Joined: 11 Jun 2007 Posts: 1136 Location: Phoenix, AZ, USA
Thanks: 17
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I Have Vulvar Vestibulitis, Diagnosed Yesterday Posted: 10-04-07 13:06pm
So yep I have this. Finally an answer to
my painful sex. I feel so relieved. I
know whats wrong and most of all why.
According to the doc the birth control I
have been taking for 5 years has robbed my
body of estrogen and replaced it with
progestrin. This causing my painful sex.
The vestibule, which is where the hymen
is, are glands that are designed to
protect your vaginal opening during
intercourse. These little glands allow
the entry of a penis. The glands thrive
on etrogen. The estrogen keeps this piece
of skin strong and enables it to allow
friction. Well since my body does not
have enough estrogen the skin literally
becomes raw when there is any kind of
friction. So its like I have an open
wound there. My body cannot defend itself
from "things going inside." So the answer
is I have to inject etrogen into myself
for four weeks to build my levels up. I
cant have sex for 4 weeks, not that I
could anyway. In three months my body
will be healed. I CANNOT take hormonal
birth control again otherwise this will
happen.
So theres my story and thats where I am
at. I will probably get and IUD placed
later. But my hubby and I finally have an
answer and our sex life can come back.
This has been so depressing for me. I
felt less than a real women for so long.
(I have had a history of painful sex since
I started having sex). I almost lost hope.
There are like a hand full of doctors that
actually know about this so it has been
very difficult to find a doc. I have gone
5 years to all sorts of doctors and no one
knew. There are only 2 docs in my entire
state! There are some in CA and most are
on the east coast. Man this has been a
headache.
So just wanted to let you guys know about
this, and maybe help the next women that
has this .
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Tylanas
Especially EHEALTHy
Joined: 13 Jul 2005 Posts: 12985
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Posted: 10-04-07 20:39pm
I'm really glad you've finally found the
answer! Also, that you've shared it with
us! Sometimes these forums feel like
watching half an episode of "Mystery
Diagnosis" but never seeing the ending!
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Rosie H
Extremely EHEALTHy
Joined: 11 Jun 2007 Posts: 1136 Location: Phoenix, AZ, USA
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Posted: 10-05-07 09:29am
Oh beleive me, I know that one.
To All:
So if your problems sound anything like
mine please consider vulvar vestubilits.
It is not a death sentence but it is an
answer. I dont know how many women get
this or how some women can be on birth
control for 20 years and have no problems.
but im not one of them. If you have pain
and no one knows why then continue
researching and try to find a doctor the
studys the vulva, not just a regular gyno.
Thanks for your reply Eiri, and I would
like to help someone out there. This
forum and your comments have helped me
sooo much.
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Rosie H
Extremely EHEALTHy
Joined: 11 Jun 2007 Posts: 1136 Location: Phoenix, AZ, USA
Thanks: 17
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Update: Posted: 11-01-07 10:07am
Yeah I can have sex again !!!! And guess
what it doesnt hurt !!!! Oh my gosh I am
soooo happy I could cry.....I went for my
follow up yesterday and the estrogen is
repairing my vestibule. I still have to
use it 3x a week for one more month and
then ween myself off the estrogen. In
three months I will get the IUD put in and
the goal is be free from estrogen
replacements. The doctor is hoping that
my body will take care of itself.
My hubby is so happy, you should have seen
him at the docs office.
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orthogirl
Experienced User , Rather EHEALTHy
Joined: 02 Sep 2006 Posts: 69 Location: NC
Posted: 02-03-08 02:24am
omg i think this is what's wrong with me.
i've been having painful sex for a year
and i've been on the pill for 5 years. it
feels like a cut somewhere on the vulva
and it is very painful and never heals.
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run4life10
Experienced User , Rather EHEALTHy
Joined: 26 Sep 2007 Posts: 110 Location: ,
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Posted: 02-04-08 18:01pm
this may be a possible explanation to the
problems i've been having. i've only been
on bc for a few months, but for about the
past 6 weeks i've been experiencing
painful intercourse. there is some pain
immediately upon insertion, and gets worse
as it goes on. the pain is usually
bearable, and i'm sometimes still able to
orgasm, but it is a huge annoyance. it's
an odd feeling, as i haven't really been
able to pinpoint the exact location of the
pain. sometimes it feels like it's inside
but recently i've found that it seems to
be around the opening. it's not caused by
friction as i use plenty of lube. but i
only really feel the pain during
intercourse or when i'm being touched in
that area. sometimes i experience some
pain when wearing tight clothing but this
doesn't seem to be in the same place. does
this sound like it could be vulvar
vestibulitis?
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Rosie H
Extremely EHEALTHy
Joined: 11 Jun 2007 Posts: 1136 Location: Phoenix, AZ, USA
Thanks: 17
Thanked:7
Posted: 02-05-08 09:07am
orthogirl
wrote:
omg i think this is what's
wrong with me. i've been having painful
sex for a year and i've been on the pill
for 5 years. it feels like a cut somewhere
on the vulva and it is very painful and
never heals.
this is the exact way I felt. Like the
cuts just never fully went away. Please go
see a doctor. A regular gynocologist might
not know what vestibular vestitis is so
call your insurance company and ask if
they have any doctors that study the
VULVA. If you do not have insurance then
you can call local gynocologists in your
phone book and ask them. Or you can do an
online search. But do see a doctor. it can
get expensive but its the best thing I
ever did. Good Luck and if you have any
other questions feel free to ask.
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Rosie H
Extremely EHEALTHy
Joined: 11 Jun 2007 Posts: 1136 Location: Phoenix, AZ, USA
Thanks: 17
Thanked:7
Posted: 02-05-08 09:11am
run4life10
wrote:
this may be a possible
explanation to the problems i've been
having. i've only been on bc for a few
months, but for about the past 6 weeks
i've been experiencing painful
intercourse. there is some pain
immediately upon insertion, and gets worse
as it goes on. the pain is usually
bearable, and i'm sometimes still able to
orgasm, but it is a huge annoyance. it's
an odd feeling, as i haven't really been
able to pinpoint the exact location of the
pain. sometimes it feels like it's inside
but recently i've found that it seems to
be around the opening. it's not caused by
friction as i use plenty of lube. but i
only really feel the pain during
intercourse or when i'm being touched in
that area. sometimes i experience some
pain when wearing tight clothing but this
doesn't seem to be in the same place. does
this sound like it could be vulvar
vestibulitis?
From what my doctor told me vulvar
vestibulitisis is only at the opening of
the vagina, at the vestibule or hymen.
Usually you can pinpoint exactly where the
pain is. So I do not think you have it.
But I still suggest that you go to a Vulva
specialist. (see my previous post)
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Georgia59
Supporter
Joined: 11 Apr 2007 Posts: 5557 Location: Along the Mississippi, USA
Thanks: 90
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Posted: 02-06-08 23:21pm
Hey Rosie- I'm really interested reading
your experience.
I have heard that there are estrogen
treatments for women who don't get much
lubrication (not necessarily the same
condition but very similar) that involve a
small plastic ring (like the nuvaring)
that has estrogen in it, it is absorbed
not into the blood but just the tissues in
the vulva/vagina, and help them to swell
and lubricate. Have you heard anything
about this?
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Rosie H
Extremely EHEALTHy
Joined: 11 Jun 2007 Posts: 1136 Location: Phoenix, AZ, USA
Thanks: 17
Thanked:7
Posted: 02-07-08 09:03am
No Georgia59 I have never heard of rings
that release estrogen. Although it sounds
like it would get the job done. The
estrogen that I was taking is in a tube
and you insert it. Kinda like monistat or
something. The ring sounds better to use
to me though. My curiosity is up, I think
I will research this maybe even ask my
doctor if I could try this....thanks = )
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Georgia59
Supporter
Joined: 11 Apr 2007 Posts: 5557 Location: Along the Mississippi, USA
Thanks: 90
Thanked:32
Posted: 02-07-08 16:08pm
No prob- and let me what you find. I don't
know much about it except that I heard
about it on a radio show (Dr. Laura
Berman's show)
