On the Verge of a Crohn's Flare Up Posted: 08-05-07 10:18am
I am sorry to post this but I literally
have nobody else to talk to about it. I
was diagnosed with Crohn's Colitis about
10 years ago and since then have had no
real periods of remission. I have also
not been really ill very often, but I just
don't seem to be able to get on top of it.
I moved to Australia from the UK about 18
months ago and am finding it even harder
here. I seem to have no response or bad
reactions to many of the usual drugs
prescribed: prednisolone always works but
I get very depressed when I try and come
off it and then find myself right back
where I was, mezazaline and balsalazide
did nothing at all, Asathiaprine put me in
hospital with suspected pancreatitis,
Pentasa just made me throw up,
Methotrexate worked a bit but I came off
it a year ago in the hope we could have
more kids. I am currently on Budesonide
which makes me feel better but I still
have the diarrhea and constantly struggle
to keep my weight up, plus I have to pay
full price for it here in Australia.
Infliximab really helped but it is $2000 a
go here! I have tried two specialists
here and neither of them even seemed
interested in treating me. My husband is
lovely but he just doesn't get it. My
symptoms are getting worse, I'm feeling
pretty dizzy and confused, I'm loosing
weight rapdily and I can tell I am on the
verge of a really big flare up. Anybody
out there have any ideas at all?
|
luv2xs2
New User, Becoming EHEALTHy
Joined: 15 Aug 2007 Posts: 3
Posted: 08-15-07 15:40pm
Oh my gosh, if your symptoms are getting
so severe you should see a doctor...now!
If you wait, it will only get worse, not
better.
If at all possible try another doc and get
a second opinion. There may be another
doc who will treat you totally
differently.
And there could be new meds available that
you're unaware of.
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