How would you know if the child has a mild
case or not? Would the test show, I say
this because I know a lady that is 35
married, works and has 3 children. You can
tell she has Downs but she funtions just
fine.
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Jincks013
Extremely EHEALTHy
Joined: 18 Apr 2007 Posts: 1171 Location: ,
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Posted: 02-01-08 08:48am
that is what doctors are for.
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oopoopoop
Extremely EHEALTHy
Joined: 18 Mar 2004 Posts: 1250 Location: ,
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Posted: 02-01-08 08:51am
I know two families where there is a
seriously impaired son or daughter. Not
sure if serious Downs or some other
defect, but severe congenital abnormality
so that the person is not capable of
looking after themselves. In both these
families, the parents are now in their
60s-70s, and the "child" is in his or her
30s or 40s. These people have spent all
their lives looking after these children.
They get no breaks, and have basically had
to look after enormous children day in,
day out. They are now retired, but have no
way of relaxing. Their main worries is who
is going to look after the children when
they die. I have only known these people
socially, but it's pretty clear to me that
they have not enjoyed the role they took
on. My guess is that if they knew anyone
with the same prospect, they would advise
abortion.
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Snug
Experienced User , Rather EHEALTHy
Joined: 12 Dec 2007 Posts: 151 Location: In the jacuzzi, silly.
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Posted: 02-01-08 08:58am
meblonde01
wrote:
How would you know if the
child has a mild case or not? Would the
test show, I say this because I know a
lady that is 35 married, works and has 3
children. You can tell she has Downs but
she funtions just
fine.
There's no way of knowing whether whether
it's a "mild case" or not until after
birth.
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Tylanas
Especially EHEALTHy
Joined: 13 Jul 2005 Posts: 12985
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Posted: 02-01-08 14:07pm
Exactly. You cannot tell if they are going
to be high functioning or not, so you can
either take that chance, or abort and try
again. I believe Downs is not passed down
by the parents, so your chances of having
another Downs child are extremely rare. I
may be wrong however.
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Katrinadoodle
Extremely EHEALTHy
Joined: 02 Nov 2007 Posts: 1231
Posted: 02-01-08 14:27pm
It is passed. It's a genetic disorder. I
think the chances of having another Downs
child is 50/50, which is why my aunt and
uncle haven't had more kids.
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meblonde01
Supporter
Joined: 11 Apr 2007 Posts: 2121 Location: ,
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Posted: 02-01-08 14:29pm
Snug
wrote:
meblonde01
wrote:
How would you know if the
child has a mild case or not? Would the
test show, I say this because I know a
lady that is 35 married, works and has 3
children. You can tell she has Downs but
she funtions just
fine.
There's no way of knowing whether whether
it's a "mild case" or not until after
birth.
That's snug, I didn't know..
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meblonde01
Supporter
Joined: 11 Apr 2007 Posts: 2121 Location: ,
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Posted: 02-01-08 14:40pm
. Neither screening nor diagnostic tests
can predict the severity of a disorder,
however. Symptoms of cystic fibrosis, for
example, range from mild bronchial
abnormalities to severe lung, pancreatic,
and intestinal difficulties. Parents must
decide whether to continue or terminate a
pregnancy when the diagnosis is known but
the prognosis is undetermined.
That's almost right..."parents" should be
"mother" although it's nice to have
cohesiveness in the process...so to
review, that's not society, not prolife
advocates, not President Bush, not some
dude living in Tasmania, not the Queen of
Malta.
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meblonde01
Supporter
Joined: 11 Apr 2007 Posts: 2121 Location: ,
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Posted: 02-01-08 15:55pm
Birch
wrote:
That's almost
right..."parents" should be "mother"
although it's nice to have cohesiveness in
the process...so to review, that's not
society, not prolife advocates, not
President Bush, not some dude living in
Tasmania, not the Queen of
Malta.
LOL
ok..
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sistersister
Experienced User , Rather EHEALTHy
Joined: 27 Sep 2007 Posts: 145 Location: ,
Posted: 02-01-08 16:34pm
In another thread I wrote about a
pregnancy scare I had several years a ago.
Before I took the test me and the husband
had a long talk about what we would do.
He has never had any children and I had
mine when very young. We decided to keep
the pregnancy, if I was, but to have all
the tests done and to abort if there were
any disabilities.
Our reasoning on that is that even with no
problems we would be approaching the late
sixties befor the child would be of age.
Tha caring for a disabled child would an
all consuming matter up to the end of our
lives. And the most important concern for
me was that if I had a child with Downs or
any number of other problems when I was
gone or unable to care for it it would
fall on my existing children to care for
it. I would not do that to them.
Fortunately I was not pregnant so nothing
had to be done.
I also would not want any offspring of
mine raised in an institution or by
strangers ( some caregivers are excellent
but for those with out the finances the
care is more often than not not so
great).
I'm sitting here thinking that if this was
something that happened in my twenties I
really do not know what I would have
choosen. In some ways I think it was
easier for us back then without the tests.
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manuftw82
Supporter
Joined: 02 Dec 2007 Posts: 360 Location: Vestal/LI, NY USA
Thanks: 7
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Posted: 02-01-08 17:39pm
Katrinadoodle
wrote:
It is passed. It's a genetic
disorder. I think the chances of having
another Downs child is 50/50, which is why
my aunt and uncle haven't had more
kids.
It's very unusual for a family to have
more than one child with Trisomy-13. So
that isn't. The disorder IS NOT
inherited.
And unrelated to how I know that, my
grandma had 8 kids and one had Down
Syndrome.
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Katrinadoodle
Extremely EHEALTHy
Joined: 02 Nov 2007 Posts: 1231
Posted: 02-01-08 18:41pm
manuftw82
wrote:
Katrinadoodle
wrote:
It is passed. It's a genetic
disorder. I think the chances of having
another Downs child is 50/50, which is why
my aunt and uncle haven't had more
kids.
It's very unusual for a family to have
more than one child with Trisomy-13. So
that isn't. The disorder IS NOT
inherited.
And unrelated to how I know that, my
grandma had 8 kids and one had Down
Syndrome.
We're talking about Downs, which is
Trisomy 21. Trisomy 13 is a whole
different thing.
Also, the amount of children your
grandmother had is irrelevant because of
the law of probability. The chances of
each child getting Downs is the same for
each individual child, and the amount of
previous children born with or without it
has no effect on it.
But, apparently I was semi-wrong. The form
of Downs my cousin has a rape type of
Downs that is inherited. I'm not sure how
it works, but my uncle has an extra copy
of part of the 21 chromosome? I don't know
how that works with him not having Downs,
but whatever. I'm too try and grasp it.
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o0Heather
New User, Becoming EHEALTHy
Joined: 04 Jan 2008 Posts: 26 Location: ,
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Posted: 02-01-08 18:42pm
Here is some info on the chromosomal
disorder.
Also It says somewhere in one of these
that if you have had one child with downs
you are at a slightly greater risk but it
was a very small one. 1% I believe. But
also that you should have genetic
counseling before having more children you
may have increased risk because of certain
factors, so it could be much higher for
certain people.
Joined: 02 Dec 2007 Posts: 360 Location: Vestal/LI, NY USA
Thanks: 7
Thanked:3
Posted: 02-01-08 19:01pm
Katrinadoodle
wrote:
manuftw82
wrote:
Katrinadoodle
wrote:
It is passed. It's a genetic
disorder. I think the chances of having
another Downs child is 50/50, which is why
my aunt and uncle haven't had more
kids.
It's very unusual for a family to have
more than one child with Trisomy-13. So
that isn't. The disorder IS NOT
inherited.
And unrelated to how I know that, my
grandma had 8 kids and one had Down
Syndrome.
We're talking about Downs, which is
Trisomy 21. Trisomy 13 is a whole
different thing.
Also, the amount of children your
grandmother had is irrelevant because of
the law of probability. The chances of
each child getting Downs is the same for
each individual child, and the amount of
previous children born with or without it
has no effect on it.
But, apparently I was semi-wrong. The form
of Downs my cousin has a rape type of
Downs that is inherited. I'm not sure how
it works, but my uncle has an extra copy
of part of the 21 chromosome? I don't know
how that works with him not having Downs,
but whatever. I'm too try and grasp
it.
I wrote the wrong number.
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Katrinadoodle
Extremely EHEALTHy
Joined: 02 Nov 2007 Posts: 1231
Posted: 02-01-08 19:02pm
Rare type, not rape
type. Typooooo.
|
manuftw82
Supporter
Joined: 02 Dec 2007 Posts: 360 Location: Vestal/LI, NY USA
Thanks: 7
Thanked:3
Posted: 02-01-08 19:03pm
Katrinadoodle
wrote:
manuftw82
wrote:
Katrinadoodle
wrote:
It is passed. It's a genetic
disorder. I think the chances of having
another Downs child is 50/50, which is why
my aunt and uncle haven't had more
kids.
It's very unusual for a family to have
more than one child with Trisomy-13. So
that isn't. The disorder IS NOT
inherited.
And unrelated to how I know that, my
grandma had 8 kids and one had Down
Syndrome.
We're talking about Downs, which is
Trisomy 21. Trisomy 13 is a whole
different thing.
Also, the amount of children your
grandmother had is irrelevant because of
the law of probability. The chances of
each child getting Downs is the same for
each individual child, and the amount of
previous children born with or without it
has no effect on it.
But, apparently I was semi-wrong. The form
of Downs my cousin has a rape type of
Downs that is inherited. I'm not sure how
it works, but my uncle has an extra copy
of part of the 21 chromosome? I don't know
how that works with him not having Downs,
but whatever. I'm too try and grasp
it.
And I just mentioned my grandma because I
was saying if there was a 50/50
probability of having another kid with
Down's then it must be a miracle that none
of the other children had it. And there
is a rare form of Down's it's a part of
the Translocation form. But it's
something like 1% of all Down's cases.
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Tylanas
Especially EHEALTHy
Joined: 13 Jul 2005 Posts: 12985
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Posted: 02-01-08 19:08pm
So what we've come to is what I said
before: If you're tested and the child has
downs, your next child and the ones after
that are unlikely to have it. So for me,
that's kinda like reaching into a bag of
blue ribbons and pulling out the one red
ribbon. I'd rather put it back in (abort)
and try again, since it's very unlikely
I'll get the red ribbon again.
|
Verizon-y
Extremely EHEALTHy
Joined: 29 Aug 2007 Posts: 3291
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Posted: 02-01-08 23:41pm
poopoopoo
wrote:
I know two families where
there is a seriously impaired son or
daughter. Not sure if serious Downs or
some other defect, but severe congenital
abnormality so that the person is not
capable of looking after themselves. In
both these families, the parents are now
in their 60s-70s, and the "child" is in
his or her 30s or 40s. These people have
spent all their lives looking after these
children. They get no breaks, and have
basically had to look after enormous
children day in, day out. They are now
retired, but have no way of relaxing.
Their main worries is who is going to look
after the children when they die. I have
only known these people socially, but it's
pretty clear to me that they have not
enjoyed the role they took on. My guess is
that if they knew anyone with the same
prospect, they would advise
abortion.
Exactly. I had a family like this on my
street where I grew up. Just watching
those two elderly parents trying to
wrestle that adult man (their son) with
Downs from house to car, car to house, or
whrever they were going just broke my
heart.
For his entire life the parents dreaded
what would happen to him after they passed
away. Their lives were, unfortunately,
full of despair. I'm sure there were a
few bright spots along the way, but not
nearly enough to make up for the darkness.
Rare type, not rape
type. Typooooo.