Joined: 23 Aug 2007 Posts: 3 Location: Victorville, CA
So Many Symptoms... So Few Answers. Posted: 08-23-07 18:05pm
Hello. I apologize in advance if this
rambles. I am a 29 year old female who has
been diagnosed with hyperthyroidism with a
hot singular nodule(this is the only
confirmed diagnosis I have been able to
get from 5 different doctors, and they
said I didn't need a FNA). I have been
very sick for the last 13 years of my
life.
It started out with just general fatigue
and muscle soreness and weakness. Now, for
the last few years, there is a bulging
pain I get from time to time directly
below my ribcage on my left side
(sometimes, it even hurts to touch). It
gets worse if I eat anything greasy (like
bacon) and I actually get nauseated and
sometimes need to vomit to relieve the
nausea. Once, I vomited 3 hours after
eating, and all the food was still in my
stomach. I bounce between constipated and
loose(non-watery) stools. When I have a
bowel movement, the pain will sometimes
lessen. I also get really bad heartburn.
Sometimes so bad, my throat feels like
it's on fire. Symptoms get worse when I am
stressed or upset (usually my heart will
start racing, and my pulse and blood
pressure will sky rocket.) I had a barium
enema, and the radiologist said it was
"basically normal", and they checked for
blood in my stool and didn't find any. One
of my grandmothers had polyps and died of
stomach cancer, and my other grandmother
died from pancreatic and lung cancer, so I
am a little concerned.
I am just so tired all the time, and it
makes the worrying worse, which makes the
symptoms worse. Strangely, I also have a
few things that are asymptomatc for
hyperthyroid: I am sensitive to cold and
desensitized to heat, I gain weight like
crazy, and I tend to be weak and tired
most of the time (I do have random bouts
of energy). The muscle soreness is getting
worse (my left shoulder is numb almost all
the time and my neck is getting very
cranky). The soles of my feet are bright
red and my toes are often cold. There is
also a large strawberry colored rash on my
right foot that develops fluid filled
blisters that my doctors keep saying is
eczema but doesn't respond to
hyrdrocortisone at all.
A few of my other (less severe, but still
annoying) symptoms are:
I am prone to acne, even at my age, which
neither OTC nor prescription meds seem to
be able to help.
I am constantly battling with
iron-deficiency anemia.
In the last month, I have begun smelling
burning rubber and smoke that no one else
can and tasting ammonia.
I have severe allergies which lead to
chronic sinusitis at least twice a year,
if not more. Traditional allergy meds
don't always help. (Claritin seemed to
help for about a week and then stopped
helping.)
I have an ovarian cyst.
I have trouble falling asleep, and when I
do fall asleep, I seem to spend most of
the night having lucid dreams and then
have trouble waking in the morning (even
if I let myself naturally wake up, I still
feel lethargic.)
My saliva glands don't seem to shut off,
even if my mouth is completely moist. When
I yawn, if I lift my tongue, saliva
literally shoots out of the gland under my
tongue.
I am rheumatoid positive and have high
titer speckled ANA, but have not been
diagnosed with anything. I should also
point out that I took a lot of antibiotics
as a child for genetic vesicoureteral
reflux. If you have any insight, I would
be ever so grateful!
|
gsrobertson
New User, Becoming EHEALTHy
Joined: 22 Jul 2007 Posts: 3 Location: Kansas
a Prayer And a Suggestion Posted: 10-14-07 08:47am
I prayed for you this morning as prayer is
the best thing I can do for you.
I have also had a positive ANA test and
have not yet been diagnosed. I just saw
my family chiropractor this last week and
he was able to give me some natural
supplements. They have already helped
with my fatigue. I pray that the Lord
would help you find better answers and to
get well. Please check into seeing a
chiropractor if you have not already done
so.
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tkr2fulk
New User, Becoming EHEALTHy
Joined: 08 Dec 2007 Posts: 11
For What It's Worth... Posted: 12-13-07 01:08am
Wow! Your story sounds so familar. I'm
27. I had chronic fatigue, fibro, and
hypoglycemia at 13. My gallbladder
removed at 21 (it was "diseased" with no
stones). I was diagnosed with hashimoto's
disease at 25 (hypothyroidism). I
struggle with a myriad of "wierd"
symptoms.
I was hospitalized last week for the GI
problems I am having. After no firm
conclusions, I am waiting on my ANA
results, and hopefully some answers.
Right now, I am scared to death that my
blood work will come back normal. I would
rather be diagnosed with something than
nothing at all.
My insight for you: keep fighting. Don't
give up. Ask your doctors the hard
questions, and hold them accountable. I
think that is the most important thing I
have learned this week. My doctors were
quick to slap a label on me and send me
out the door until I refused. I am sorry
for the passion. I believe there are
answers. We just have to keep fighting
for them and praying. Stay strong!
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jason2jr
New User, Becoming EHEALTHy
Joined: 02 Mar 2007 Posts: 27 Location: Paramount, CA, 90723 US
ME TOO... Posted: 01-25-08 14:50pm
I have alot of the problems you have
explained but I was diagnosed with an
autoimmune disease called Polymyositis.
Its basically inflmmation in my muscles
that cause weakness and soreness and
eventually deterioration of your muscles.
I had the fatigue, stomach problems, heart
burn out of this world, vomiting, numbness
in alot of my limbs, and just feeling sick
all the time. Depression followed and then
anxiety attacks. I have been treated with
steriods to stop the inflammation, which
it did, but left me with so many horrible
side effects that I dont know if I wouldve
chosen it over the pain if I had known in
advance. Stay strong, pray and dont give
up. Someone will know. Go to different
Doctors and always get second opinions.
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katrina5558
New User, Becoming EHEALTHy
Joined: 01 Feb 2008 Posts: 29
Posted: 03-04-08 16:33pm
What is Polymyositis? What are the
syptoms and how did they diagnosis it?
I have a lot of stomach problems and I
have been having chronic fainting spells.
I get severe headaches and get chronic leg
cramps and my jaw and ears hurt and I have
started getting pain in my hands. I had
bloodwork done several months ago and had
high ANA levels which my dr thought might
be due to a sensitivity to wheat so i have
since been on a wheat free diet which
brought the ANA levels back in line. but
i still have the symptoms. Just wondering
how you got your diagnosis.
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jason2jr
New User, Becoming EHEALTHy
Joined: 02 Mar 2007 Posts: 27 Location: Paramount, CA, 90723 US
Posted: 03-05-08 15:51pm
Well, I didnt really have any stomach
problems ofther than not having an
appetite. olymyositis is really rear and
it basically consist of your immune system
attacking your own baby( muscles
speciafically). I causes you to be weak
because your muscles are literally being
eating away, it causes fatigue for obvious
reasons, weight loss for obvious reasons,
bruises and sore muscles. Mkes it hard to
walk up and down stairs, get dressed and
get up from a sitting position. No cure
though. They also dont know were it comes
from. I takes steriods to take the
inflammation away which helps but also
hurts because of all the side effects the
give. Good luck. Have you asked about
chronic fatigue syndrome. Hope this helps.
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