Joined: 28 Jan 2008 Posts: 210 Location: state of confusion, usa
Fibro beginnings Posted: 01-29-08 23:02pm
I've been diagnosed with fibro but have no
one to talk to. Hope someone can help. .
. my bouts seem to come in cycles. They
occur after a few days of feeling "off"
(it's this overall rotten feeling, like
I've got the flu without a fever, along
with extreme restlessness.) The pain,
tiredness, headaches then last for several
weeks. Is this common?
On the other hand, I have doubts that the
fibro diagnosis is correct given the
attitude of the dr. who diagnosed me.
After reading my chart, I got the
impression she gave me the diagnosis to
shut me up.
Other symptoms: tremor, muscles jerking,
dropping things, numbness, tripping over
my own feet, bumping into things, losing
balance . . .
Has this been your experience?
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Tmddyan
Moderator
Joined: 13 Jun 2006 Posts: 4260 Location: post falls, id usa
Thanks: 81
Thanked:61
Posted: 01-30-08 13:25pm
Hey feel free to talk to any one here and
vent etc. Hopefully we can get you some
answers. Do you think that you could have
chronic fatigue as well?
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bakin_april
Experienced User , Rather EHEALTHy
Joined: 28 Jan 2008 Posts: 210 Location: state of confusion, usa
Posted: 01-30-08 14:08pm
So far, none of the doctors feel it is
CFS.
I just changed PCP's in order to get a
referral to a neurologist. The new PCP
prescribed Lyrica but, after research,
I've decided not to take it until I see
the neurologist in March.
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Tmddyan
Moderator
Joined: 13 Jun 2006 Posts: 4260 Location: post falls, id usa
Thanks: 81
Thanked:61
Posted: 01-30-08 14:24pm
well be sure to let us know of your
progress. and what you find out.
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bakin_april
Experienced User , Rather EHEALTHy
Joined: 28 Jan 2008 Posts: 210 Location: state of confusion, usa
Posted: 01-30-08 14:50pm
Thanks!
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Tmddyan
Moderator
Joined: 13 Jun 2006 Posts: 4260 Location: post falls, id usa
Thanks: 81
Thanked:61
Posted: 01-30-08 16:20pm
and if you ever need anything we are here
to help:)
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Healthy heart
New User, Becoming EHEALTHy
Joined: 05 Feb 2008 Posts: 7 Location: CA, USA
Not a good feeling Posted: 02-05-08 22:58pm
I am very sorry to hear that the doctor
gave you a diagnosis to shut you up.
It sounds as if you had not gotten a full
exploration.
It sounds as if some things have been
missed. YOur symptoms are not sounding
classic fibromyaglia. Do you have any
family history of neurological disease or
heart disease?
Please tell me some more information about
your symptoms maybe I can help
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bakin_april
Experienced User , Rather EHEALTHy
Joined: 28 Jan 2008 Posts: 210 Location: state of confusion, usa
Not a Good Feeling Posted: 02-08-08 14:18pm
Unfortunately, the knowledge of my family
history only goes back to my Grandmothers.
My Dad and I both have migraines, that's
the only neuro connection. One
Grandmother passed from a stroke. She
also had heart disease. Mother has heart
disease.
What kind of info are you looking for
regarding the symptoms? I know I've
talked to some fibro sufferers and no one
I've spoken to has the flu-like symptoms
at the onset of an episode.
One thing that bothers me is the muscle
weakness. I went grocery shopping this
morning and as the cart got heavy I had
trouble finishing my shopping. Half of my
groceries remain in the car, too. I've
made two trips and will wait to get the
rest brought in when my husband comes
home. I don't get winded, or physically
tired. I can only describe it as being
muscle fatigue.