Brain Cancer Forum - Please Tell Me Your Cancer Story
Medical questions     Health forums     Help     log in    

Please Tell Me Your Cancer Story

New Topic  Reply  Ask A Doctor - Offline
Medical Questions-> Health Forums -> Brain Cancer -> Please Tell Me Your Cancer Story
Medical Questions
Author Message
natural queen

New User, Becoming EHEALTHy
Joined: 30 Jul 2007
Posts: 15
Location: New Zealand
Please Tell Me Your Cancer Story
Posted: 08-12-07 16:15pm

I am writing a book on people who have overcome cancer, and wanting to know:

1 when and how were you diagnosed?
2 How long if any time frame were you given by your doctor?
3 What type of treatment did you do?
4 What were the pro's and con's of that treatment
5 How long did it take to overcome the cancer?
6 Has it come back?
7 How has your attitude towards life changed since you had cancer?

Thanks woudl be appreciated Smile
|
redneck programmer

New User, Becoming EHEALTHy
Joined: 16 Jan 2008
Posts: 20
Location: Frankfurt, Hessen Germany
well, ok, you asked for it (my story that is...)
Posted: 01-16-08 06:43am

pre 2001: disabling headaches on a wweekly basis. Spring 2001: extreme headaches increasing in frequency, ophthalmologist checks me out, sends me to MRI. MRI done june 01: 'we found something, but we don't know what it is'. dx 2001 thru sterotactic biopsy: Astrocytoma grad II, size 2 x 2 cm. 'wait and see' therapy approach (textbook example). MRIs evry six months until summer 2003 (tumor now 6 cm x 6 cm). 1st and 2nd debulking ops sept 2003. Followed by 1 year of hell on earth(extreme depression).
MRI's on semi-annually basis, then yearly. Summer 2007, tumor is up to tennis ball size, neurological deficits start piling up, time for another OP. OP september 2007, Tissue biopsy result: multiple samples indicate progression to anaplastic astrocytoma.
Post OP ring finger and pinkie on left hand useless/painful, hydrocephalus(?) at time of disharge (large fluid bubble on forehead that wobbles so wonderfully when I shake my head). January '08 control MRI: inconclusive result (cannot differentiate between left over tumor mass, scar tissue, and edema- please come back in May). Since one week, auras(?) but no epilepsy. I'm hoping that the cause is the extensive scar tissue. Note: not depressive after this last op, started working full time
2 months after discharge from hospital.

so that's my story. to be continued.
|
sdrre

New User, Becoming EHEALTHy
Joined: 24 Jan 2008
Posts: 6

Posted: 01-24-08 05:30am

hard time for me
|
Kami2488

New User, Becoming EHEALTHy
Joined: 30 Apr 2008
Posts: 1
Location: cleveland, ohio
My story
Posted: 04-30-08 12:26pm

Hi I'm Katie. I was diagnosed with an inoperable brain tumor in august 2006. July I went to the emergency room complaining of dizziness, fatigue, tingling on the left side of my face. They referred me to a neurologist and then came the bad news. I had brain cancer. It was by far the worst day of my life. Ive never felt so many emotions all at once. I was only 18 at the time. I remember sitting on my sisters couch just wanted to die because I was so scared. My doctors never gave me a time frame, they always said everyone is different and responds differently to treatment. I was first put on 3 different kinds of chemo because they had to shrink the tumor before they could use radiation. I forget what the treatment was called but the chemo was lomustine, vincristine, and procarbazine. Thats a very yucky dose of poison. The first day I threw up all day long. After adjusting the nausea meds I seemed to be doing ok. My mom called the special wish foundation for me and they let me go on a shopping spree! That was great it takes your mind off things and it helped me alot. After two 6 week cycles of that the tumor was smaller and it was time for radiation and another kind of chemo called temodar. The first few weeks of radiation were fine I didn't notice any changes but towards the end I was really tired, lost interest in pretty much everything and just wanted to sleep. I did 35 radiation treatments all together. Its been over a year and i'm now cancer free. I feel like im on borrowed time. Its hard to think about the future but I try and stay positive.
|
Related Topics
This Forum This Category All Forums
Jump to:  
New Topic   Reply
Medical Questions -> Health Forums -> Brain Cancer -> Please Tell Me Your Cancer Story



We comply with the HONcode standard for trustworthy health
information:
verify here.