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number game
Extremely EHEALTHy
Joined: 04 Jun 2007
Posts: 1212
Location: Charlotte, NC,
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When Does It Start to Get Better?
Posted: 01-06-08 18:11pm
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Well I was awakened by yet another phone
call from the NICU. They are re-testing
for RSV. She had another bad night. Poor
blood gasses and back up to 100% on her
oxygen. She had a very long brady/desat
with her morphine dose at around 9pm, so
things must have gotten worse since then
through the night. Any how, I've been at
the hospital since 10 am and just got home
and it's now 5:40 pm. They still haven't
gotten the result back on the RSV and it
probably won't be in till the morning. We
had to re-wrap her leg bacause it had slid
to her ankle. She did pretty good with us
messing with her leg. Hopefully OT will
come out tomorrow morning and get
something more fitting for her leg and
more comfortable. I looked at the leg on
the x-ray and it looks like it could be a
complete break or a greenstick
break.....kinda hard to tell because of
the position of her leg. And there was too
much swelling of the tissue around it to
tell by the touch. The NP said it sould
heal pretty quickly though. Well that's
all I got today. I'll post new info
tomorrow. Oh yea, her oxygen had been
weaned down to 38% by time I left this
afternoon.
I hope and pray tat she dosen't have that
RSV. There is a baby there that got it and
is now on ECMO (life support). And it's
just so sad!
(ECMO) http://www.gla.ac.uk/departments/surgica
lpaediatrics/ecmoinfo.htm
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onmyway_0x
Supporter
Joined: 12 Jan 2007
Posts: 759
Location: Canada
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Posted: 01-06-08 18:16pm
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I'm so sorry , your such a strong woman
and little carly is just amazing!
I don't know what to tell you about when
it will get better... but I'm sure it will
... and all of this will just make you and
your daugther stronger, and your bond will
be incredible... you are such survivors!
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young Girl
Especially EHEALTHy
Joined: 21 Jun 2007
Posts: 13932
Location: everythings better in, texas USA
Thanks: 1
Thanked:0
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Posted: 01-06-08 18:20pm
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im sorry rachel  poor carly. i am
thinking of you guys i know she will get
through this like she has for everything
else :"( if you need me txt me. you have
my number
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tinkinpink84
Supporter
Joined: 11 Sep 2006
Posts: 5065
Location: , Germany
Thanks: 3
Thanked:6
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Posted: 01-06-08 18:22pm
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aww, i hope she gets better soon, its gona
be a rollercoaster to go through but it
wil be soo wonderful when u can finaly
bring her home, i hop the rsv results come
back negative, shes way to little to deal
with something like that, i pray that she
does good and gets better each day.
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tdr
Supporter
Joined: 05 Oct 2006
Posts: 1535
Location: Somewhere else...not here., PA USA
Thanks: 6
Thanked:7
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Posted: 01-06-08 18:24pm
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Rachel, I'm going to sit here and pray
that Carly doesn't EVER need to go on
ECMO. With my mom being a nurse, I have
heard many of her stories about ECMO
babies, and I can't imagine that happening
to Carly.
Things have to get better. They just HAVE
to.
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moldedbymercy88
Active User, Really EHEALTHy
Joined: 28 Nov 2007
Posts: 525
Location: Somewhere, FL USA
Thanks: 6
Thanked:7
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Posted: 01-06-08 18:27pm
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Rachel, you never cease to amaze me. You
are such a strong woman. You've made it
through soo much, you (and Carly) will
make it through this too.
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Shanyan
Extremely EHEALTHy
Joined: 10 Apr 2007
Posts: 1423
Location: , Canada
Thanks: 11
Thanked:16
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Posted: 01-06-08 18:36pm
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I am at a loss for words That poor baby has
had to endure more in her short life than
most adults do in a lifetime. I am hoping
that all of our prayers are answered soon
so that sweet little Carly can take a
little break from fighting and just be a
baby 
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fairytale007
Extremely EHEALTHy
Joined: 09 Jul 2007
Posts: 1379
Location: Denver, CO USA
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Posted: 01-06-08 18:59pm
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I just read this in your blog on myspace.
I hope she doesn't have RSV. She's such a
strong little girl and so are you. I pray
that things will get better for her.
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yellow ribbon
Especially EHEALTHy
Joined: 07 Dec 2005
Posts: 5554
Location: FL
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Posted: 01-06-08 19:28pm
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geez i hope she doesnt have RSV, poor baby
is dealing with enough already. I just
want her to be big n healthy already!
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babyAndy
Experienced User , Rather EHEALTHy
Joined: 12 May 2007
Posts: 347
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Posted: 01-06-08 23:19pm
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My thoughts are with you Rachel!!!!!
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rosejackson
Supporter
Joined: 23 Dec 2005
Posts: 4360
Location: hertfordshire, england
Thanks: 7
Thanked:11
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Posted: 01-07-08 05:11am
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i'm so sorry rachel. poor carly, she'll
pull through. my thoughts are with you x
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Bratz72
Experienced User , Rather EHEALTHy
Joined: 24 Jun 2006
Posts: 433
Location: ,
Thanks: 3
Thanked:0
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Posted: 01-07-08 07:36am
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My thoughts are with you and Carly as well
!!!
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mamaTT
Extremely EHEALTHy
Joined: 03 Jan 2007
Posts: 2019
Location: Illinois, USA
Thanks: 17
Thanked:8
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Posted: 01-07-08 11:08am
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My thoughts are with you all too.
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Eyes Wide Shut
Especially EHEALTHy
Joined: 04 Jan 2006
Posts: 7892
Location: *UPTOWN*NEW ORLEANS*, La
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Posted: 01-07-08 12:19pm
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She is a fighter and has been since birth!
She WILL pull through this!!
You and Carly are in my prayers!!!
Sarah
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number game
Extremely EHEALTHy
Joined: 04 Jun 2007
Posts: 1212
Location: Charlotte, NC,
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Update 1-7-08
Posted: 01-07-08 15:21pm
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Well no RSV!! But Carly does have an
infection in her blood AGAIN! She's on 3
different antibiotics and will remain on
them for 21 days. She had a bad morning
with I think some where around 7 desats in
an hours time. You can look at her and
tell she dosen't feel good. Hopefully the
antibiotics will help her feel better
soon. As for her leg, still no better
brace on it. We are waiting for the Peds
Ortho Dr. to come by and set the bone and
have OT put a better brace on it.
Hopefully it will be done by this
afternoon. She's still taking the morphine
for pain.
My friend's baby's heart surgery was
pushed back and is scheduled to be
tomorrow morning at 7am. She's really
nervous. Her and her baby will no longer
be in the North Nursery with me and Carly.
I'm really gonna miss them. Brianna is one
of my biggest supporters. We help each
other through all of our ups and downs.
It's gonna be hard not having her there
everyday. Carly and her baby DeAnna are
neighbors. Hopefully in many weeks to come
her baby will have recovered enough to
come back. Please remember Bri and her
daughter in your prayers.
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acruz
Active User, Really EHEALTHy
Joined: 09 Aug 2007
Posts: 780
Location: Central, IL USA
Thanks: 1
Thanked:1
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Posted: 01-07-08 15:31pm
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You and all the other mother's in your
position are all so strong! Carly will
pull through all of her struggles, she is
such a fighter!
All of you are in my prayers
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moldedbymercy88
Active User, Really EHEALTHy
Joined: 28 Nov 2007
Posts: 525
Location: Somewhere, FL USA
Thanks: 6
Thanked:7
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Posted: 01-07-08 15:50pm
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I will definitely add Brianna and DeAnna
to my prayers. How are you feeling today?
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number game
Extremely EHEALTHy
Joined: 04 Jun 2007
Posts: 1212
Location: Charlotte, NC,
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Posted: 01-07-08 15:58pm
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Good! Much better than the past several
days. I decided not to take the meds for
anxiety. I don't want anything to be
"fuzzy" to me. But I'm feeling like I can
pull through today! If only I could get
rid of this stinking headache!
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