IC ? Endometriosis ? Painful Bladder Posted: 07-31-07 11:06am
Ok I really need some help / advise.
I have had pelvic issues since I can
remember. I am now 31 and in horrible
shape.
I have battled Endometriosis for years
now. UTI's since I was 2 and pelvic pain
for 15 years. I have has to have my
Urethra dialated 4 x's - first time at 6
yrs old to now.
I am now in so much pain that I have to
take 8 Ultram a day just to function. I
saw a Urologist who did a cystoscopy and
said it looks like I possible have a mild
case of IC, but in his opinion its not
severe enough to cause the pain I am
experiencing (been this bad for about 2
yrs now)
I wake up in the morning tummy in pain,
then I urinate and BAM - the pain is so
intense I have to lay down until the pain
meds take effect. It burns when I pee, and
stomach in Intense pain. I have had endo
removed 3x's - last time was about 5 years
ago.
CAT scan showed nothing of any
significance, Ultrasound the same.
Intercourse hurts on & off - sometimes
to the point I can't have it.
I am so tired of being in so much pain
& being so dependant on Pain Meds just
to survive. I feel like ever doc pushes me
off to someone else because they cant
explain it nor bother to want to help me.
My next visit will be to a new Urologist
& I guess an OBGYN to check for Endo
in the bladder? - Any help from anyone out
there would be appreciated so much. I
can't live like this anymore )-:
Thank You for listening,
Iadarie
|
PH
New User, Becoming EHEALTHy
Joined: 03 May 2008 Posts: 2 Location: Brockport, NY US
Posted: 05-03-08 12:18pm
I can completely understand your
situation. My pain hasn't been for that
long, only for the last 4-5 months. I'm
not even diagnosed with anything yet. I'm
having a laparoscopy on June 5th to see if
it is endometriosis. But in regards to
the pain, I understand hat you're going
through. I wake up in doubling over pain,
I go to work in pain, and I've tried to go
about my day dealing with it, but its so
bad lately I just want to tear out my
uterus. But the worst part is that they
wont even give me pain meds since my mom
had a vicodin addiction. So I'm no
allowed to have anthing to help with my
pain.
I've been in so much pain the last two
days, I can't function. Nothing helps.
Heating pads, vibration, hot bath,
pressure, meditation is starting to not
work for me. When I was still with my
fiance at the time I started experiencing
all of this, sex became painful. And it's
frustrating. I feel like a hypochondriac
because none of my doctors really take me
seriously.
Honestly, I know it's a hard thing to
think about, but I would look into
complete hysterectomy. My mom had one 4
years ago due to uterine cancer, but when
there is no other solution, you've got to
look at the things that could be
emotionally painful, but will heal you in
the long run.
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