Death By Seizure Disorder. Posted: 04-13-04 04:39am
Would love to obtain some insights.
My wife, barbara, died 12/16/03. My wife
took lots of meds and am wondering if the
mix that she took might have killed her.
My wife was epileptic, had a history of
seizures since she was 12, was bipolar
and suffered with very bad migraines.
On 12/11 my wife hurt her shoulder, the
orthopoedist said that she had torn her
rotator cuff and would need surgery, he
prescribed methocarbamol 750 mg. Twice a
day, mabumetone 750 mg. Twice a day and
tylenol #3 with codeine as needed until
she could have her surgery.
My wife's shrink had my wife taking 600
mg.Effexor, 900 mgs of trileptal, 3mg of
risperdal, 6 mgs of clonazepam, 40 mg.
Amphetamine, 90 mg. Remeron soltab and
10mg. Ambien at night.
For migraine relief she was prescribed a
10 mg. Bottle of butorphanol every
week.
My wife's primary care doctor had my wife
taking 25 mg promethegan suppositories, 10
mg. Metoclopramide, 10 mg. Prevacid,
and 32 mg atacand.
On the day that she died I woke up and she
complained to me that she was not feeling
well and had been up most of the night.
She said that she had been having
alternating hot and cold sweats, felt
very nauseous, had severe abdominal pain,
and that her back really hurt. One of my
kids was home sick with the flu, I told
her that I would take the other to school
and be back in an hour. Upon my return I
found her dead on her back beside the
bed.
Her body was taken for autopsy to the
state medical examiner's office, three
weeks later her pathologist called to say
that her death had been ruled by seizure
disorder.
Lots of questions, feel that the answer
for her death at the young age of 47 lays
in the meds that she was taking and some
fatal interreaction, is there any out
there that might shed some light on this
for me.
Many thanks for taking the time to read
this and ponder with me,
god bless to all.
|
Midnight
New User, Becoming EHEALTHy
Joined: 28 Jan 2004 Posts: 33
Posted: 04-13-04 10:24am
First of all my condolunces. I am very
sorry for your loss.
Meaning specifically what? "death had
been ruled by seizure disorder. "
that she died having a seizure? Did she
hit her head? Or they can't find out
anything else and gave it that ruling?
I don't know but it sounds like a lot of
meds. Do you have a pdr (physicians
desk reference)? I would read up on all
the meds and the contradictions.
It doesn't sound right to me. If it is
that is a fact I think that it would be
scarry that I could just die without
warning like that.
Sorry for not making myself clear, when I
discovered my wife's body I contacted the
rescue squad, they pronounced her dead
and then a series of medical examiners and
detectives started trooping through my
home.
About three weeks later the state's
medical examiner called, she said that
barbara's heart was healthy with no sign
of disease, her brain structure was
intact - no stroke or aneurysm, vital
organs were all normal, nothing in her
airways that she might have asphixiated
from, the doctor said that she had a
seizure and that the seizure was what had
killed her.
Have spent hours every day since her death
on the internet googling those meds, I
see lots of warnings about the mix that
she was on and the dangers for someone
with a history of seizure and their
ability to lower the seizure threshold.
Stuff like effexor xr is real rat
poison----
when my wife was alive we used to have
battles about the quantity of meds that
she took, she would not listen to any of
my objections, it was all necessary she
would say, do you think that my doctors
would prescribe this stuff for me if I did
not need it?
Am told that sudden death by epilepsy
(sudep) is very real, and that every year
a number of people die from it. I
witnessed my wife have many seizures, it
would scare the crap out of me seeing her
shake and her body convulse, but she
always woke up out of it. This last one
though she didn't----
|
Midnight
New User, Becoming EHEALTHy
Joined: 28 Jan 2004 Posts: 33
Posted: 04-14-04 06:23am
I never was made aware of sudep. I just
looked it up. No wonder that my
mother-in-law is so emotional and scared
about my epilepsy when I am around. She
told me that brother died from epilepsy
but I never questioned it. It seemed to
hurt her so. I just assumed that he hit
his head, so I don't know.
Never-the-less, she has been always so
afraid of me dying or getting hurt.
This is still fairly new (diagnosed
10/2002) to me so I am still just
learning.
Still yet, it seems so very odd that in 5
days from tearing her rotator cuff and
needing surgery that she should pass away.
For your own sake don't give up till you
find out.
Also, if you do find out can you please
let me and others on this bb know? Our
lives may depend on the knowledge of
interactive medications that is currently
being prescribed without a warning that it
may possibly cause death.
|
Midnight
New User, Becoming EHEALTHy
Joined: 28 Jan 2004 Posts: 33
Posted: 04-14-04 06:24am
I never was made aware of sudep. I just
looked it up. No wonder that my
mother-in-law is so emotional and scared
about my epilepsy when I am around. She
told me that brother died from epilepsy
but I never questioned it. It seemed to
hurt her so. I just assumed that he hit
his head, so I don't know.
Never-the-less, she has been always so
afraid of me dying or getting hurt.
This is still fairly new (diagnosed
10/2002) to me so I am still just
learning.
Still yet, it seems so very odd that in 5
days from tearing her rotator cuff and
needing surgery that she should pass away.
For your own sake don't give up till you
find out.
Also, if you do find out can you please
let me and others on this bb know? Our
lives may depend on the knowledge of
interactive medications that is currently
being prescribed without a warning that it
may possibly cause death.
|
2ferano
Extremely EHEALTHy
Joined: 23 Dec 2003 Posts: 3717
Posted: 04-14-04 07:25am
I am very sorry for your loss. No one
should be on that many meds. I am no
expert, but I would definately get an
attorney who specializes in malpractice
and see what can be found out. It just
doesn't seem right to me.
|
sandyallen
Extremely EHEALTHy
Joined: 02 Feb 2004 Posts: 4580
Medications Posted: 04-14-04 07:33am
I am so deeply sorry to hear of your loss!
That is a "h" of a lot of medications!
I take a lot of medication with my medical
situations but I am not an epileptic but
that is heavy duty stuff and a very
strange mixture, I wish I could help you
out more! I am just a caregiver but I
would defenitely speak to a pharmacist and
most likely an attorney! I really do
hope you get some answers soon!
Sincerely,
sandy
I think the doctors killed my wife, thank
you for suggesting that I get a
knowledgable attorney to look into the
matter, realize that even with hours of
googling do not know or can find out
enought about the mix of drugs and hot
they might have affected my bride. I
have a merciless health questions looking
into the matter, am told that the review
could take months maybe years, will keep
you informed.
|
rxhorse2008
New User, Becoming EHEALTHy
Joined: 10 Jan 2008 Posts: 9
Your Wife Posted: 01-10-08 18:01pm
Hello,
My sincere condolences to you and your
family. I am compelled to give you some
insight as I have experience on both sides
of this coin. This letter is long, but I
hope that it will shed a bit of light and
give you some peace.
I was a pharmacy technician for over 10
years (assistant to a Pharmacist) and I
have Epilepsy. Your list of prescriptions
she was on is shocking, although I know
that the conditions that she suffered
would require any Doctor to prescribe.
Upon further consideration, I have
realized that they may have well been
appropriate. Sometimes if one has multiple
Doctors they try to sort-of out-do each
other. It is sad, with the patient in the
middle, but I have seen it happen.
As for her medications from your listing:
torn her rotator cuff and would need
surgery, prescribed methocarbamol 750 mg.
– this is a muscle relaxant
Twice a day, mabumetone 750 mg. –
Relafen is an NSAID – Non-Steroidal
Anti-Inflammatory drug
Twice a day and tylenol #3 with codeine as
needed until she could have her surgery.
– understandable, for pain
My wife's shrink had my wife taking 600
mg.Effexor – usually used as an
anti-depressant
900 mgs of trileptal - anticonvulsant
3mg of risperdal - antipsychotic
6 mgs of clonazepam - used to treat
anxiety
40 mg. Amphetamine – stimulant 90 mg.
Remeron - anti-depressant
and 10mg. Ambien at night. – sleep aid
For migraine relief she was prescribed a
10 mg. Bottle of butorphanol every week. -
morphinan-type synthetic opioid analgesic
– yes, used in migraine management
My wife's primary care doctor had my wife
taking 25 mg promethegan suppositories –
this has many uses
10 mg. Metoclopramide – is primarily
used to treat nausea and vomiting
10 mg. Prevacid - heartburn and other acid
reflux
and 32 mg atacand – used for high blood
pressure
I cannot speak about contraindications of
medications, but a Pharmacist can. I
strongly suggest that you write out her
meds and take it into a Pharmacist. They
sometimes need an appointment if your
discussion will be lengthy and they are in
a busy pharmacy, but they are the best
people to ask about drug interactions.
The list above I have completed, to help
you with reasons for her meds. The
Pharmacist can tell you if they
counteract.
I am sorry that you had to see a seizure.
They are scary. I have had grand-mal
seizures and once helped a young man
through one. Not nice. Her medications
speak volumes…she was on 2 meds for
epilepsy – not unusual. Depression and
anxiety sometimes go hand in hand, so that
is not uncommon. The meds from the
primary care doctor are not unusual. I
see some problems in this list that could
actually cause other problems, such that
she would’ve been prescribed the others.
Again, this is unfortunate, but very
possible.
Also, as someone with Epilepsy, I can say
that one must trust one’s Doctor. She
obviously trusted hers. I trusted mine
until I was given a reason not to.
Epilepsy can be very difficult to treat;
even more so if she was bipolar! It is
very possible if she was manic that she
may have stopped her anticonvulsant (as in
a manic stage, one thinks s/he is
insurmountable and therefore did not need
the meds). If this is so, there probably
would have been a seizure that started.
She even could have gone into status
epilepticus, therefore suffering hypoxia.
I am sure that it is extremely difficult,
especially given such a vague reason for
her passing. Although I am not a Doctor,
having experience in both areas lets me
make sense of the physical possibilities.
Honestly, I think that it would be the
latter; that she would've stopped her meds
in a manic state. This could lead to a
passing of a seizure disorder.
Talk to people. Talk to the medical
examiner. To the Doctors, the Pharmacist.
You have the right to know as much as you
can. You may never know the exact reason,
but asking these people will help give you
peace.
sincerely,
Kelly
|
rxhorse2008
New User, Becoming EHEALTHy
Joined: 10 Jan 2008 Posts: 9
Your Wife Posted: 01-10-08 18:01pm
Hello,
My sincere condolences to you and your
family. I am compelled to give you some
insight as I have experience on both sides
of this coin. This letter is long, but I
hope that it will shed a bit of light and
give you some peace.
I was a pharmacy technician for over 10
years (assistant to a Pharmacist) and I
have Epilepsy. Your list of prescriptions
she was on is shocking, although I know
that the conditions that she suffered
would require any Doctor to prescribe.
Upon further consideration, I have
realized that they may have well been
appropriate. Sometimes if one has multiple
Doctors they try to sort-of out-do each
other. It is sad, with the patient in the
middle, but I have seen it happen.
As for her medications from your listing:
torn her rotator cuff and would need
surgery, prescribed methocarbamol 750 mg.
– this is a muscle relaxant
Twice a day, mabumetone 750 mg. –
Relafen is an NSAID – Non-Steroidal
Anti-Inflammatory drug
Twice a day and tylenol #3 with codeine as
needed until she could have her surgery.
– understandable, for pain
My wife's shrink had my wife taking 600
mg.Effexor – usually used as an
anti-depressant
900 mgs of trileptal - anticonvulsant
3mg of risperdal - antipsychotic
6 mgs of clonazepam - used to treat
anxiety
40 mg. Amphetamine – stimulant 90 mg.
Remeron - anti-depressant
and 10mg. Ambien at night. – sleep aid
For migraine relief she was prescribed a
10 mg. Bottle of butorphanol every week. -
morphinan-type synthetic opioid analgesic
– yes, used in migraine management
My wife's primary care doctor had my wife
taking 25 mg promethegan suppositories –
this has many uses
10 mg. Metoclopramide – is primarily
used to treat nausea and vomiting
10 mg. Prevacid - heartburn and other acid
reflux
and 32 mg atacand – used for high blood
pressure
I cannot speak about contraindications of
medications, but a Pharmacist can. I
strongly suggest that you write out her
meds and take it into a Pharmacist. They
sometimes need an appointment if your
discussion will be lengthy and they are in
a busy pharmacy, but they are the best
people to ask about drug interactions.
The list above I have completed, to help
you with reasons for her meds. The
Pharmacist can tell you if they
counteract.
I am sorry that you had to see a seizure.
They are scary. I have had grand-mal
seizures and once helped a young man
through one. Not nice. Her medications
speak volumes…she was on 2 meds for
epilepsy – not unusual. Depression and
anxiety sometimes go hand in hand, so that
is not uncommon. The meds from the
primary care doctor are not unusual. I
see some problems in this list that could
actually cause other problems, such that
she would’ve been prescribed the others.
Again, this is unfortunate, but very
possible.
Also, as someone with Epilepsy, I can say
that one must trust one’s Doctor. She
obviously trusted hers. I trusted mine
until I was given a reason not to.
Epilepsy can be very difficult to treat;
even more so if she was bipolar! It is
very possible if she was manic that she
may have stopped her anticonvulsant (as in
a manic stage, one thinks s/he is
insurmountable and therefore did not need
the meds). If this is so, there probably
would have been a seizure that started.
She even could have gone into status
epilepticus, therefore suffering hypoxia.
I am sure that it is extremely difficult,
especially given such a vague reason for
her passing. Although I am not a Doctor,
having experience in both areas lets me
make sense of the physical possibilities.
Honestly, I think that it would be the
latter; that she would've stopped her meds
in a manic state. This could lead to a
passing of a seizure disorder.
Talk to people. Talk to the medical
examiner. To the Doctors, the Pharmacist.
You have the right to know as much as you
can. You may never know the exact reason,
but asking these people will help give you
peace.
sincerely,
Kelly
|
rxhorse2008
New User, Becoming EHEALTHy
Joined: 10 Jan 2008 Posts: 9
Your Wife Posted: 01-10-08 18:02pm
Hello,
My sincere condolences to you and your
family. I am compelled to give you some
insight as I have experience on both sides
of this coin. This letter is long, but I
hope that it will shed a bit of light and
give you some peace.
I was a pharmacy technician for over 10
years (assistant to a Pharmacist) and I
have Epilepsy. Your list of prescriptions
she was on is shocking, although I know
that the conditions that she suffered
would require any Doctor to prescribe.
Upon further consideration, I have
realized that they may have well been
appropriate. Sometimes if one has multiple
Doctors they try to sort-of out-do each
other. It is sad, with the patient in the
middle, but I have seen it happen.
As for her medications from your listing:
torn her rotator cuff and would need
surgery, prescribed methocarbamol 750 mg.
– this is a muscle relaxant
Twice a day, mabumetone 750 mg. –
Relafen is an NSAID – Non-Steroidal
Anti-Inflammatory drug
Twice a day and tylenol #3 with codeine as
needed until she could have her surgery.
– understandable, for pain
My wife's shrink had my wife taking 600
mg.Effexor – usually used as an
anti-depressant
900 mgs of trileptal - anticonvulsant
3mg of risperdal - antipsychotic
6 mgs of clonazepam - used to treat
anxiety
40 mg. Amphetamine – stimulant 90 mg.
Remeron - anti-depressant
and 10mg. Ambien at night. – sleep aid
For migraine relief she was prescribed a
10 mg. Bottle of butorphanol every week. -
morphinan-type synthetic opioid analgesic
– yes, used in migraine management
My wife's primary care doctor had my wife
taking 25 mg promethegan suppositories –
this has many uses
10 mg. Metoclopramide – is primarily
used to treat nausea and vomiting
10 mg. Prevacid - heartburn and other acid
reflux
and 32 mg atacand – used for high blood
pressure
I cannot speak about contraindications of
medications, but a Pharmacist can. I
strongly suggest that you write out her
meds and take it into a Pharmacist. They
sometimes need an appointment if your
discussion will be lengthy and they are in
a busy pharmacy, but they are the best
people to ask about drug interactions.
The list above I have completed, to help
you with reasons for her meds. The
Pharmacist can tell you if they
counteract.
I am sorry that you had to see a seizure.
They are scary. I have had grand-mal
seizures and once helped a young man
through one. Not nice. Her medications
speak volumes…she was on 2 meds for
epilepsy – not unusual. Depression and
anxiety sometimes go hand in hand, so that
is not uncommon. The meds from the
primary care doctor are not unusual. I
see some problems in this list that could
actually cause other problems, such that
she would’ve been prescribed the others.
Again, this is unfortunate, but very
possible.
Also, as someone with Epilepsy, I can say
that one must trust one’s Doctor. She
obviously trusted hers. I trusted mine
until I was given a reason not to.
Epilepsy can be very difficult to treat;
even more so if she was bipolar! It is
very possible if she was manic that she
may have stopped her anticonvulsant (as in
a manic stage, one thinks s/he is
insurmountable and therefore did not need
the meds). If this is so, there probably
would have been a seizure that started.
She even could have gone into status
epilepticus, therefore suffering hypoxia.
I am sure that it is extremely difficult,
especially given such a vague reason for
her passing. Although I am not a Doctor,
having experience in both areas lets me
make sense of the physical possibilities.
Honestly, I think that it would be the
latter; that she would've stopped her meds
in a manic state. This could lead to a
passing of a seizure disorder.
Talk to people. Talk to the medical
examiner. To the Doctors, the Pharmacist.
You have the right to know as much as you
can. You may never know the exact reason,
but asking these people will help give you
peace.
sincerely,
Kelly
|
rxhorse2008
New User, Becoming EHEALTHy
Joined: 10 Jan 2008 Posts: 9
Your Wife Posted: 01-10-08 18:02pm
Hello,
My sincere condolences to you and your
family. I am compelled to give you some
insight as I have experience on both sides
of this coin. This letter is long, but I
hope that it will shed a bit of light and
give you some peace.
I was a pharmacy technician for over 10
years (assistant to a Pharmacist) and I
have Epilepsy. Your list of prescriptions
she was on is shocking, although I know
that the conditions that she suffered
would require any Doctor to prescribe.
Upon further consideration, I have
realized that they may have well been
appropriate. Sometimes if one has multiple
Doctors they try to sort-of out-do each
other. It is sad, with the patient in the
middle, but I have seen it happen.
As for her medications from your listing:
torn her rotator cuff and would need
surgery, prescribed methocarbamol 750 mg.
– this is a muscle relaxant
Twice a day, mabumetone 750 mg. –
Relafen is an NSAID – Non-Steroidal
Anti-Inflammatory drug
Twice a day and tylenol #3 with codeine as
needed until she could have her surgery.
– understandable, for pain
My wife's shrink had my wife taking 600
mg.Effexor – usually used as an
anti-depressant
900 mgs of trileptal - anticonvulsant
3mg of risperdal - antipsychotic
6 mgs of clonazepam - used to treat
anxiety
40 mg. Amphetamine – stimulant 90 mg.
Remeron - anti-depressant
and 10mg. Ambien at night. – sleep aid
For migraine relief she was prescribed a
10 mg. Bottle of butorphanol every week. -
morphinan-type synthetic opioid analgesic
– yes, used in migraine management
My wife's primary care doctor had my wife
taking 25 mg promethegan suppositories –
this has many uses
10 mg. Metoclopramide – is primarily
used to treat nausea and vomiting
10 mg. Prevacid - heartburn and other acid
reflux
and 32 mg atacand – used for high blood
pressure
I cannot speak about contraindications of
medications, but a Pharmacist can. I
strongly suggest that you write out her
meds and take it into a Pharmacist. They
sometimes need an appointment if your
discussion will be lengthy and they are in
a busy pharmacy, but they are the best
people to ask about drug interactions.
The list above I have completed, to help
you with reasons for her meds. The
Pharmacist can tell you if they
counteract.
I am sorry that you had to see a seizure.
They are scary. I have had grand-mal
seizures and once helped a young man
through one. Not nice. Her medications
speak volumes…she was on 2 meds for
epilepsy – not unusual. Depression and
anxiety sometimes go hand in hand, so that
is not uncommon. The meds from the
primary care doctor are not unusual. I
see some problems in this list that could
actually cause other problems, such that
she would’ve been prescribed the others.
Again, this is unfortunate, but very
possible.
Also, as someone with Epilepsy, I can say
that one must trust one’s Doctor. She
obviously trusted hers. I trusted mine
until I was given a reason not to.
Epilepsy can be very difficult to treat;
even more so if she was bipolar! It is
very possible if she was manic that she
may have stopped her anticonvulsant (as in
a manic stage, one thinks s/he is
insurmountable and therefore did not need
the meds). If this is so, there probably
would have been a seizure that started.
She even could have gone into status
epilepticus, therefore suffering hypoxia.
I am sure that it is extremely difficult,
especially given such a vague reason for
her passing. Although I am not a Doctor,
having experience in both areas lets me
make sense of the physical possibilities.
Honestly, I think that it would be the
latter; that she would've stopped her meds
in a manic state. This could lead to a
passing of a seizure disorder.
Talk to people. Talk to the medical
examiner. To the Doctors, the Pharmacist.
You have the right to know as much as you
can. You may never know the exact reason,
but asking these people will help give you
peace.
sincerely,
Kelly
|
rxhorse2008
New User, Becoming EHEALTHy
Joined: 10 Jan 2008 Posts: 9
Your Wife Posted: 01-10-08 18:03pm
Hello,
My sincere condolences to you and your
family. I am compelled to give you some
insight as I have experience on both sides
of this coin. This letter is long, but I
hope that it will shed a bit of light and
give you some peace.
I was a pharmacy technician for over 10
years (assistant to a Pharmacist) and I
have Epilepsy. Your list of prescriptions
she was on is shocking, although I know
that the conditions that she suffered
would require any Doctor to prescribe.
Upon further consideration, I have
realized that they may have well been
appropriate. Sometimes if one has multiple
Doctors they try to sort-of out-do each
other. It is sad, with the patient in the
middle, but I have seen it happen.
As for her medications from your listing:
torn her rotator cuff and would need
surgery, prescribed methocarbamol 750 mg.
– this is a muscle relaxant
Twice a day, mabumetone 750 mg. –
Relafen is an NSAID – Non-Steroidal
Anti-Inflammatory drug
Twice a day and tylenol #3 with codeine as
needed until she could have her surgery.
– understandable, for pain
My wife's shrink had my wife taking 600
mg.Effexor – usually used as an
anti-depressant
900 mgs of trileptal - anticonvulsant
3mg of risperdal - antipsychotic
6 mgs of clonazepam - used to treat
anxiety
40 mg. Amphetamine – stimulant 90 mg.
Remeron - anti-depressant
and 10mg. Ambien at night. – sleep aid
For migraine relief she was prescribed a
10 mg. Bottle of butorphanol every week. -
morphinan-type synthetic opioid analgesic
– yes, used in migraine management
My wife's primary care doctor had my wife
taking 25 mg promethegan suppositories –
this has many uses
10 mg. Metoclopramide – is primarily
used to treat nausea and vomiting
10 mg. Prevacid - heartburn and other acid
reflux
and 32 mg atacand – used for high blood
pressure
I cannot speak about contraindications of
medications, but a Pharmacist can. I
strongly suggest that you write out her
meds and take it into a Pharmacist. They
sometimes need an appointment if your
discussion will be lengthy and they are in
a busy pharmacy, but they are the best
people to ask about drug interactions.
The list above I have completed, to help
you with reasons for her meds. The
Pharmacist can tell you if they
counteract.
I am sorry that you had to see a seizure.
They are scary. I have had grand-mal
seizures and once helped a young man
through one. Not nice. Her medications
speak volumes…she was on 2 meds for
epilepsy – not unusual. Depression and
anxiety sometimes go hand in hand, so that
is not uncommon. The meds from the
primary care doctor are not unusual. I
see some problems in this list that could
actually cause other problems, such that
she would’ve been prescribed the others.
Again, this is unfortunate, but very
possible.
Also, as someone with Epilepsy, I can say
that one must trust one’s Doctor. She
obviously trusted hers. I trusted mine
until I was given a reason not to.
Epilepsy can be very difficult to treat;
even more so if she was bipolar! It is
very possible if she was manic that she
may have stopped her anticonvulsant (as in
a manic stage, one thinks s/he is
insurmountable and therefore did not need
the meds). If this is so, there probably
would have been a seizure that started.
She even could have gone into status
epilepticus, therefore suffering hypoxia.
I am sure that it is extremely difficult,
especially given such a vague reason for
her passing. Although I am not a Doctor,
having experience in both areas lets me
make sense of the physical possibilities.
Honestly, I think that it would be the
latter; that she would've stopped her meds
in a manic state. This could lead to a
passing of a seizure disorder.
Talk to people. Talk to the medical
examiner. To the Doctors, the Pharmacist.
You have the right to know as much as you
can. You may never know the exact reason,
but asking these people will help give you
peace.