Joined: 10 Jan 2008 Posts: 3 Location: spring lake, nc us
stage iv mestastic lung cancer Posted: 01-10-08 01:58am
if there is a doctor who can help me
please,i dont want to call my oncologist
over someting that may be stupid,and its
hard to tell anymore whats the cancer and
whats noti am not depressed,just anxiety
which i take medication for,I am 38 and
incurable non surgical and on pallitive
care since the start of my treatment.and
exactly what does quality of life mean,for
howeven long i have left?and i still want
to know how long that is,they say
hopefully 2 yrs.but im young and i think i
can beat that.the only fear i have is what
is it like to die from lung cancer.cant
seem to find any answers on thaqt just
circles around the topic.lol
guess i wouldnt want to answer either
I have stage iv metastic lung cancer,to my
9th vertibrea,i feel its spread further in
my back as i have the same pains
elsewhere.Right now my tretment is at a
point where it was shrinking,but now its
not soing anything,my own worst fears tell
me the med avastin is about to stop
working.not scared about that,ill just
have to shave my head again.my prob;em is
i cant move anyomre,it takes me 15 20 min
before im able to move enough to get out
of bed.then there are days when the
stiffness is bad enough i sit in my chair
all day.to much pain from stiffness to
move.other days its a couple of pain pills
and a couple hours.
I have had trouble sleeping all night in
the past,but lately i cannot sleep at
all.last night i got 1 hr of sleep and
that wasnt until i took my daughter to
school.im at it again tonight.im tired i
want to sleep have already taken a
sleeping pill,not helping.im in pain and
im not comfprtable.and just cannot fall
asleepand stay that way.i have hot
flashes,nausea.
i take 100 mg fentinyl over 72 hr and
10/325 mg percocet also.this combo works
pretty well to control it.
it isnt really the pain keeping me up,just
when i wake,ive gone stiff even in the
arms,and i notice the pain.
my problem it whats with the ,what the
word when you cant sleep?I forget stupid
stuff like that sometimes,its my fog.
i love to sleep i need it and i cant get
it these days.
what am i supossed to so?im so tired all
of thetime.did i mention i took sleepig
pills and they did not work,not just this
once either,been like 4 ties so far.
please help is this normala/or what do i
do
Deb :
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MandMs
Extremely EHEALTHy
Joined: 26 Jan 2007 Posts: 2080 Location: Strumica, Macedonia
Thanks: 36
Thanked:11
Hi, Deb! Posted: 01-10-08 04:56am
For how long you are fighting with this
disease?
Was it lung cancer the initial diagnosis?
Hot flashes, nausea, insomnia and fatigue
are some of the symptoms of a cancer
treatment and usually disturb a person's
sleep.
Do you stay in your bad a whole day?
Can you try to go to bed only when it is
time to sleep (if this is possible due to
your stiffness and pain)
Some medical resources have information
that patients with cancers of the breast
and lung cancer are most vulnerable to
sleep problems and can easily suffer from
long-term insomnia for 6 months or more.
Lying down in bed can also contribute to
feeling stiffness.
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buffyhelp
New User, Becoming EHEALTHy
Joined: 10 Jan 2008 Posts: 3 Location: spring lake, nc us
Hi Posted: 01-10-08 07:34am
Ive had all of the flashes,nausea and
tiredness the whole time.i was diagnosed
stage four metastic lung cancer in april
of 2007.I had been working the whole time
even with the sleep troubles until
october,i am no longer allowed to pick up
anything over 9 lb.
so ive been at home. I dont always have
trpoiuble sleeping seems like the last
week its been bad.I do not stay in bed,i
make sure i get up and around everyday.I
nap every now and then,but if im having
trouble sleeping at night i do not take a
nap during the day.I have been considering
sleeping in my recliner,but to me thats
like admitting im sick and its hard to lay
down.
have you ever tried thosememory foam bed
pad things?im wondering if they would help
the stiffness
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buffyhelp
New User, Becoming EHEALTHy
Joined: 10 Jan 2008 Posts: 3 Location: spring lake, nc us
Apologies Posted: 01-10-08 07:44am
I have to say im very sorry,I just re-read
my post and I typed like a crazy
woman,this was during my sleep withdrawl i
think,Last night i did get about 3 hrs of
sleep so im a tiny bit better,however it
is a serious problem for me.im very very
tired,and stiff.
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MandMs
Extremely EHEALTHy
Joined: 26 Jan 2007 Posts: 2080 Location: Strumica, Macedonia
Thanks: 36
Thanked:11
Hi, buffyhelp! Posted: 01-21-08 04:49am
No need for apologies!
How do you feel today? Do you feel pains
all over your body?
Almost 80% percent of cancer patients have
fatigue as the most commonly experienced
side effect of their cancer. It can be
short-term or long-term and can have a
profound negative impact on patient's
quality of life.
Stiffness is one of the warning signs of
fatigue in cancer patients.
There are few causes you may feel tired:
As I mentioned in my previous post it can
be due to cancer treatment, depression or
anxiety, sleep disturbances, decreased
appetite, changes in activity, overactive
state due to tumor growth, toxicities of
cancer.
I'm not sure if Memory Foam Mattress Pads
can be a significant help in your cases,
but you can try it.
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Joyfulbrit
New User, Becoming EHEALTHy
Joined: 29 Jan 2008 Posts: 2
Lung Cancr Posted: 03-23-08 13:18pm
Hi Deb
Keep fighting check with Cancer Centers of
America every day they are finding more
and more cures the battle is not with your
medicines as with your will to survive I
am a twice cancer survivor and I am 71
years old do not give up when ou have any
treatment imagine all the good cells
eating the bad cels like in Packman '
that is what Iused to do good luck you are
in my prayers.
Joyce
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MandMs
Extremely EHEALTHy
Joined: 26 Jan 2007 Posts: 2080 Location: Strumica, Macedonia
Thanks: 36
Thanked:11
Hi, Joyfulbrit and welcome to ehealthforum! Posted: 03-27-08 06:40am
What types of cancer you had?
For how long you are free of cancer?
I'm very happy you became a user of
ehealthforum.
You can be of great support and help to
all of users on all cancer forums here.
Please, share with us your story and try
to give the cancer sufferers strength and
support.
I hope your words can be comforting for
many cancer sufferers at ehealthforum.
