Neverending Pain, Long Term Migraines ... Posted: 09-14-07 15:30pm
Looking for HELP.Have been on other
forums,little support.Any
suggestions,direction.Long term
migrainuer.Have had chronic pain for past
few years.
My head never stops hurting.Level of
pain is never less than 6.I take
nuerontin,just started a couple months
ago.Only thing it did was add weight.
I take klonopin,I take propanolol for
high pulse.I have low bp but high
pulse.Effexor.I started having panic
attacks....due to hashimoto's
thyroiditis.
No insurance anymore.I am to the point
of homebound.Local clinic does what it
can.But the pain has taken it's toll.I am
out of my mind with pain and no end in
sight.
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Fairy Godmother
Supporter
Joined: 11 Oct 2003 Posts: 1492 Location: , Georgia USA
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Hi Posted: 09-14-07 15:36pm
Can relate to the headaches...........have
an appointment with a new neurologist this
coming Monday. Daily headaches and
migraine for over 20 years....how long
have you been taking the Effexor and it is
Effexor XL? Why are you taking the
Kolonopin and what is this high Pulse????
Never heard of such. NOt sure where you
are, but if you could get on govnemtn
assistnat program, I know you could get to
a neuro dr who could maybe help you find
the root of your problem. Good luck!
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audreyann
New User, Becoming EHEALTHy
Joined: 13 Sep 2007 Posts: 18 Location: ,
Re: Hi Posted: 09-14-07 16:45pm
Fairy*Godmother
wrote:
Can relate to the
headaches...........have an appointment
with a new neurologist this coming Monday.
Daily headaches and migraine for over 20
years....how long have you been taking the
Effexor and it is Effexor XL? Why are you
taking the Kolonopin and what is this high
Pulse???? Never heard of such. NOt sure
where you are, but if you could get on
govnemtn assistnat program, I know you
could get to a neuro dr who could maybe
help you find the root of your problem.
Good luck!
I was on effexor XL.When I started it,I
had insurance.I trusted my dr.She was so
"concerned" about getting on klonopin that
when she started me on effexor,I thought
she knew what she was doing.I never knew
how hard it would be to get off of.I am
now down from 150mg Xr to effexor hcl
75mg.But want to get off it all together.I
have horrible
withdrawls,hallucinations,"drumming sounds
in my head" and ringing so loud.
The high pulse I was told is due to my
hashimoto's thyroiditis.The klonopin I
started after panic attacks started due to
thyroid.I had a good neuro.He said if they
got my thyroid under control,migraine may
go.
My insurance ripped me off.Put my
thyroid issue as pre-existing,it
wasn't,then eveything I was treated
for,they put under thyroid.Even yrly gyn
checkup.They stopped paying my dr's or
didn't pay any.Lost all my drs.
My husband is self employed,making it
hard to get assistance.But I have a clinic
I go to that does the best they can.
My high level of pain is getting to me
so bad,I no longer have a life.I wish I
could be put in somewhere and get it down
to a level that I could take.Out of ideas
as to what to do.
I'm in western north carolina.
Thanks for response!
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Fairy Godmother
Supporter
Joined: 11 Oct 2003 Posts: 1492 Location: , Georgia USA
Thanks: 81
Thanked:116
Hi Posted: 09-14-07 19:33pm
A TAR HILL! My Stepfather is from there!
You could always say you are separated and
living alone and go for a free
clinic/helth dept.. Thhre they will base
it on your income alone and may could get
you in to a neuro. I was on 75 mg of
Effexor. I started splitting the things in
half over a year ago, so I kind do 37.5
every day now I been on them over 7
years.........I want to get off them too.
I had a cerebral aneurysm in 1999, but
still suffer from daily headaches. Never
did a Kolonopin. I do pop a znnie
occasionally for the bad heaches. I am not
into Lortab or Hydrocodon...I want to
function and not ZOMBIE
out...................so sorry about your
insuracne situation. Thats total BS
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audreyann
New User, Becoming EHEALTHy
Joined: 13 Sep 2007 Posts: 18 Location: ,
Grandkids Coming Today...so Determined to Enjoy Posted: 09-15-07 08:45am
Thanks for the suggestions.The clinics
will refer you,but the nuero still wants
his money.If I have to, the next time I go
to the er,I'll go the next county
over.Especially if I think I'll get
admitted.They'll work with you more and
it's a much better hospital.If I have to
go to the er again,I know they'll admit
me,because I'd have to be in that bad of
shape to go.
Klonopin is the only thing that helps
w/my panic.It's the worst feeling in the
world.You really feel like you're going to
die.It's a wave of feelings that is so
intense.
I just take each day as new as I
can.It's very hard sometimes when you wake
up to the kind of pain I did today.But I
have grandkids coming today and I want to
enjoy it.
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Fairy Godmother
Supporter
Joined: 11 Oct 2003 Posts: 1492 Location: , Georgia USA
Thanks: 81
Thanked:116
Hi Posted: 09-15-07 09:57am
Bless you and your Grandchildren! See,
thats a wonder God has given up to look
forward too. Hope knowing these babies are
coming to see Grandmother will help ease
some of your pain!
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audreyann
New User, Becoming EHEALTHy
Joined: 13 Sep 2007 Posts: 18 Location: ,
Posted: 09-17-07 09:00am
Hi,
Yes,I am very blessed.And I had an extra
blessing,I had a visit from my oldest
daughter last night with my other 2
grandchildren.I don't get to see them very
much.
So,the weekend will help me get thru the
week.I am taking time thruout the day to
be still and repeat 4 positve words over
and over.I have a sound machine that I
like to have on when I do this and I go to
sleep with.
Today,I have my lounge chair
outside,under an umbrella.I did get alot
of cleaning done over the weekend so today
I'll take extra time and just sit out
there.I make sure I'm in the shade and
wear sunscreen,I have a brother that at
the age of about 47 was diagnosed with
melanoma.He has to go every 3 months for
treatments.
I also plan on getting on my treadmill
today.Just for 5 minutes.It's good
mentally and with our family
history....the same brother just had a
heart attack about 6 months ago.He's never
had a weight problem and has been walking
every day,mainly for his wife who gets
blood clots in her legs.The doctors said
the blockage had to be from genetics.
I drink alot of water,I do carrot
juice,I only drink one cup of coffee a day
and limit my soda to maybe one small glass
a day.
I don't like red meat.And I eat very
little chicken.I soon want to cut that
out.I have a steamer and need to get back
into using that more.
Well, thanks for listening.My pain level
is about 6.I'm having nightmares every
night.I hope with small changes,I'll
change that.
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CarolDiane
Supporter
Joined: 23 Sep 2007 Posts: 2396
Thanks: 111
Thanked:156
Re: Hi Posted: 09-25-07 03:07am
Fairy*Godmother
wrote:
Can relate to the
headaches...........have an appointment
with a new neurologist this coming Monday.
Daily headaches and migraine for over 20
years....how long have you been taking the
Effexor and it is Effexor XL? Why are you
taking the Kolonopin and what is this high
Pulse???? Never heard of such. NOt sure
where you are, but if you could get on
govnemtn assistnat program, I know you
could get to a neuro dr who could maybe
help you find the root of your problem.
Good luck!
I agree 100% here. I would try every way
in you know what to see a neuro. State
Medicaid and others are out there. I
should know. You need to got to your local
Children and Family Services center and
apply for some help.