tired of
feeling sick Ive not felt even remotely
well, I feel if it keeps up like this im
gonna die, but as of the way things are
right now I might as well be dead, because
Ive not had anything thats helped me out,
and for the most part the blame has been
on me, but Im sure if the doctors have
lived the last two years the way I have Im
sure they would agree with what I have to
say... anyway, anyone care to lend some
advice because im at the end of my rope,
im way to frustrated
|
hopesprings2
New User, Becoming EHEALTHy
Joined: 16 Jul 2007 Posts: 35 Location: missouri
Re: Any Advice Or Help Posted: 07-28-07 12:23pm
endure5467
wrote:
Pardon my spelling, I know
it's bad =). Anyway, I have had Kidney
disease all my life, I had a transplant
when I was seven, but it failed when I was
17, and so Ive been on Hemo-Dyalsys since,
but I have bad reactions to the treatment,
every time I come off the machine my blood
Pressure usually goes to 190-200 / 90-116,
and the doctors have tried everything,
they said it was anxiety, so they gave me
medications that seemed to work for a bit
but it doesnt stop the Blood pressure so
now, I dont show up to every treatment,
because im scared that something will
happen on the machine, and the transplant
team in my area pretty much refuses to
even put me on a list that will take upto
2 years, and it's not because of my
health, so I looked into Pertonial
Dyalsys, but because of the amount of
surgery Ive had on that area, it's only
40% that it will work and it might fail so
bad that I will have organ damage, Im
guess im just trying to say im tired of
being scared to go, Im gonna try the
surgery, but in the mean time if that
fails, im 19 and I cant focus I cant even
walk around the f**** block im tired of
feeling sick Ive not felt even remotely
well, I feel if it keeps up like this im
gonna die, but as of the way things are
right now I might as well be dead, because
Ive not had anything thats helped me out,
and for the most part the blame has been
on me, but Im sure if the doctors have
lived the last two years the way I have Im
sure they would agree with what I have to
say... anyway, anyone care to lend some
advice because im at the end of my rope,
im way to
frustrated
Im bo doctor.However
please keep the teatment up because you
have to have this to get the
transplant.alot of people have that kind
of blood praesure with good kidneys.they
can give you meds to help with that i hope
and calm your nervous...also webmd has
people going through this.also keep up
with faith and if you beleive in God ask
him to heal you.He has me alot many times.
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