toddler who takes phinobarbitone, epilim and tegretol Posted: 01-28-08 12:37pm
Hi,
My 2 year old daughter was diagnosed with
Epilepsy since she was 3 months old. She
has tried a variety of meds and now she is
on phinobarbitone, epilim and tegretol.
The doctor just changed to this new
concoction after the last meds failed and
she had fits again. She only gets fits
when she is ill, runny nose, fever etc. I
was wandering if anyone knows if this
concoction of meds is advisable as I had
read before that some of the meds cancel
of one another like epilim and lamictal.
Any onformation will be appreciated.
Thanks,
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jolee10
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Joined: 04 Apr 2008 Posts: 5
medication Posted: 04-07-08 18:58pm
hi i have nerer heard of drugs canceling
one another out, but i think the
combination of meds all depends on the
type of seizures. we have found with our
daughter as she gets older there seems to
be more of a range of newer drugs
available to her and less combinations are
needed. i think it is harder to stablize
young children because they grow so fast.
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RobinN
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Posted: 04-27-08 14:08pm
My personal opinion is that is one
concoction that even the best doctors and
researchers won't know how it is going to
harm your daughter. It isn't advisable by
many in the business of total health care
to be on that many neuro drugs at once.
Have you considered nutritional changes?
My daughters seizures have been greatly
reduced by neurofeedback, nutritional
changes, and very well researched vitamins
and minerals.
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jolee10
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Joined: 04 Apr 2008 Posts: 5
Posted: 07-21-08 23:39pm
Hello Hermeet I was just reading the
message board and wondered how your
daughter was going, are the meds working
for her? and how are you coping?
I
also would like to ask RobinN about
nutritional changes. I have been thinging
about diet for our 4yr old daugther (with
development delay) but not sure how easy
that would be, any thoughts would be
appreciated.
jolee10
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RobinN
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Posted: 07-22-08 12:50pm
I began immediately with a gluten free,
casein free, corn free, and soy free diet.
Those are the four top allergens to the
human body. It wasn't easy at first but
once I got into the swing of things and
read all of the labels it became easier. I
still am tweaking the changes, as I find
out something about a product that pulls
it off of my shelf.
Going to the store with the attitude that
we were going to find a multitude of items
that she could eat rather than all the
ones that she couldn't eat, left us in a
more positive place. But you have to
believe that all of this begins with
nutrition. You must hit it from there no
matter what. All the other therapies won't
matter one bit if you can't get the
nutritional aspects covered.
There is a great site that dogtorj dot
com puts out. He is a vet but he has been
able to eliminate the seizures in his pets
with diet. He has a section on his site
that deals with Epilepsy in humans. It is
worth taking the time to read. Also all of
the information on Autism that is coming
out deals with diet and how it effects the
neurological functions, and I have found
it also to be helpful. You have to be an
advocate for your daughter. Mine stopped
speaking at 18 mo. and I am sure it was
due to the onslaught of vaccines at the
time. She had regression again after her
booster shots. She carries heavy metals in
her body and I am sure it has created all
of her problems.
Nutrition is the easiest place to begin,
because you know it is made with love, and
that you are doing something really good
for you and your family. The drugs are not
a positive route to take.
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jolee10
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Joined: 04 Apr 2008 Posts: 5
Diet and epilepsy. Posted: 07-22-08 22:28pm
Thankyou for the information, I have
decided to have our daughter tested for
allergies and then talk to a dietician,
while I agree that diet plays a key role
in treating epilepsy I don't feel
confident about not using medication to
control seizures the risk is too great. I
don't think that any parent wants to
medicate they have to, epilepsy is so
individual we need to look at every aspect
and support each other.
thankyou again jolee10.
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RobinN
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Posted: 07-22-08 22:48pm
Problem was for us on the four that we
tried, there was more seizure activity.
There was new and different seizure
activity. And there was side effects that
were horrendous. I am not saying that diet
is the only alternative to look into by
any means.
Yet there are so many vitamin and mineral
deficiencies that can cause seizure
disorders and doctors don't even look that
direction. It seems quite foreign to them.
Once the AED is in the system you can't
even tell if another alternative is
helping or not.
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jolee10
New User, Becoming EHEALTHy
Joined: 04 Apr 2008 Posts: 5
Posted: 07-23-08 00:13am
I agree with you. I would just find it
so hard to get from A-B. We tried many
different
meds before topamax and I'm scared to
risk G having seizures again. I am going
to do some more research into this and
welcome any information any has on this
subject. p.s has anyone found iridology
useful in treating epilepsy?
