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Doctors Don't Seem to Know What's Wrong. Getting Desperate.

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nickiej01

New User, Becoming EHEALTHy
Joined: 23 Aug 2007
Posts: 3
Location: Victorville, CA
Doctors Don't Seem to Know What's Wrong. Getting Desperate.
Posted: 08-23-07 18:52pm

Hello. I apologize in advance if this rambles. I am a 29 year old female who has been diagnosed with hyperthyroidism with a hot singular nodule(this is the only confirmed diagnosis I have been able to get from 5 different doctors, and they said I didn't need a FNA). I have been very sick for the last 13 years of my life.

It started out with just general fatigue and muscle soreness and weakness. Now, for the last few years, there is a bulging pain I get from time to time directly below my ribcage on my left side (sometimes, it even hurts to touch). It gets worse if I eat anything greasy (like bacon) and I actually get nauseated and sometimes need to vomit to relieve the nausea. Once, I vomited 3 hours after eating, and all the food was still in my stomach. I bounce between constipated and loose(non-watery) stools. When I have a bowel movement, the pain will sometimes lessen. I also get really bad heartburn. Sometimes so bad, my throat feels like it's on fire. Symptoms get worse when I am stressed or upset (usually my heart will start racing, and my pulse and blood pressure will sky rocket.) I had a barium enema, and the radiologist said it was "basically normal", and they checked for blood in my stool and didn't find any. One of my grandmothers had polyps and died of stomach cancer, and my other grandmother died from pancreatic and lung cancer, so I am a little concerned.

I am just so tired all the time, and it makes the worrying worse, which makes the symptoms worse. Strangely, I also have a few things that are asymptomatc for hyperthyroid: I am sensitive to cold and desensitized to heat, I gain weight like crazy, and I tend to be weak and tired most of the time (I do have random bouts of energy). The muscle soreness is getting worse (my left shoulder is numb almost all the time and my neck is getting very cranky). The soles of my feet are bright red and my toes are often cold. There is also a large strawberry colored rash on my right foot that develops fluid filled blisters that my doctors keep saying is eczema but doesn't respond to hyrdrocortisone at all.

A few of my other (less severe, but still annoying) symptoms are:
I am prone to acne, even at my age, which neither OTC nor prescription meds seem to be able to help.
I am constantly battling with iron-deficiency anemia.
In the last month, I have begun smelling burning rubber and smoke that no one else can and tasting ammonia.
I have severe allergies which lead to chronic sinusitis at least twice a year, if not more. Traditional allergy meds don't always help. (Claritin seemed to help for about a week and then stopped helping.)
I have an ovarian cyst.
I have trouble falling asleep, and when I do fall asleep, I seem to spend most of the night having lucid dreams and then have trouble waking in the morning (even if I let myself naturally wake up, I still feel lethargic.)
My saliva glands don't seem to shut off, even if my mouth is completely moist. When I yawn, if I lift my tongue, saliva literally shoots out of the gland under my tongue.

I am rheumatoid positive and have high titer speckled ANA, but have not been diagnosed with anything. I should also point out that I took a lot of antibiotics as a child for genetic vesicoureteral reflux. If you have any insight, I would be ever so grateful! Embarassed
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map1101

New User, Becoming EHEALTHy
Joined: 25 Oct 2007
Posts: 1
Nickiej01
Posted: 10-25-07 19:03pm

Nic - do you have any other mouth or throat symptoms?
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nickiej01

New User, Becoming EHEALTHy
Joined: 23 Aug 2007
Posts: 3
Location: Victorville, CA
Thank You For Replying.
Posted: 10-26-07 11:47am

other mouth symptoms include (lately) my teeth seem to be disintegrating. It's getting to the point where it hurts to brush and I occassionally have to pick a piece of tooth out of my food while I am eating. I get fluid filled sores in my mouth from time to time (they are kinda like blisters. I get them mostly on the inside of my cheek and under the tongues. The ones under my tongue tend to hurt. Once or twice a month I get the feeling of something sticking in the back of my mouth on one side and I have to scrape it out of whatever is back there (just below the uvula). It looks like a hard piece of cottage cheese and generally smells like something died. Scraping it out relieves the feeling of something stuck, but generally causes bleeding. Sometimes I can just work it out by wiggling the back of my throat.

As far as my throat goes, lately it feels like it's constricted, but that could just be my nodule getting bigger and constricting the airway. (note, I stated hot nodule, but I recently got my medical records, and it's actually cold.) Other then the constant burny sore feeling, my throat tends to be okay.

Thank you for your response,

Nickie
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