Hi! I'm looking for katiedee. I read
that your son is taking a keppra
combination and am looking for more
information. My doctor is planning to
introduce it to me, but i'm extremely
nervous. The list of side effects is so
long and they seem so extreme! Could you
tell me about how this drug affected your
son?
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katiedee
New User, Becoming EHEALTHy
Joined: 25 Mar 2004 Posts: 11
I'm Here! Posted: 04-03-04 14:01pm
Well, my son is on keppra and trileptal.
As for side effects, for him there were
none. In the past he had been tried on
tegretol, depakote, dilantin, lamictal,
gabitrol, and others I don't remember.
All of those gave him the worst side
effects. What I have found with these
aeds is that they seem to effect everyone
so differently. For every drug he's ever
taken that affected him, I found other
people had positive experiences, and vice
versa. So I wouldn't throw the baby out
with the bathwater. I had done much
research on keppra and the possible side
effects didn't scare me near as much as
the one with lamictal. But, I know there
are many people who have taken lamictal
with great success. So, I wouldn't
necessarily judge someone else's
experience as what could happen to you.
I'm a firm believer in having to try
different drugs or a combination of them
to find what's right for you. If it
doesn't work for you, there are so many
others to try. I'm glad we kept
searching for the right ones for my son.
I was about to throw my hands up when his
doctor gave him this combination - at a
very low dose. He's been seizure free
for two years now. I think that some
epileptics are over-medicated just to
achieve good seizure control, but the
patient is often left being a zombie.
And sometimes too much medication can
actually make the seizures worse - and I
have personal experience with that with my
son. We finally found a neuro who let my
son take a low dose of the keppra &
trileptal and evaluated how frequent the
seizures were. With therapeutic doses of
trileptal, he had many more seizures.
With therapeutic does of keppra, he was a
monster. But with a low dose of each he
achieved the best seizure control with no
behavior changes. So, keep an open mind
when trying new medications.
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Kathyalison
Experienced User , Rather EHEALTHy
Joined: 01 Apr 2004 Posts: 64
Thank You! Posted: 04-03-04 20:41pm
Thanks so much for your info! I guess
when a person starts on any new drug,
they're a little nervous. I spoke with
my neuro'a assistant yesterday who is
really great and she told me that since
july they've used keppra 67 times with
great results. So my mind is a little
more at ease now!
Thanks again for your story. It has
encouraged me too!
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