When were your diagnosed?
What treatments are your currently
undergoing?
Do you have any support during this time?
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hotdidgy
New User, Becoming EHEALTHy
Joined: 14 Jan 2008 Posts: 23 Location: ar,
yes Posted: 01-25-08 10:52am
have been diagnosed I'm 29 be 30 in aug.
had since I was 21 but thanks will try
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hotdidgy
New User, Becoming EHEALTHy
Joined: 14 Jan 2008 Posts: 23 Location: ar,
hello again Posted: 01-25-08 11:07am
hit wrong button disregard laast statement
.Thanks,but been dig. about 8 years
but had symptoms got missed dig. about 9
years ago havent realy got no regament
to follow just trying to find a regeament.
have headtery ataxia can't stop getting
hard to walk and preform everyday
activitys fall often sometimes can't
talk,have
walk with cane,got other things wrong from
dis. like RLS and brething pro.
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yogahoneybunny
Supporter
Joined: 04 Jan 2006 Posts: 886 Location: Strumica, Macedonia
Thanks: 5
Thanked:0
Posted: 01-26-08 03:11am
Gait disturbance is a frequent symptom of
SCA8. You can use a cane or walker to
help prevent falls.
Modify your home with grab bars, raised
toilet seats, and ramps to accommodate
motorized chairs may be necessary.
Speech therapy, communication devices such
as writing pads, and computer-based
devices may benefit the dysarthria.
Weighted eating utensils and dressing
hooks help maintain some degree of
independence.
When dysphagia becomes troublesome, a
video esophagram can identify the
consistency of food least likely to
trigger aspiration.
Although neither exercise nor physical
therapy has been shown to stem the
progression of incoordination, individuals
with SCA8 should try to remain active in
order to maintain their muscular and
cardiopulmonary conditioning.
Weight control is important because
obesity can exacerbate difficulties with
ambulation and mobility.
I can't really find any other treatment
options at this time. It seems that these
behavioral changes are recommended. Also,
one study sgguested 300 mg of Vitamin E 3
times daily. But with inconclusive
results.
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hotdidgy
New User, Becoming EHEALTHy
Joined: 14 Jan 2008 Posts: 23 Location: ar,
thanks for your help Posted: 01-26-08 10:56am
thank you
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yogahoneybunny
Supporter
Joined: 04 Jan 2006 Posts: 886 Location: Strumica, Macedonia
Thanks: 5
Thanked:0
Posted: 01-26-08 16:23pm
You are welcome. Please let me know if I
can help you again. Do you have any
support at home? Friends to help?
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hotdidgy
New User, Becoming EHEALTHy
Joined: 14 Jan 2008 Posts: 23 Location: ar,
reply Posted: 01-27-08 20:57pm
yes.
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leewhiz
Experienced User , Rather EHEALTHy
Joined: 29 Jan 2008 Posts: 96 Location: Mother Earth, The Blue Planet
