Joined: 01 Apr 2004 Posts: 33 Location: Los Angeles
Burning Spots On the Scalp Posted: 04-13-04 18:29pm
Hello everyone. I went out of the house
today for 4 hours. 9am-1pm.
Tonight I woke up with a burning in what
it feels to be like splotches.
Anyone know what that it? I had this last
year too but no one knew what what going
on.
Thanks,
shawna
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LadyBrannon
Active User, Really EHEALTHy
Joined: 17 Jul 2003 Posts: 506 Location: TX
Posted: 04-13-04 23:47pm
Do you have sun sensitivity?
I know I get odd spots when I go out in
the sun.
hugs,
ladybrannon
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leucara
New User, Becoming EHEALTHy
Joined: 01 Apr 2004 Posts: 33 Location: Los Angeles
Burning Spots Posted: 04-19-04 00:25am
Yes I do. And they are are kind of
unexplained by the doctors too because
there are just burning sensations and no
red spots and skin rash.
Is yours with a skin rash?
Thanks!
Shawna
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LadyBrannon
Active User, Really EHEALTHy
Joined: 17 Jul 2003 Posts: 506 Location: TX
Posted: 04-19-04 00:59am
I get skin rashes, headaches, stomach
ache...Queasiness...You name it. I pretty
much stay inside from may to october.
Seriously!
how long have you been dealing with it?
Hugs,
ladybrannon
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leucara
New User, Becoming EHEALTHy
Joined: 01 Apr 2004 Posts: 33 Location: Los Angeles
Posted: 04-19-04 02:00am
Well, I have been dealing with a lot for a
long time. I was diagnosed about 1 year
ago. For so long they didnt know what was
wrong with me but when my friends sister
was diagnosed I was sure that lupus was
what I had. Over the last year I have
become very sensitive to the sun. I have
a lot of gi problems too. Vaginal
infections, itchy eyes. The artheritis is
on the horizon I guess. At times after I
eat my back hurts. So I guess I have had
all this stuff but no arthritic pain yet.
No anti-dna, no sm antigen, no double
strand dna either. Titer is 1:160. Thats
about all they got. Oh, and low platelets
but I have has low platelets for 10 years.
Long before I felt sick. Thats kind of
weird. I got a bad infection and my body
never came back to normal. Ya, I stay out
of the sun too. If the day is sunny I am
in.
If the day is overcast, I wake up very
happy but being in los angeles that doesnt
happen much. How long have you been deal
with this?
Shawna
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LadyBrannon
Active User, Really EHEALTHy
Joined: 17 Jul 2003 Posts: 506 Location: TX
Posted: 04-19-04 02:04am
I am so sorry. Lupus is a rough thing.
I first got really sick when I was 19. I
was diagnosed at 26 after a hospital stay.
The years between 19 and 26 were marked
with illness and a lot of questions.
Since then, I have had some
complications...A lot of prednisone ...And just glad
that I know what it is...Finally! I am
now 30, btw!
Anytime you want to talk...Feel free to pm
me! Lupus is really tough and can get you
down...Especially when you look fine, but
feel like crap! Or on those days when you
just want to lay down and sleep for 20
hours, but you know you can't.
Hugs!
Ladybrannon
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leucara
New User, Becoming EHEALTHy
Joined: 01 Apr 2004 Posts: 33 Location: Los Angeles
Posted: 04-19-04 05:14am
What complications have you had? Were
your rashes mostly from the sun?
I know I am only one year into this so the
worst is yet to come. What do you think
about the 5 year thing the doctors say
when you are first diagnosed? They told
me that whatever comes in the next five
years that tha is what I would be living
with. Do you agree with that? What are
the other causes of rashes besides the
sun? Do you have aol im ? Or, how do I
pm?
Thanks,
shawna
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LadyBrannon
Active User, Really EHEALTHy
Joined: 17 Jul 2003 Posts: 506 Location: TX
Posted: 04-19-04 05:47am
No, my rashes are not mostly from the sun.
I have had vasculitis of the skin that
takes over my entire body. Ugh! I was so
bad that I had no normal skin. People
were afraid to look at me...Let alone
touch me. And I am talking about doctors!
I think the 5 year plan is crap! I know
people diagnosed with lupus who have never
had a symptom other than a few positive
blood tests that were randomly found. And
I know people that had years of remission
to just blow into a horrendous flare out
of nowhere...But that is just my opinion.
i have also had kidney involvement. I get
severe headaches. I have had memory loss.
I have raynaud's. I have steroid induced
diabetes and weight gain (that majorly
sucks). I have the lupus anti-coagulant.
*shrug* that's what I can remember right
now!
i do pretty good most of the time...Then
sometimes I go to the hospital. I've been
in and out of the hospital over the last
four years. But, overall, I think I am
doing better than I was say two years ago!
to pm...Go to the private message option
at the top of the screen and just type in
my screen name (ladybrannon) and yes, I
have an aol im name...I'll send it to you
over pm, okay?
