Cerebral Palsy Forum - Help Please, I Need Massive Help. In Pain !!

I am hoping someone will read this and tell me best place to go for help.

I am a 37 year old female, American living in the UK/England , First.
Born with Cerebral palsy.

I have experience some pain in my calf of my leg and the doctors are puzzled to why. and pretty much told me nothing more can be done except pain pills and just try to over come it.

In 2003 I had a bad fall at a gas station and injured my knee, and due to hyper mobility is the only thing that save it, basically being double jointed. My leg went up under neath me when I fell and I injured some muscles in my knee, due to having cerebral palsy, my muscles once weak cannot regain strength, so with the fall it damaged that, I have been fitted for a proper brace and waiting to receive that. Right now wearing this Velcro brace and it seems to be working.

A few Saturdays ago, is when something freaky happened. I turned over in bed, as normal , and something in calf Popped! I went to the local walk in clinic like urgent care in the USA, and was told possible muscle rupture, but due to they did not have proper equipment could not evaluate and also, nothing can really detect a muscle , any time we damage muscles, So I am told, It is hard to detect.

Well they increased this pain patch I am wearing for the pain in knee and giving me muscle relaxers, well those were making me ill, and feeling very groggy, so I went to my family doctor and told, Nothing more can be done, You have had mri, cat scans and all that, and we cannot find why this is happening, just something you have to deal with. You have been referred to pain specialist, reumologist, a surgeon, a orthopedic. Nothing more can be done.

When asked, isn't there any specialist that 1 deal with cerebral palsy can they not help, was told no such thing in the UK.

When asked anyone specialize in muscle deterioration, was told no that doesn't exist.

It must exist, just I am not sure where to go to find it, CAN ANYONE please help me , I AM not willing to just sit down in a wheelchair and give up. I understand this can be a real possibility due to all my life been told eventually it will happen, However, I have just lost a TON of weight, and if I do not exercise It will pile back on.

Please, if you have experienced something like this, or suffer with something like this please contact me, I am desperate for answers.

Thank you very much for reading.