Re: More Upcoming Surgery Posted: 10-17-07 12:49pm
Marie B.
wrote:
My appointment for surgery
is now scheduled for Nov. 9 with the Dr.
and Hospital that I have spoken of to
Fran.
It will be Min. Invasive
Surgery...Laminectomy and Fusion Insitu.
And it will be under anesthesia.
Estimated time for the surgery 1 hr and 30
min. Am expected to loose 4 to 7 cc's of
blood at most if that.
I could have it done under a spinal but I
don't want my spine messed up any more by
anything other then the surgery itself.
Fran, I was thinking on what you had said
in regard to your prior plans about what
not to do around the house after surgery.
I've arranged for someone else to do the
house cleaning. I've assigned my husband
to laundry....with supervision.
I am awaiting for pre-op orders and post
op instructions. I'm still studying the
B.R. options that you had discussed in an
earlier post. All thoughts and ideas
welcomed because of your experience.
Rich, I decided I couldn't wait any
longer for surgery because everytime I
missed a pain pill, or tried to see where
things were without them, I would get to a
point where I could barely walk from here
to there. Not only that, but a friend
saw me last weekend and said, "you can
take those pain pills but they are not
curing the problem. In time the problem
will overcome you". Since I couldn't do
laser and got no satisfactory answer to
the spondy situation, I thought if I
could find a good Min. Invasive Doc, that
would be going a long way. So off I go.
Will keep you all posted on how things go.
I have friends all around the nation
praying for me. If any of you want to add
to the prayers, please do so. I will need
as many as I can get.
Marie B.
Marie, so glad to see that you have
decided to do something about the pain
besides swallowing all the pain pills.
How true what your friend says and in
another forum, there was this question.
How do you know when it's time for
surgery?
The answer is simple. You know when it's
right because your entire life is
swallowed up by this back stuff and pain.
When life really doesn't exist and there
is a surgical option, you go for it and
hope for the best.
You've done your research and thought
about all your options and having no life
at all is not the way to "live". It
really isn't living.
Now, my advise on post op limits is this.
Get your post op restrictions as soon as
possible before surgery. Make sure they
are as detailed as possible and go over
each and every one of them with the doc.
Ask questions on each one of them, even if
you think they sound dumb to you.
Remember this "the only dumb question is
no question at all."
Sometimes that no turning and twisting
restriction does include the toilet
restriction as well and other times it
doesn't. If your's does include it, then
ask the doc about speaking with a PT or OT
to find out what kind of tools you can get
before hand to use for the basic needs
using the toilet.
Don't forget to ask about showers and
getting the surgical site wet. If you
need to keep it dry, as I did, then find
out what kind of post-op covering you will
need before hand. The covering will keep
it dry from the water but the heat and
moisture in the bathroom will cause sweat
and moisture underneath the covering and
it will need to be changed. Knowing
before hand what you will need to change
the covering afterwards, will allow you to
have the supplies on hand. Also be sure
you will have someone to help you shower
and change the incision covering
afterwards.
To be able to shower and reach to wash
legs, feet, etc. Get one of those long
handled back scrubbers. Don't know what
they are called. I use one to wash my
back all the time, long before all this
back stuff. The handle was long enough
for me to us to wash legs, feet, etc.
What you can an can't do after surgery and
how to deal with it.
Once you have the restrictions and all
your answers to your questions this is the
next step to do.
Walk around your home and study it
carefully. You want to be as independent
as possible and not have to rely on others
for everything. Being able to do for
yourself, even if it's only little things,
makes you feel so much better.
So, room by room, walk around and think of
all the things that you do in each room.
Lookk at the layout of the room and try to
invision what furniture, if any, will make
it more difficult to move around after
surgery. What furniture, if any, will be
more in the way for you to walk around and
get some exercise.
If you find any, move it somewhere else so
that you won't have a problem afterwards.
easier to deal with it before the fact,
than after.
If you spend more time in one room than
another, make sure you put the things that
you use, like and want to have handy in
the room before hand.
Leave them in bags or boxes in another
area of your home, but be sure to label
them carefully, so that someone else can
find them for you and bring them to you.
The kitchen may be your worst room to deal
with. Spend a lot of time in there
studying what you use the most and what
you do in there frequently and will be
able to do post-op if you can reach and
get to it.
then rearrange your kitchen so that you
can get to these things and do and use
them.
Yes your kitchen is going to look like one
giant disaster. Most of the house is
going to as well, as it is being arranged
for your limited use. It won't stay this
way for ever, but you will be more
independent this way.
Make sure you have clear paths to move
around the kitchen as well and do all of
this well in advance. this way you get to
deal with it's appearance before surgery.
After the surgery, you really won't care
how it looks, cause you will be feeling
like a post op patient with lots of
restrictions but still able to do some
things for yourself. That makes you
feel better, little bits of independence.
By the time the new arrangments of how
things look in your home, post-op, start
to bother you, well that's when you are
feeling better and able to do more. It
will be a good sign to be bothered by the
"new design" of the rooms in your home.
I actually found some of the new changes
to my liking and didn't move anything.
One of the suggestions I was given post-op
was to drink lots of water. Since we use
bottled water as our water tastes
horrible, my hubby left the gallon jug on
the counter by the sink. I couldn't lift
the bottle, but I could tip it to pour the
water into my own glass. Just getting the
water on my own felt good.
Some other idea.
I spent a week cooking lots of meals with
the help of my daughter and freezing them
in individual meal size servings. All
anyone had to do was pop them in the
microwave to reheat them. Had at least 2
weeks worth of meals in the freezer.
I started having hubby to do the laundry
"under supervision" before surgery. gave
him some practice before hand, but was
still there after surgery to give the
supervision as was my daughter.
Now, hubbies cooking was another story. I
had very little appetite for months after
surgery, so I didn't care if I ate, but
knew i had to.
My daughter helped with cooking and some
friends brought over some meals after the
freezer was low or empty of meals.
I found sending hubby for the groceries
was the worst part of the "need help
ordeal". I never made a grocery list so
detailed in my life and it was such a
pain. On the other hand, I know it isn't
easy getting groceries for someone else.
I made sure he took a friend of mine with
him so she could help him with the
produce.
I'd put things like fresh green beans on
the list and he'd bring them home, no
matter how bad, good or indifferent they
where. With someone with him, I would get
the produce that looked good and if those
beans where a disaster, I wouldn't get any
that day.
Marie, no matter how well you plan in
advance, something is going to get in the
way of the plans and you forgot something.
So all you can do is plan the best you
can.
that's why it's so important to get all
those restrictions in advance and go over
them in detail with your doc. Go over
them again and again at home before the
surgery and call with any more questions
you have.
Don't panic over what you can and can't do
and don't worry about the housework,
cleaning, dusting and all the other stuff.
The most important thing is to follow the
docs orders and get well without any
complications because you did something
you were not supposed to do.
Do what you can to clean the house before
hand, without killing yourself over it.
Most important though is that you have the
trust and faith in this doc.
So go into the OR with this attitude, the
one I had, and even with all the added
stuff I've had to deal with afterwards, I
have a life and can do again and it's a
wonderful feeling.
So go in with this.
"OK folks, let's get this show on the
road. Time's a wasting and I have a lot
of living to do, places to go, things to
see, things to do. Next time I see you
again, it will be the first moments of the
beginning of my new life. So let's get a
move on this show and get it over with."
Fran
|
madismama
New User, Becoming EHEALTHy
Joined: 17 Oct 2007 Posts: 2
Posted: 10-17-07 13:41pm
I was involved in an automobile accident,
a car pulled out infront of my brother and
we struck their car. They were found to
be at fault. The accident occured in Aug
of 2006 and I just really feel like I have
got no where with my severe back pain.
I began treatment with chiropractic and
then was referred to a whacko doctor who
did nothing but prescribe me Norco and
Ambien.
I did physical therapy for months but
discontinued after they felt I wasn't
progressing. I have tried acupuncture
mulitple times.
I then in January was sent for a very
expensive MRI and found I had 3
herniations in the 3 lowest discs of my
back and one in my neck.
I also had a discogram which was horrible,
I saw a quote of midevial torture and that
is exactly what it is!!!
I finally was referred to a very good
surgeon. Along with the help of his PA,
they decided that facet injections would
help minimize the pain since they did not
want to jump right into surgery. I did
not make it to my appointment because we
soon found out there was no more insurance
available through the liable vehicle, I
have since had to continue my care through
Kaiser.
Kaiser has done nothing to help me. They
are making me jump through every hoop I
have already done and in 6 months I have
not had any progress! They want me to do
acupuncture again and the doctor has said
that she believes it muscle not
herniations and that she doesnt treat an
MRI she treats her patient. I feel
completely helpless because I am 22 and I
should not feel so crippled! I have
difficulty doing anything...sitting,
standing, walking etc. I cannot have more
children at this point because I am taking
Ultram ER 200mg and Norco 10/325.
So I ask help of you all:
How do I work the Kaiser system to get the
treatment I need (Facet joint
injections)?
What kind of self help do you think would
minimize pain?
What kind of medical treatment do you
think would help?
Thank you so much for your help, I just
really hate taking the medication but I
have no other choice as I cannot function
a normal life in this much pain. My goal
is to have more children and the way this
treatment is going there is no way I can
|
Marie B.
Experienced User , Rather EHEALTHy
Joined: 28 Aug 2007 Posts: 231 Location: Ohio
Important to Keep Smiling Posted: 10-18-07 14:08pm
We smile when we hear about surgery
working out and doing good for a person.
We smile when we hear the clinic and
insurance paper chaos that we find as we
go through this crazy spine problem.
We smile at each person who needs support
and offer our thoughts.
And we smile at those who have the
ability to talk about a serious situation
that has happened to them and yet can
still see the comedic side of it all.
Why do I bring this up when we read about
so many problems some of us have..
Well, we smile because there are so many
caring people out there who support us in
the best way they can. And who give a word
of cheer even if they don't have an answer
to the problem. So allow me to tell you a
little funny story about a friend who was
trying to help me.
Today, I was in a big craft store that we
have in our town. Over the years, I have
made friends with one of the designers
because the two of us do all sorts of
seasonal arrangments. She does her
designs for the store to sell. I do mine
to give to family and friends and church.
She showed me one of her new Christmas
Dining Room Table Floral Arrangements that
she was in the process of making. As we
chatted, I told her that I would not be
doing anything this Christmas that
required a lot of strenuous physical
bending and twisting because I was having
spinal surgery.
I was expecting a sympathetic response as
some people are want to do.
But no, that is not what I got.
I saw a puzzled expression on her face and
she said "If you can't bend or twist how
in heavens are you going to shave your
legs? "Worse, how are you going to handle
your body elimination cleanups. "Needless
to say, I thought of Fran's comments to
her surgeon right away." Men may not
understand her followup statement nor
consider this funny because well....they
are men. I'm sure the gals will
immediately get my drift.
She said with the utmost sincerity:
"You better put a good supply of Swifter
dusters in your house and get the short
handle one and the long handle one to
cover all necessary cleanups."
I cracked up immediately just thinking
about it, and the other women near us
who heard the conversation were
hysterical. After I left I thought, She
may have something there.
So Fran, is this friend a quick thinker or
what? I'm going right out and make sure I
have the plastic handle Swifter dusters,
particularly the long one that can be made
to bend in multiple directions. I figure
you can tape a razor on one plastic handle
and the other I can angle it and wrap
toilet tissue on it. Nothing like being a
creative artist in all of this.
Marie B
|
Carrianne
Experienced User , Rather EHEALTHy
Joined: 09 Aug 2007 Posts: 107 Location: Tampa, FL
Posted: 10-19-07 08:12am
Marie,
It's nice when someone throws an
unexpected reaction at you that gives you
a good laugh and eases the anxiety a bit!
Your friend probably didn't even know just
how much it helped!
Dusting isn't too difficult for me, but
shaving remains to be a challenge. It's
even hard when you're not in pain! Really,
there's got to be a better way! I'm sure
the ladies can agree there!
Hope you all have a good laugh today!
Thanks for the story, Marie!
God bless,
Carrianne
|
Carrianne
Experienced User , Rather EHEALTHy
Joined: 09 Aug 2007 Posts: 107 Location: Tampa, FL
Madismama Posted: 10-19-07 08:16am
Welcome to the forum, Madismama! So sorry
to hear about everything you're going
through. Chronic pain is no fun! I can
sympathize with your situation regarding
wanting to have children. I just had 2
back surgeries in August and want
children, but am scared at the same time.
I just don't know how it will affect my
spine.
Just keep researching everthing your
doctors tell you! That will be your best
defense! Keep us updated on and again,
welcome!
God bless,
Carrianne
|
RichT
Active User, Really EHEALTHy
Joined: 22 Jul 2007 Posts: 910
Thanks: 21
Thanked:0
Researching Posted: 10-19-07 18:32pm
Hello Carrianne,
"Just keep researching everthing your
doctors tell you!" - So true, so VERY
true. Carrianne, your words of
advice/wisdom are RIGHT ON!!!! By
researching and checking out everything
our doctors and others say helps to
separate fact from just words.
POWERFUL!!!!
Regarding children - Carrianne, I hope
that in conversation with your doctors
you will better understand regarding the
balancing act regarding having childrfen
and the effect it may have on your back.
God will help you thorugh this I know.
Take care.
RichT
|
mj57
New User, Becoming EHEALTHy
Joined: 19 Aug 2007 Posts: 22 Location: , USA
Re: Mj Posted: 10-19-07 18:37pm
Carrianne
wrote:
Hi MJ,
Wow, your time is fast approaching! I'm
really excited for you and wish you all
the best in your surgery and recovery.
Definitely bring your sneakers because
you'll sure be using them! After my first
surgery I walked an hour the very next
day!
How long are you planning to be there? If
you have any questions about the area or
need anything, please let me know. You
were there holding my hand when I really
needed it and I would be so happy to help
you in any way I can!
God bless you MJ,
Carrianne
Hey there Carrianne...you are such a
Doll......I'm so glad to hear you are
getting better everyday.
I'm not really sure how long I will be
....depends on how many area's I will have
to have done. I am so thankful that my
father lives in the area and I have family
close to me. My step mother is a
SAINT........My Dad's a lucky man to have
her.....(and she him ) so I will just
take it one day at a time.........they
have said it may be 6 weeks if I have all
the area's done that are causing me so
much pain.
I thank you for your thougts and
prayers.........MJ....
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RichT
Active User, Really EHEALTHy
Joined: 22 Jul 2007 Posts: 910
Thanks: 21
Thanked:0
to the Second Epidural Posted: 10-19-07 18:48pm
Hello All,
After a not so good night, and less than
desirable day I saw my PM doc this
afternoon. After some discusion he
thought the best option for me at this
time is a second epidural. A second
epidural, EXPCEPT that this time it would
be to ease the pain coming from the
bulging disks.
When I mentioned that one gets to the
point of "do I delay surgery some more, or
is there a point when it is better to have
surgery rather than risk making things
worse", he replied "I believe an injection
will help to reduce your current pain" My
interpretation from his response -
Continue with the epidurals!!!, far better
than the knife.
Time will tell. Sure hope tomorrow is
better than today.
To put things in perspective - There was a
lady in the waiting room at the spine
institute. She was filling out the office
form with her FEET AND TOES. No I did not
see if she had arms and hands, but that is
not important. What is IMPORTANT in my
mind is that she was dealing with the
"hand" that she was given. No complaints,
just going on with her life as best she
could. Gave me the opportunity to
mentally say "Thank you Lord for my
blessings".
RichT
|
Marie B.
Experienced User , Rather EHEALTHy
Joined: 28 Aug 2007 Posts: 231 Location: Ohio
the Spineys Posted: 10-19-07 19:29pm
Rich, You are a very good person. I can
tell in the gentle quiet way you observe
and listen to everyone. You also have
gained a lot of wisdom in dealing with
your own pain in your life and you share
it all with everyone so willingly. Having
had 5 months of steroid injections, I can
say with no quibbles, they just don't last
long enough. I can say the same thing
about meds. I tried and tried but I found
too much frustration in these procedures
that were paliative at best. I would like
an end to seeing doctors every other week.
It would be nice to be healthy, wealthy
and wise, but sometimes you have to make
the best decision that is for you and you
alone. So good luck with the next
injection.
Carriane, you too must be a very sweet
and loving person. It is very visible in
all of your welcoming comments to new
postsers and all of your responses even
though you have gone through some very
rough times. And you still want babies.
God grant your desire.
Fran, our encyclopedia, can always be
counted on in times of need. And she can
provide details pre and post op. that
others might not think of even
considering the various needs that would
pop up for a person post op. I should
know, because today I looked all over the
place for a brush handle long enough to be
able to stand in the shower and still wash
my feet.
MJ has been struggling with her decisions
for spinal surgery for some tine too.
May the waiting pass quickly, May the
surgery be successful, and MJ may all of
this pain you are experiencing in the
future be nothing more then a bad dream.
If anyone hears from Carol, tell her I
hope all goes well with her desires to
make the trek to Florida.
And Stuart Little, the soldier boy, will
still drop a line of encouragement for all
of the spiney poster.
And to all of the posters who helped me
reach this decision for surgery, I thank
them for all the details they provided not
just to me but for all.
So, the big day is coming down the pike
and it will for all because, I don't
don't think we were meant to live
constantly with so much pain. If we can
reduce it by surgery then it is a good
decision.
And now I have to look into whether or not
to purchase a stationary bike and think
about what I can use for weeks later when
I have to get myself back in shape. If
anyone has suggestions, just hop right
into posting them because everyone's ideas
are always valuable.
I should have asked Joebob, if he did
biking as part of his exercise routine.
Ice Hockey is kind of out of my league.
Besides, I hate the cold.
Actually, I hate exercising. I don't like
to sweat.
Marie B.
|
mj57
New User, Becoming EHEALTHy
Joined: 19 Aug 2007 Posts: 22 Location: , USA
You All Are Simply Fabulous!!! Posted: 10-19-07 19:55pm
I want to say to each and everyone of
you...that you are all the most wonderful,
tell it like it is people.......We all
have our share of pain and misery...but we
share it with such enthusiam and
concern.........that we almost make light
of the situtation. We
encourage..enlighten..support..and
love...and for all of that and YOU! I am
blessed...........MJ
|
jimare
New User, Becoming EHEALTHy
Joined: 01 Oct 2007 Posts: 43 Location: ,
Prayers For You Posted: 10-19-07 22:07pm
MarieB
Catching up on the posts...they sure do
move along when your back is turned. Read
that your surgery is coming up Nov. 9 and
I will be remembering you in prayer on
that day. What procedure are you having
done...a laminectomy?
Thankfully it will be min. invasive
surgery. When I had the
discectomy/laminectomy I was not so
fortunate and my incision was 8 to 10
inches and the Dr. removed 3 lamina. I
had no assistance in the hospital...no
walker, not even a cane; no toilet seat or
special arms to assist me up and down. I
wasn't allowed to ask the Neurosurgeon
questions and he discharged me with
absolutely no instructions or meds. I
probably did things that were bad for my
back during the first weeks of my recovery
like climbing the stairs etc. because the
only thing he said to me was "If it hurst
don't do it". I did come up with a good
way to shave my legs and that was using a
paint stick with the razor taped to the
end of it. A man doesn't realize how lucky
he is.
Anyhow, it sounds like you have a caring
husband to assist you around the house
during your recovery, and a caring Dr. to
provide you with good support and
information. You are blessed.
The best of luck to you
Mare
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littleonefb
Experienced User , Rather EHEALTHy
Joined: 11 Aug 2007 Posts: 220 Location: ,
Thanks: 6
Thanked:0
online
Hello to Everyone Posted: 10-19-07 23:11pm
I
had this dream last night, yes I had a
good nights sleep.
In this dream all of us where well past
our days of living and where looking down
from above at our children, grandchildren
and great grandchildren.
We where all together in this big,
beautiful garden, smelling the flowers,
sipping whatever our delights are to
drink. We had no pain, no spiney problems
of any kind, but we always worried about
what the future held for the family
generations that came after us.
We where talking about it and all of a
sudden this huge curtain pulled open and
we could see all of those generations of
family sitting there.
All of our family generations where
gatthered together at this huge outdoor
barbecue and no one seemed to have any
spiney problems, chronic pain problems or
anything else.
As we eavesdropped on the conversation we
heard the conversation the following
statements.
"if only my mother where alive now to see
the advances in medicine we have".
"I know, my great great grandfather would
have been so happy to know this."
"My brother too."
"My sister too."
"I can't imagine living like they did,
with chronic pain, having to make decsions
of what kind of surgery to have, will it
work, will it make things worse, will the
surgery kill us or be usefull. Can we
trust the doctors.
Living drugged up like a zombie."
"Can you imagine what they would say if
they knew that all spinal surgery has been
perfected. Only one type done and it
always works. No need for life with
chronic pain."
"Oh, I wish they could know that their
dreams have really happened and none of us
have to suffer they way they did."
As we heard all of this, we where stunned,
just trying to imagine what it must be
like. We tried to figure out how we could
let all of them know that we did know all
about it and they told us. We couldn't
think of any way to do it, so we just
watched and listened.
Then all of a sudden, out of the sky,
thousands of pain pills that we all used
to take, fell from the sky. They landed
in a part of the yard that no one was
near. Once they where all on the ground,
the spontaneously burst in flames and
burned up till they where gone. All that
was left where all these pills fell was a
huge smile face burned into the ground and
the words WE KNOW, YOU TOLD US, right
beside the smile face.
All of our relatives circled around the
smile face and our message, held hands,
smiled and looked up at the sky.
As that huge curtain closed in front of us
and we could no longer see down any more,
we settled back in our lounge chairs,
happy as could be, knowing that no longer
did anyone every have to suffer the way we
have.
Will that dream ever come true? I believe
it will someday, I sure hope it does.
Fran
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littleonefb
Experienced User , Rather EHEALTHy
Joined: 11 Aug 2007 Posts: 220 Location: ,
Thanks: 6
Thanked:0
online
Some Ideas to Help You Posted: 10-19-07 23:33pm
madismama
wrote:
I was involved in an
automobile accident, a car pulled out
infront of my brother and we struck their
car. They were found to be at fault. The
accident occured in Aug of 2006 and I just
really feel like I have got no where with
my severe back pain.
I began treatment with chiropractic and
then was referred to a whacko doctor who
did nothing but prescribe me Norco and
Ambien.
I did physical therapy for months but
discontinued after they felt I wasn't
progressing. I have tried acupuncture
mulitple times.
I then in January was sent for a very
expensive MRI and found I had 3
herniations in the 3 lowest discs of my
back and one in my neck.
I also had a discogram which was horrible,
I saw a quote of midevial torture and that
is exactly what it is!!!
I finally was referred to a very good
surgeon. Along with the help of his PA,
they decided that facet injections would
help minimize the pain since they did not
want to jump right into surgery. I did
not make it to my appointment because we
soon found out there was no more insurance
available through the liable vehicle, I
have since had to continue my care through
Kaiser.
Kaiser has done nothing to help me. They
are making me jump through every hoop I
have already done and in 6 months I have
not had any progress! They want me to do
acupuncture again and the doctor has said
that she believes it muscle not
herniations and that she doesnt treat an
MRI she treats her patient. I feel
completely helpless because I am 22 and I
should not feel so crippled! I have
difficulty doing anything...sitting,
standing, walking etc. I cannot have more
children at this point because I am taking
Ultram ER 200mg and Norco 10/325.
So I ask help of you all:
How do I work the Kaiser system to get the
treatment I need (Facet joint
injections)?
What kind of self help do you think would
minimize pain?
What kind of medical treatment do you
think would help?
Thank you so much for your help, I just
really hate taking the medication but I
have no other choice as I cannot function
a normal life in this much pain. My goal
is to have more children and the way this
treatment is going there is no way I
can
madismama,
You are far to young to have to suffer
like this. I'm so sorry you are in so
much pain and not getting any help.
I don't know if these ideas will help you,
but the doc you are seeing now through
Kaiser doesn't seem to be very competent.
Herniated discs are herniated discs and
repeating all the stuff you've already
done and didn't help, is not going to do
any good. Just waste time and keep you in
pain and drugged up.
The first thing I would do is get copies
of all your records from the docs you
where seeing before you started with
kaiser. Be sure to have copies of all the
MRI and the reports of them and the
discogram as well. Also get copies of all
your records from the PT you where seeing
and the chiropractor and the "wacko doc"
as well.
Then you need to get yourself an attorney
that specializes in accidents. If your
brother was not at fault, then you may
have alternatives for payment that the ins
doesn't want to pay and would with an
attorney.
If you can't afford and attorney, see what
you can find with a sliding scale type set
up or possibly free and gets some money if
you win a lawsuit.
In the mean time, you need to call kaiser
and start complaining about this doc you
are seeing. There is no reason you can't
have another doc, get a second opinion
etc.
Start with the reps you talk to when you
call them, when you get no satisfaction,
which we know you won't, you demand to
speak to the person above the rep. Keep
going up the chain of command.
Document every phone call on paper. Write
down the day and date you called, the name
of the person and person's you talked to
each time and take very careful notes.
This is important because many times these
calls are monitored and they can try and
deny what might have been said in your
conversations. If you have the day, date,
time and name of person that you talked
to, along with the info that you wrote
down, they won't be able to deny what was
said.
I know it's hard to be persistent when you
are in pain all the time. It's a struggle
just to move and function, but you have to
try and keep the pressure on them.
Get addresses and names to write
complaints to, keep a copy of everything
you send and send it with return receipt
requested so that you have documentation
that your mail has been receivied.
I would also call the ins commissioner's
office in your state and find out if they
can offer any help to you and you could
find out if the Kaiser has any kind of
patient advocate that you can talk to.
Ins. companies don't want to pay unless
they have to. Sometimes we have to fight
them tooth and nail to get the payment.
One thing I've learned is that they expect
you to just give up and go away. If you
don't and keep fighting them, eventually
they do cave in and you get the care and
treatment that you need.
I've had to fight ins in the past for
months and everytime I sent things in
writing, and they found I wasn't giving
up, I got another denial, more crap and
more crap.
It was so draining and discouraging that
at times I just sat and cried. After that
good cry and was rejuvineated and thought
"Who the H@@l do they think they are and
who do they think I am? Some kind of fool
that is going to just roll over and play
dead and suffer for the rest of my life?
I don't think so. I've only just begun to
fight and they don't know who they are
really dealing with and have no idea what
they have gotten themselves into."
3 months of fighting and relapsing because
of the ins. crap and well I'll be darned.
No more letters that we have "considered
what you have said, but we feel we are
right." I got, "after careful
consideration and the info you have
provided us about your condition and how
much worse you have gotten, we are
rescinding our previous desicion and you
will be able to receive the care that you
have requested, the treatment you have
requested and we will cover the expense
100% minus your co-pay."
I didn't know whether to laugh or cry, all
I could think of was "I got you and
believe me I will pass the info on as to
how to do it."
Good luck and keep us posted on how you
are doing.
Fran
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littleonefb
Experienced User , Rather EHEALTHy
Joined: 11 Aug 2007 Posts: 220 Location: ,
Thanks: 6
Thanked:0
online
Re: the Spineys Posted: 10-19-07 23:58pm
Marie B.
wrote:
Rich, You are a very good
person. I can tell in the gentle quiet
way you observe and listen to everyone.
You also have gained a lot of wisdom in
dealing with your own pain in your life
and you share it all with everyone so
willingly. Having had 5 months of steroid
injections, I can say with no quibbles,
they just don't last long enough. I can
say the same thing about meds. I tried
and tried but I found too much frustration
in these procedures that were paliative at
best. I would like an end to seeing
doctors every other week. It would be
nice to be healthy, wealthy and wise, but
sometimes you have to make the best
decision that is for you and you alone.
So good luck with the next injection.
Carriane, you too must be a very sweet
and loving person. It is very visible in
all of your welcoming comments to new
postsers and all of your responses even
though you have gone through some very
rough times. And you still want babies.
God grant your desire.
Fran, our encyclopedia, can always be
counted on in times of need. And she can
provide details pre and post op. that
others might not think of even
considering the various needs that would
pop up for a person post op. I should
know, because today I looked all over the
place for a brush handle long enough to be
able to stand in the shower and still wash
my feet.
MJ has been struggling with her decisions
for spinal surgery for some tine too.
May the waiting pass quickly, May the
surgery be successful, and MJ may all of
this pain you are experiencing in the
future be nothing more then a bad dream.
If anyone hears from Carol, tell her I
hope all goes well with her desires to
make the trek to Florida.
And Stuart Little, the soldier boy, will
still drop a line of encouragement for all
of the spiney poster.
And to all of the posters who helped me
reach this decision for surgery, I thank
them for all the details they provided not
just to me but for all.
So, the big day is coming down the pike
and it will for all because, I don't
don't think we were meant to live
constantly with so much pain. If we can
reduce it by surgery then it is a good
decision.
And now I have to look into whether or not
to purchase a stationary bike and think
about what I can use for weeks later when
I have to get myself back in shape. If
anyone has suggestions, just hop right
into posting them because everyone's ideas
are always valuable.
I should have asked Joebob, if he did
biking as part of his exercise routine.
Ice Hockey is kind of out of my league.
Besides, I hate the cold.
Actually, I hate exercising. I don't like
to sweat.
Marie B.
Marie, Thanks for all the kind words. I
look at it this way. We are all one big
happy, but in pain, family and if one of
us finds something that works, it would be
criminal not to tell the rest of the
family what it is.
That long handled back brush, I'm
surprised you are having trouble finding
one. My daughter just bought a new one
for herself and K-mart and a friend of
hers found one in Walmart. I've also seen
them in Walgreens, Riteaid and CVS.
The shaving legs thing. Well, my first
thought was big deal, I can live with
hairy legs. then I realized it was summer
and those hairy legs where going to be
showing all the time in shorts. Oops not
a good idea. Didn't trust anyone to
shave my legs, kind of like the skin on my
legs underneath the all the hair. Hate
cuts and scabs on them too.
Legs weren't too bad for the first 2 weeks
post op and then it was ugh. I need
help.
Looked at hubby and said No way, he
doesn't even shave his face, hasn't in
since he grew a beard in 1974. Daughter,
well she just turned green at the thought
and didn't trust her. My best friend the
nurse, well if desparate would ask, but
had to be a way.
Well, leave it to the 23 year old daughter
to come up with it. She bought me an
electric shaver and said, "at least if I
have to do it for you, you won't kill me
because I cut your legs all over the
place.
Still a problem though to do it, till she
came up with the next idea. She went to
Kmart and bought a small laundry hamper in
the baby dept. and put it in the bathroom
infront of the toilet. Presto, sit on
toilet with the lid down, plug in razor
and put one leg on the hamper. Then she
grit her teeth and shaved the leg. then
other leg up and she did that one.
OK not the best shave in the world but was
sure better than none.
After a few weeks I could do it myself
some and once I could really properly bend
again, it was back to my schick intuition
plus razor and the shower.
Hubby reminded me of another problem when
taking a shower and can't bend over or
stoop. Take at least 4-5 bars of soap
into the shower with you. You are bound
to drop at least one of them and unless
someone is in the bathroom with you, you
got yourself a problem.
I needed help in the shower for about 2
weeks, then I was fine alone, but not with
the soap on the floor. One time I went
through 4 bars before I was done. Felt
like a fool, but as hubby said, "hey
independence is the goal, so if you need a
dozen bars in their to bath alone, who
cares."
Marie, don't jump the gun on an exercise
bike. I never used one in my 10 weeks of
PT. after my surgery. It was lots of
stretching exercises, learning to move
properly, sit down, stand up, strengthen
those core muscles and walk, walk, walk.
You will use a treadmill a lot after the
first few weeks.
Walking is the key with back surgery and
if you don't walk alot you will stiffen up
all the time.
I was fortunate that we didn't have a lot
of snow last winter and I was able to get
out and walk a lot. When the roads where
icy, a friend would come get me and we
would go to a local indoor mall. A real
small one and I would just walk up and
down the mall for a while. then we'd go
out to lunch and I'd go back to the mall
and walk for another 20 minutes. On the
days I didn't have a lot of walking, I
felt the back muscles tighten up.
Remember, get those instructions from the
doc and then let the PT tell you what you
will need to do. And if you end up
wanting or being told that a stationary
bike is a good idea, then just go to
freecycle.com. find one in your area and
register. It's amazing what people are
giving away for free.
My daughter just got an eliptical thing
for free and it works perfectly. She also
got a beautiful dinnette set for her
apartement for free as well.
Once you get your limit instructions from
the doc, post them on the forum.
then we can all see what you won't be able
to do and see if we can figure out ways
for you to do some of the stuff without
breaking the "rules".
Oh, love that lady in the craft store,
real quick thinking. On the other hand,
those swiffers are wonderful things to
clean up with. I use mine all the time
and love them, long handle, short handle
and extra long handle one too.
Yup, can't dust the furniture and move a
lot, but that swiffer lets you do lots of
it real quick.
Oh, another thing I did, was pack up a lot
of the "dust collector stuff" for a while.
easier to clean, so I thought. But hubby
and daughter complained that the "house
was too naked", and put them back out.
They did help keep them clean though.
I got some of my walking and stretching
exercises done with my swiffer attacking
those awful cobwebs.
Fran
|
Marie B.
Experienced User , Rather EHEALTHy
Joined: 28 Aug 2007 Posts: 231 Location: Ohio
Joe Bob And Bonati And Carrianne Posted: 10-20-07 08:19am
During all of the time Joe Bob was
reporting on his laser surgery, the most
he spoke of Post Op was "walking,
swimming, Icing, massage. He also talked
about weaning himself off percocet for at
least 3 weeks post op. I guess his wife
did the driving around Florida during the
time they were there. He said they even
went to Disney World. I can't recall more
other then he seemed to just get back on
the plane and headed home 3 weeks after
surgery. At home, Joebob seemed to
experience stiffness also but with time he
learned how to deal with that as he did
stretching exercises.
No one else really has gone into detail
regasrding what the PT Orders were post
laser surgery. I think the PT is just as
important as serching out what they are
going to do in the surgery and which
Doctor you are going to have the work.
Carrianne, you had some difficulty post
op. In what ways were you advised to
continue your activities and what was the
time frame that you started driving? What
did they do hand you a sheet of
instructions?
Marie B.
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Marie B.
Experienced User , Rather EHEALTHy
Joined: 28 Aug 2007 Posts: 231 Location: Ohio
3 Lamina Removed Posted: 10-20-07 08:33am
Mare, It would seem that the problems
causing my pain are at the L4&5 Level.
They will do a Lamenectomy and a Fusion
Insitu. That means no Instrumentation.
I can't imagination your being told "don't
ask the surgeon any questions", but today
anything can happen. I plan on meeting
with the doctor one more time prior to
surgery and expect to have to fight a
whole bunch of women who think they are
doing their job of screening to "protect"
the doctor. Women really have a problem
when it comes to men. Heaven only knows
when women decided to take it upon
themselve to step between the patient and
the doctor is beyond me. I think it is
because they were trained to think in a
very narrow vein. "This is your job and
don't step beyond it."
I'm already prepared to say if you have
not arranged for me to speak to my surgeon
before the surgical date, then I will
change the date of surgery.
You can tell I am having a higher pain
level today, because I'm ready to fight
the world when I am pain crabby.
Marie B.
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Marie B.
Experienced User , Rather EHEALTHy
Joined: 28 Aug 2007 Posts: 231 Location: Ohio
Didn't I Say Posted: 10-20-07 08:41am
Did you all get a gander of Fran's answer
to Madismama? Didn't I say that Fran is
an encyclopedia?
I just felt great sorrow when I read
Madismama's first post. And Fran is right
on about the doctor, but she has the guts
to say it. Yes, you do have to fight
insurance companies, hospital personnel
and all of the people who interfere with
your attempts to get well. Fight verbally
with all of them because it is your health
that they are interfering with So what
if they don't like you or your attitude.
Maddismama, your doctor is just a dumb
jerk to tell you it is muscle problem when
you have the evidence on the MRI that your
pain is disc related.
Listen to Fran's advice. I have found her
to be "right on" when she is saying
something.
Go for it, girl.
Marie B.
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RichT
Active User, Really EHEALTHy
Joined: 22 Jul 2007 Posts: 910
Thanks: 21
Thanked:0
Almost Celebration Time Posted: 10-20-07 15:05pm
Hello Everyone,
My last post was on Friday evening and
when I scroll through all the subsequent
posts I feel I have jet lag or something.
To see how this thread ROLLS puts a smile
on my face, and each and everyone of you
have made it the success that it is.
BIG DAY COMING UP!!!!! For the old timers
you will remember that the great thread
initiated by Carol was cut down at the
time it was on page 22. I have no doubt
that page 23 for this thread is just
around the corner. When we hit page 23
lift your glasses high and CELEBRATE!!! A
toast to Carol for beginning the initial
thread, a toast to all of you for making
this one FANTASTIC Spiney Family!!!
Have a GREAT Day and Weekend!!!!
RichT
|
RichT
Active User, Really EHEALTHy
Joined: 22 Jul 2007 Posts: 910
Thanks: 21
Thanked:0
Posted: 10-20-07 15:26pm
Hello Marie,
Thank you for your very kind words. AND
you Marie support each one of us.
May I ask how many steroid injections you
had over a period of 5 months? My first
epidural lasted close to seven months for
which I am thankful. Since that first
epidural by Dr. K no more leg pain and
only on rare occassions do I feel any
tingling in my legs.
Thanks for your thoughts and advice.
My thoughts and prayers are and will be
with you, especially on November 9th.
Wish you a successful surgery and
recovery.
Take care.
RichT
|
RichT
Active User, Really EHEALTHy
Joined: 22 Jul 2007 Posts: 910
Thanks: 21
Thanked:0
Re: You All Are Simply Fabulous!!! Posted: 10-20-07 15:44pm
Hello MJ,
AHHHhhh what beautiful thoughts. You are
SOOOoo Right ON!
November 6th is your big day, and I pray
for your successful surgery and recovery.
Looks like you have everything in order.
It is GREAT that your dad and step mom
will be there to support you.
If you feel up to it between the surgeries
please give us a short update, or perhaps
your dad would do so.