Burning In Mouth, Face And Body Posted: 09-08-07 21:22pm
I have been suffering for 2 years without
a definitive diagnosis on these symptoms.
I have undergone many tests which have not
connected my symptoms with any disease or
condition. At this point I just don't
know where to turn to get relief. Maybe
someone has experienced such symptoms and
can give me direction on where to turn.
First, 2 yrs ago my BP began to creep, not
bad but significant enough for med.
Cholesterol high as well, put me on med
which caused elevated liver enzymes.
Stopped med for liver after a year liver
enzymes down. Through extensive blood
work my ANA (auto immune antibodies)
levels were high. Went to Rheumatologist
ruled out Lupus, Sjorgrens, etc. Soon
after starting new BP med I started
experiencing burning in my mouth, tongue,
roof of mouth. Now I have burning on
face, throat, inside nose, legs. It has
been nasty. I have been on Klonopin,
didn't work, neurotin didn't work. All
the meds make me have panic attacks and
the burning is worse. I went off all BP
med at some point thinking that's what
caused the burning but I still have it
even being off meds. I have had enough
and am sitting here totally frustrated,
anxious and at a dead end. If anyone has
another idea or specialist to see. Let me
know. I'm all for suggestions. I am on
synthroid for hypothyroidism. Have been
to Endocrinologist also. My BP is running
144/80 or so. I have tried different
compositions of BP med and they all make
me crazy. Doctors think its mental, but I
am a totally sane, responsible person and
not a lunatic.
|
metalcrystal
Experienced User , Rather EHEALTHy
Joined: 11 Apr 2007 Posts: 112 Location: most boring state, USA,
Re: Burning In Mouth, Face And Body Posted: 09-09-07 10:24am
smileprincess
wrote:
I have been suffering for 2
years without a definitive diagnosis on
these symptoms. I have undergone many
tests which have not connected my symptoms
with any disease or condition. At this
point I just don't know where to turn to
get relief. Maybe someone has experienced
such symptoms and can give me direction on
where to turn. First, 2 yrs ago my BP
began to creep, not bad but significant
enough for med. Cholesterol high as well,
put me on med which caused elevated liver
enzymes. Stopped med for liver after a
year liver enzymes down. Through
extensive blood work my ANA (auto immune
antibodies) levels were high. Went to
Rheumatologist ruled out Lupus, Sjorgrens,
etc. Soon after starting new BP med I
started experiencing burning in my mouth,
tongue, roof of mouth. Now I have burning
on face, throat, inside nose, legs. It
has been nasty. I have been on Klonopin,
didn't work, neurotin didn't work. All
the meds make me have panic attacks and
the burning is worse. I went off all BP
med at some point thinking that's what
caused the burning but I still have it
even being off meds. I have had enough
and am sitting here totally frustrated,
anxious and at a dead end. If anyone has
another idea or specialist to see. Let me
know. I'm all for suggestions. I am on
synthroid for hypothyroidism. Have been
to Endocrinologist also. My BP is running
144/80 or so. I have tried different
compositions of BP med and they all make
me crazy. Doctors think its mental, but I
am a totally sane, responsible person and
not a lunatic.
Hi Princess, well you have been to plenty
of doctors, and I won't presume to know
more than them, but, here are my thoughts.
Your Bp isnt that high, isnt that the
higher end of normal? Is the synthroid the
right dose? Thyroid can be EXTREMELY
troublesome, to get to the right dose. Low
thyroid raises your cholesterol,too much
meds cause anxiety and high BP. But they
checked all this, didnt they? When you say
burning, could you mean like tingling, I
have had that from thyroid. I can only
tell you what happened with me this past
summer: I went to the doc with bad
anxiety, my BP was about like yours, and
other various complaints. Turned out there
were 3 different things going on: The
thyroid meds were way too high (Ihad lost
a lot of weight), I had
depression/anxiety, and I have some type
of arthritis in my jaw joints, caused by
TMJ disorder. She changed the thyroid
dosage, put me on Cymbalta, and pain meds
for the jaw problem. I feel alot better.
So what I am saying is that maybe you have
more than one thing going on?
In your case, I am suspicious of the
thyroid problems. Thyroid can cause Havoc
on your body if it is even a little bit
off. What dosage do you take? My brother
works in an ER and the docs there taught
him if you have to learn about one system
learn what the thyroid does, and the
problems it can cause. If you want, PM me
and I will send you a good web site to
read. Crystal
Hi Crystal,
Thanks for your information. Yes, I have
been checked over for my thyroid again. I
have been to an endocrinologist, which was
useless. He basically said there's
nothing he can do. I take .125mg of
synthyroid. That's exactly what I thought
was causing this, but I checked my TSH's
3, 4 and everything pan's out ok. They
had thought possible an adrenal tumor, t I
had blood work and a catscan (neg). I
have been on a website that mentions that
most doctors don't investigate the thyroid
enough. But, I'm not quite certain what
other tests should be done to further
evaluate this aspect. I had a call into
my internist on Thursday, because the
burning was so bad and I started having
panic attacks. I had started a new blood
pressure med, which we keep changing them,
thinking the different components are
causing panic attacks. Anyway, after 4
days same thing, severe burning more than
usual and panic attacks. The doctors are
just dumb founded. " These meds should
not do this" Yeah right, when it happens
to you you don't want to hear that. At my
wits end. Like I had mentioned before, I
think I'm off to an allergist to see if
that's the root to take. If you have any
other suggestions, shoot me a response.
Thanks again.
