Joined: 18 Jul 2007 Posts: 2 Location: Philadelphia, PA
Twitching All Over my Body - Benign-fasciculation Syndrome!! Posted: 07-28-07 10:30am
Today is the anniversary of the first day
I began twitching. It started very light
in my left and right temples and then
moved to my face and head and then my
kneck. At the time I was two months
pregnant so no medication could be given
to me that would not harm the baby, so I
waited. By the end of the pregnancy the
twitching had moved moved from my head and
temples to my legs, arms, butt and feet
especially my toes. After the pregnancy I
went for an EEG and it was normal the
doctors tried putting me on PAXIL,
FLEXERIL, MAGNESIUM, DYLANTIN and SEROQUEL
but none of these medicines worked they
only supressed the twitching. Most of them
made me incompetent and unable to talk or
function right and with four young
children at home this was not the way for
me to go. After the medical tests which
included blood tests, EEGs and other
Neuro-tests by my neurologists I was found
to have something called
Benign-fasciculation Syndrome. So I cut
out caffeine, sugars, salts and went on a
health track which allowed me to lose
weight and be able to do more things with
my life but the twitching became worse.
About six months ago the twitching started
to be accompanied by severe and sharp
pains in my hands, legs and arms. The
doctor put me on Naprosyn and this did not
help I am still in pain and two years
later still twitching all over, AND I MEAN
ALL OVER!! They said that I was okay that
the disorder was benign. I trusted them
and now they are saying that I have
fibromyalgia . None of this makes sense
because none of the symptoms go together.
If this is the case could it have been
found out sooner and what can I do? I am
so frustrated right now because it has now
been two years, my muscles are weak at
times and the pain is so intense at times
I can't walk or even move my arms. This
does not sound like something that I don't
need to worry about. They still look at me
with their fake smiles and tell me that
it's going to be okay. I told them that
ever since my last Epidural that I cannot
bend back without a sharp pinching in my
spine and sometimes I lose feeling in my
legs for short periods of time. This is
not something I was born with so I know
that this is not natural. It would really
help if someone could point me into the
right direction. I am totally frustrated
here and I am not sure who to turn to
anymore. I think the doctors are happy
with just medicating me instead of finding
out the real underlying cause of my
problem.
