Hey! I'm so happy to have stumbled upon
this forum. I'm going crazy trying to
deal with hypoglycemia. My doctors keep
telling me to go to the psychiatrist and
that it is all in my head.
So I convinced one of the doctors at my
college to let me take a GTT (5h). The
results came back strange:
fasting: 93
1h: 63
2h: 95
3h: 52
4h: 71
5h: 84
I can't make sense of it because it
doesn't match anything online or in books
that I can find. The nurses at my
college clinic are clueless. When the
nurse called me she didn't even know that
93 was within "normal" limits.
I've been on something rather similar to
the diet described here since April. I
figured it out myself through trial and
error this summer but the last month has
been HORRIBLE. By the end of August,
however, i felt healthier than I had ever
been in my life and could eat (in
moderation) almost everything I wanted
(except the obvious.... candy, sugar,
white bread, etc). This past month I
haven't been able to sleep through the
night (with nightmares, night sweats, even
violent shaking that wakes me up) and my
body feels constantly achy. My mood
swings are severe, from absolute elation
to severely suicidal. I have a constant
headache no matter what I eat and can
hardly concentrate on anything as if my
head is stuffed full of cotton. Its
becoming impossible to attend classes and
get hw done.
It was never like this. The first month
or so was terrible once I went on this
diet, but then everything became really
good. Its only been recently that I feel
like my entire system is short circuiting.
I think I'm somehow easily depleting my
sodium levels as well because every once
in a while when I get really really
fatigued and my hypo symptoms become
worse, drinking salt water greatly
relieves me of many symptoms. I'm going
crazy!!!!!! can anyone help me understand
what is going on????
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foxforce5
Experienced User , Rather EHEALTHy
Joined: 24 Aug 2007 Posts: 57
Posted: 10-16-07 13:16pm
Salt water does work for me as well.
Drinking lemon juice and sea salt (get
good salt with minerals) in water a few
times a day (juice of ½ lemon and ¼
teaspoon sea salt in 6 ozs. water). It
helps with anxiety/depression as well.
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Stan
Moderator
Joined: 01 Jan 2006 Posts: 1696 Location: ,
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Posted: 10-17-07 17:11pm
As I always say, in most cases you feel
good and then feel like dying for awhile
until you get better. I suggest seeing an
endocrinologist if you can and looking
into diazoxide. You have, as I do, the
NASTIEST curve for a hypoglycemic. Very
hard to treat, and I'll tell you from my
experience you may not start feeling
moderately better for up to six months.
However, the thing about this type is that
it seems to be one of the few that's
actually a biological condition, in the
sense that it doesn't seem as reversible
as the other types, and usually requires
an abscence of grains, bread, etc. to get
anywhere. Even after two years I still
can't eat the stuff, and if you get to
this point medicine is the only option.
It actually works very well, you basically
take it for about a year, it blocks
insulin, and you keep eating healthy,
adding in grains again but NOT cake or
sugar or such things. After a year they
ween you off and essentially your body has
been retrained. You could technically do
this yourself by just saying screw it and
eating fairly normal with grains and so
forth, but you'd need about a year of just
sitting around to pull it off because the
mental and physical strain from it is
unbearable. I know because before I knew
I had this, they said I had a virus so I
ate a diet that was essentially for
hypoglycemia, using whole grains. Took
over 13 months to be better and I had to
be put on antidepressants to make it
through it and most of the time spent my
days relaxing with no stress.
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MoralAnimal
New User, Becoming EHEALTHy
Joined: 16 Oct 2007 Posts: 14
Posted: 10-17-07 17:38pm
I've been struggling for 6 years to get
diagnosed and everyone tells me that it is
all in my head. Finally got it confirmed
this weekend, even though I have been
following a hypoglycemic diet for 6 months
already. It has been living hell.
What in the world causes something like
this? Is it partially genetic?
Also... tips on how to do long car trips?
I have to move to california from ohio and
I'm concerned about driving this alone.
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Stan
Moderator
Joined: 01 Jan 2006 Posts: 1696 Location: ,
Thanks: 3
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Posted: 10-18-07 13:10pm
It can be partially genetic, seems to be
common in people from slavic (like Polish
for example) or Italian stock. If you
have a history of diabetes on either side,
then the likelihood of a biological link
is high. Otherwise it's just the case of
your beta cells (in the pancreas) slowly
becoming overactive because of poor
eating. The only thing to do for long car
trips is to prepare a good amount of food
to bring in a cooler, refilling with ice
as you see fit. You could even go so far
as researching what stores are on the way
and simply buying what you need as you go
along. I have had several long trips, not
that long, but you'll be fine. At first
it's rough, but just make sure to rest
when you feel the need and stop to eat in
a calm, relaxed manner. It really
wouldn't be hard to do, you just need to
be prepared for it and be aware of what
you need to bring, where you could get it
and where you'll be able to find things
you need after the move. Planning is the
best bet. In your case I still recommend
seeing and endocrinologist. I've been
told it's all in my head for awhile
(though I have a great family doctor back
home that knows all about the condition
and was very helpful) and figured I'd
treat it myself. Unfortunately, still
being unable to eat grains and the insulin
level being fairly high, I eventually got
anal abscesses, one of which required
painful surgery (turned into a fistula).
This is apparently very common for
diabetes due to taking insulin. Early
signs of it are cystic acne or infrequent,
huge boils and abscesses around the body.
If you've ever had this, do yourself a
favor and get to an endo before it
happens. It's not that likely, but trust
me, you DON'T want to go through with
this. It's what made me decide to see
about the medicine and see one, I go in
under a week.
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MoralAnimal
New User, Becoming EHEALTHy
Joined: 16 Oct 2007 Posts: 14
Update Posted: 12-30-07 20:52pm
so.... i've been in cali for 2 months now.
Seeing a naturopath. test results come
back that I have completely normal insulin
levels. We have no idea what is causing
the hypoglycemia.
There seems to be some sort of allergy
thing going on but we can't figure out
what i'm allergic to. We are going to
test for candida and other buggies soon.
In addition we have learned that my
adrenal glads are getting stressed. They
have not reached "fatigue" status, but are
getting close. My DHEA levels are really
high. But everything else is normal.
My health insurance dropped me because i
am no longer a student (had to take
medical leave because the hypo and whatnot
was too overwhelming to function at
school). But I can't get health insurance
now because I have a pre-exsisting medical
condition that is unresolved. Makes all
this really frustrating. Ended up in the
ER right b4 my insurance dropped me
because I have started to vomit/diarieah
uncontrollably on a regular basis now.
They released me after a full pyciatric
review and a repremand that I need to grow
up and deal with it. I'm trying to pay
all my medical bills out of pocket. My
parents can't/won't help me. I don't know
what to do.
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MoralAnimal
New User, Becoming EHEALTHy
Joined: 16 Oct 2007 Posts: 14
Posted: 01-06-08 14:59pm
... i seem to be allergic to yeast. When
I avoid yeast, the hypoglycemia gets
better, but my hypoglycemia is still bad.
Avoiding yeast allows me to eat more than
15g of carbs a day! But now, when I eat
too many carbs my body gets really really
heavy feeling and my fingers and
extremities start "tingling"... like when
your foot falls asleep. what causes
this???
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Stan
Moderator
Joined: 01 Jan 2006 Posts: 1696 Location: ,
Thanks: 3
Thanked:0
Posted: 01-07-08 00:24am
Hmmm, what kind of yeast are you talking
here? How many and what kind of carbs are
you eating?
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MoralAnimal
New User, Becoming EHEALTHy
Joined: 16 Oct 2007 Posts: 14
Posted: 02-26-08 02:18am
any kind of yeast or yeast by-product
(citric acid, alcohol, etc) gives me
allergy type symptoms. I'm eating only
complex carbs, yogurt, keifer, milk, and
non-starchy veggies... i don't even own
sugar or anything with simple sugars. I
can't eat most fruits either. I've pretty
much memorized the fiber and carb counts
of every food I have ever encountered,
including a good deal of ethnic food.
found out a few weeks ago I'm insulin
resistant. still can't get a doctor
because I can't get health insurance. I
want to get on Metformin and there is a
second drug that increases insulin
sensitivity. I was on a naturopathic
formula that helped a lot with the seesaw
pattern of high and low blood sugar. my
body has become numb to the hunger pains
and headaches and many of the other
physical symptoms I constantly have.
unfortunately, the formula brought back
the headaches and unbearable hunger pains.
I'm basically starving and am starting to
look like I'm from a 3rd world country,
despite eating 6-9 times a day. I've lost
so much weight that there isn't any more
fat on my body, my bones are sticking out.
My hypoglycemia seems to be caused by too
much insulin building up in my blood
before my cells finally start reacting to
it and pulling down my blood sugar.
One of my biggest problems is that the
hypoglycemia is causing me to have panic
attacks. Apparently tons of hormones are
released, including adrenaline, when your
blood sugar gets too low. I used to wake
up a lot in the middle of the night with
low BS and my body coursing with
adrenaline. I don't wake up in the middle
o the night anymore... but i know it is
still happening because when i wake up the
next morning, i am totally stressed out to
the max and my body feels terrible. i've
been living with a diabetic for the past 6
weeks and i guess there is a saying about
hypoglycemia at night in the diabetic
community... "dead in bed"... if your body
stops waking you up in the middle of the
night because of low BS (this is common!),
eventually you will slip into a coma or if
you go too low and have convulsions and no
one is around to feed you something to
bring your blood sugar up... dead in bed.
this totally freaks me out.
I just read this evening that 2 tsp of
cornstarch (uncooked!) in a glass of milk
before bed will supposedly reduce
hypoglycemic episodes at night. The
cornstarch, if raw, will stick to your
intestines and take up to 8 hours to break
down providing a slow and steady dose of
carbs all night. What is great is that it
supposedly won't make your blood sugar go
up either.
of course, everyone is different. Some
people with hypoglycemia can have more
carbs than others. So adjust accordingly.
But that link has absolutely been a
godsend to me, especially trying to
explain to someone what I CAN eat.
I find the most important part of managing
my hypoglycemia has been taking a really
good multi-vitamin (make sure it has
chromium!), fiber capsules 5 min before I
eat (helps slow down the carbs so your
system is not overwhelmed by a big sugar
load), and making sure I have trace
minerals in my water (I use Liquid Ionic
trace Minerals by Marine Minerals because
my salt balances get out of whack really
easily. Just a few drops in my glass).
Avocados really do help too. I also find
that taking omega-3's help to keep my body
running smoother and to reduce the
confusion/dizziness when my BS is too low.
You can find omega-3's either as flax
seed oil or fish oil (i find the flax seed
oil easier to digest). Holy basil will
help reduce stress caused by all the
hormones released when your blood sugar
drops too low.
My naturopath told me that you should
always eat the protein and fats on your
plate first before you eat the carbs or
veggies because that will slow down the
sugar as well! You should be eating 80%
protein and fat on your plate each time
you eat!