Photophobia, Eye Pain, Trails (palinopsia), Dark Spots Posted: 10-24-07 22:20pm
Open to all ideas!
39/f. Sudden onset in November,
2006...started seeing trails behind moving
objects. By Feb., I developed severe
photophobia with eye pain...which
invariably led to a killer "brain freeze"
headache above my brow. A couple months
later, I noticed several dark spots and
squiggles in my vision. They've been
multiplying to the point they're really
distracting in day to day life. By
summer, I developed occasional flashes and
streaks in my peripheral vision. All of
the above mentioned complaints have
continued 24/7 to this day. This week, I
noticed the air seems electrified, or
slightly shimmering...as if my sight is
just TOO good. I feel like time is
running out for my sight...or my sanity (I
think I'm allergic to pain)....which led
me to mad-crazed googling...which
eventually led me here.
About my medical history....I've been
checked by a neurologist, ophtalmologist,
neuro-ophtalmologist, and back to a
neurologist. All findings are normal
including eye exam (20/20), eeg, and
mri. Diagnosed with an autoimmune
thyroid disease (post-partum thyroiditis
and/or Hashimotos depending on which dr
you ask) and, what I would describe as
a life long "blah...whatever....I'm
exhausted and just want to sleep"
disorder. The latest neurologist thinks
I have a degenerative autoimmune eye
disease that effects the retina.
And...she's pretty sure I have lyme
disease. Another dr. is sure it's lead
poisoning and/or lyme. Many new Dr. appts
in the next couple of weeks with many more
test results.
