Hi...I'd like to introduce myself Posted: 07-09-03 19:01pm
Hi,My name is Diana,I'm 33 yrs.
old....I've been dx with sle...lupus
nephritis....and lupus anticoagulant 2
yrs. ago.I live in vancouver BC,canada.
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faulkner99
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I have lupus as well Posted: 07-15-03 07:24am
Hello
It is nice to meet you I have
Lupus and Huges Syndrome as well. I only
found out In June of 2003. I am seeking
information on my condition. I
have found message boards to be very
helpful in finding people with the same
problems as I have. It makes me feel like
I am not alone If any one has any
helpful information please write
Hi Christy,Thank-you for the reply..I know
the frustration of it all and I know it's
very frightning.However I refuse to
believe it is a death sentence,because I
know us lupies can live a normal life
span.I do get very scared at times
...because of my kidney invovlment .I have
RA which can be sooooooo painful .If you
have any questions at all you are more
then welcome to e-mail me at any
time.Hoping you have a great...painfree
day
(((((Hugs))))) Diana
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faulkner99
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thanks for your reply Posted: 07-15-03 20:49pm
It is good to know that we are not alone
lots of people like us suffer just as we
do. I have RA as well. I have being going
to the chirpractor and massage therapy it
has help me some with the pain. I am doing some
more research to find out about how diet
affects this disease.
I hope you are doing well take care &
GOD bless you
Yes we are not alone...I belong to another
message board support group and have mad
many...many friends It
has truly made a huge difference in my
life.I have a very supportive family but
they could never really understand the
daily problems the wolf can bring.let me
know if you would like to be a part of our
wonderful wolfpack,everyone is sooo nice
and very helpful.It's a great place to
just ask questions,cry,laugh...or just
plain vent ...vent ...vent..lmao,talk to
you after
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faulkner99
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me again Posted: 07-16-03 19:18pm
hello today was a good day for me my trip
to the chiropractor yesterday helped me
alot. My joints feel much better I still
hurt but not as much. I highly recommed
this treatment it is a drug free way to
find relief.
I hope you are doing well may GOD Bless
You !!!
That is great news your joints are feeling
better...AMEN!I hope this relief lasts for
you I will pray that it does.Today I'm
ok..just very fatigued,but certainly
nothing new about that lol.Have you ever
gone onto msn.com...then click on boards
and chat then on messege boards.Just a
great place to go.Hope you have a great
night.Hugs Diana
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faulkner99
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THANKS Posted: 07-17-03 06:47am
I have never gone to MSN message boards
but I will try it. I hope to see you there
and I hope that today finds you feeling
well
Take Care & God Bless
Christy
Hyeeee....my member name on there is
chelsea444(named after my goddaughter Hope you are
feeling good and painfree today.Looking
forward to seeing you there.God Bless
Diana
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sharon
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lupus Posted: 07-17-03 12:07pm
Hi, I have Lupus too. I was diagnosed in
April'97. I also have epilepsy,asthma. I'm
currently having a lot of back pain. I
would like to know if there is anyone out
there who is drawing or is seeking social
security? I tried in '97 ,but was turned
down. I need to re-apply, but I'm afraid
of being turned down again! My medical
bills are on the rise due to the problems
I'm having due to my Lupus. Any advice?
My name is Diana,I'm 33 and I have had
problems since I was 13 but was just dx 2
yrs. ago with Lupus nephritis...Lupus
anticogulant...and sle,ra
I'm on a lifetime disability...I'm in
Canada...Where are you from?From my
understanding It is alot harder in the
states to get on it...I know tons of
Lupies from the states that have a hard
time getting on it.What they have had to
do is reapply over and over and tell me
that 3 times is a charm,some have had to
get lawyers..but ultimately have won
their cases.Please don't give up,as we
all know if anyone needs it ..it's us
lupies.Goodluck with it,please keep
posting.^_^ Diana
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invisiblesoldier
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Soldiers of the same war Posted: 07-17-03 15:12pm
Hell-o,
My name is Deborah, I have been diagnosed
with: lupus, Fibromyalgia, Raynaud's
syndrome, and oesteoporosis. You are not
alone in this battle. Romans 8:37...it
says: in ALL these things WE are MORE than
conquerors through him that (loves) us.
We may be on different part of the base,
but, we are fighting the same war.
Knowing others may have what I have, and
are STILL GOING FORTH, strengthens me, so
I can go on fighting.
Hi Deborah,
My name is Diana I'm 33 and have been dx
with sle,lupus nephritis,and lupus
anticogulant,which includes all the normal
lupus stuff like RA.I've been sick for 20
yrs.but have just been dx for 2yrs.I had a
real hard time at first...but have come to
terms with it and I am fine with
it...thanks to all the wonderful lupies I
have met.I hqave met many friends on MSN's
lupus support group,you are more then
welcome to also come there,everyone is so
nice and very helpful,it's just like one
big family.God bless you:)Diana
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sharon
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Caniianlupie Posted: 08-20-03 19:46pm
Hi, sorry I somehow missed your reply
until now. I've made an appointment with
my rheu. Doc. For sept.-16. I'm going
for broke! I've got to start pushing for
my ss. I've looked up a lawyer in my area
whose specialty is disability. I haven't called
yet, but after I talk to my rheu. I'm
going to make an appointment. I have been
turned down once but I will keep trying!
Thanks for the support
Hyee,
i'm glad you have your appt.Make sure you
take a log(journal)with you that tells
when and where you've been in pain and any
other symptoms...And jot down all
questions you need to ask,as we all know
how far and in between these appts can
be.Best of luck and please keep me posted
on how you're doing and how your appt
goes.If you ever want to talk,just leave a
post and I will get back to you with my
e-mail addy,or messenger id.Good thoughts
are sent your way.Hugs diana
I did file for ssi back in 2001. I was
denied because i'm not totally disabled
all the time. They actually have a hand
book on lupus alone. I never sent off for
this book, or refiled, because I felt like
I could make it a while longer. And I
know there will come a time that I will
need it more. I have sle with heart and
lung involvement, I also have ra, with all
my major joint involved and sojgrens
syndrome. So I just felt like I could
wait a while to get the ssi. I know
things will get worse, and as long as I
can pay my bills now I just don't want to
go through the hassels of listening to
people say that it's all in my mind! I
heard that from so many docs before they
finally diagnosed me I just don't think I
can go through it again real soon. Hope
this helps. Order the book if your going
to file, it should help you with the
paperwork.
How are you?I received this post I see
it's for sharon,but somehow.Showed up in
e-mail inbox hope
your doing good and painfree.I have been
suffering so much lately with the ra and
migraines ugh!!!!!,but other then that i'm
ok.Take care and talk to you soon.
Your canadian lupie friend diana
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Schizophreniahealth
This page was last updated on April 1, 2008
I
have found message boards to be very
helpful in finding people with the same
problems as I have. It makes me feel like
I am not alone 
If any one has any
helpful information please write
.If you
have any questions at all you are more
then welcome to e-mail me at any
time.Hoping you have a great...painfree
day 
(((((Hugs))))) Diana
lots of people like us suffer just as we
do. I have RA as well. I have being going
to the chirpractor and massage therapy it
has help me some with the pain. 
I am doing some
more research to find out about how diet
affects this disease.
I haven't called
yet, but after I talk to my rheu. I'm
going to make an appointment. I have been
turned down once but I will keep trying!
Thanks for the support 