Can I Make a Suggestion For Everyone (lupus Or No) Posted: 09-12-03 22:02pm
Get a copy of all your medical records!
You will be dumbfounded.
Ladybrannon
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sue
New User, Becoming EHEALTHy
Joined: 31 Aug 2003 Posts: 25 Location: united states
Suggestion Posted: 09-14-03 20:08pm
I have gotten copies - they are correct -
did u have a problem?
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sharon
Experienced User , Rather EHEALTHy
Joined: 17 Jul 2003 Posts: 191
Records Posted: 09-14-03 20:39pm
What do you do if you can't get all of
your records? The navy retired my records
from when my hubby was in the service. I
can't find them. Also I tried to retrieve
my records from texas-doctors and they are
incomplete. When I ask they said they
don't keep every thing from past patients.
Plus I was sent from one doc to another
for awhile, also one of my doctors moved
her pratice to another city. My doctors
here ask me to get all my records from
there but I just wasn't able to. I try to
make sure both of my doctors here keep
each other up to date on my records.
Lady brannon, I have read where you
say hot baths help . I can't take a hot
bath . My skin is very sinsitive to hot
and cold. The doctor said not to take
even ahot shower, because it could burn
me. We have a whirlpool tub and I can't
even enjoy it. I was reading back
on the web page and the topic was
sunscreen. They told me to use the baby
one ( the one with the little girl and the
dog pulling at her pants) 45. I get it at
sam's club for about $8 a lg. Bottle.
The biggest problem I have is finding the
right hat. Even if I get a big floppy one
my lips burn. Even with sunscreen lip
balm. Is this just me or does anyone else
have this problem?
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LadyBrannon
Active User, Really EHEALTHy
Joined: 17 Jul 2003 Posts: 506 Location: TX
to Sue And Sharon Posted: 09-14-03 23:18pm
I would contact the military as a whole
and try to get them to help you. My fil
is a retired military officer; i'll ask
him if he can give me any advice/insight
on this.
No, there were not any problems, per
se...But I did find things I did not
know...Apparently, at 29, I have
degenerative thoracic disc disease. I had
no idea. It has been mentioned in my
charts 3x in the last 6 months!
i also did not know that, despite my
cellcept dosage, I began dropping protein
again in june. It has stopped, but still.
Of course, to be fair, I had a lot of
crap going on then...And an increase of my
cellcept immediately fixed the problem.
I also found out a lot about my recent and
past lab results. Just a lot of stuff,
you know. I just think it is a good idea
for everyone to keep an eye on their
records. It is your body after all.
Cheerio,
ladybrannon
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LadyBrannon
Active User, Really EHEALTHy
Joined: 17 Jul 2003 Posts: 506 Location: TX
to Sharon Posted: 09-14-03 23:41pm
About the hot thing...Here is something to
try...I cannot promise it will work, but
it might.
Get a bag of rice. Put it in the
microwave for 45 seconds. Make sure the
bag is okay to your touch. If it is, put
it on the offending joint for 15 minutes
or so. That way...You are only warming
that part of your body.
Try putting a safe version of zinc oxide
on your lips. It is a 100% blocker (or so
they say!) i, personally, use a base of
lip balm with sunscreen and then put my
sunscreen containing lipstick on over it.
Double the coverage!
just an idea or two!
Ladybrannon
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sharon
Experienced User , Rather EHEALTHy
Joined: 17 Jul 2003 Posts: 191
Records And Rice Posted: 09-15-03 07:58am
Thanks ladybrannon for your sugestions.
I'll try that. I"m not having a good day
to day so i'll keep this short. I feel
feverish and achy and coughing and my
throat is sore. I see my rheu. Tomorrow.
Sharon
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LadyBrannon
Active User, Really EHEALTHy
Joined: 17 Jul 2003 Posts: 506 Location: TX
Posted: 09-15-03 17:45pm
I'll be thinking about you and hoping that
all is well with the doctor (no new stuff)
and that you feel better very very soon!
I also want to sat that you really have
become a good "lupus" friend of mine.
Thank you!
Ladybrannon
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sharon
Experienced User , Rather EHEALTHy
Joined: 17 Jul 2003 Posts: 191
Thankyou Posted: 09-15-03 18:29pm
Lady brannon I also want to thank you for
being there for me and so many others!
I'm not good with the technical stuff. I
appreciate,as I know others do for you
staying on top of it. I'm feeling a
little better at this moment, but i'm
taking it very easy to night! I've been
taking short little naps all day. I am a
little nervous about tomorrow. My doctor
is very carring and easy to talk to. It's
me, I always freeze up and forget half of
what I want to tell him. I hope my notes
help. I'm pretty sure he will be refering
me to a lupus doctor at the mayo clinic in
jacksonville, florida. That's what we
last discused awhile ago.I just get
nervous any time I have to see a new
doctor! But I gotta do what I gotta do to
find the help I need, I feel a lot more
confident now than I did before I found
this web page. i'll let you know
how it goes.
I was reading back
on the web page and the topic was
sunscreen. They told me to use the baby
one ( the one with the little girl and the
dog pulling at her pants) 45. I get it at
sam's club for about $8 a lg. Bottle.
The biggest problem I have is finding the
right hat. Even if I get a big floppy one
my lips burn. Even with sunscreen lip
balm. Is this just me or does anyone else
have this problem? 
