My son was suspected of CF last year, but
a sweat test was normal. We are not sure
though as we have recently heard you can
still carry the gene and get it later as a
kid and that he should have gene testing.
He is small for age and we have had him to
an ENT and immunologist for this
nose/throat clearing that is sometimes all
day long. He did have a few sinus
infections and tried many, many meds to
dry him up and shrink nasal passages, but
they did nothing. Just had him there
yesterday and once again, lot's of thick
clear junk in his nose per the Dr. Do you
think we should bother getting tested?
List of other diseases, conditions, or
injuries and their treatment: Chronic ear
infectons - PE tubes X2, Adneoidectomy,
GTube for poor feeding/weight gain, short
stature (still monitoring), behavioral
issues, stooling/withholding issues
Diagnosis that has been suggested: failure
to thrive, ADHD or possibble bipolar,
short stature
Current medical treatment: mirolax,
prevacid, play therapy 1x per week, weekly
trips to Cleveland Clinic feeding clinic
Chronic sinusitis is present during cystic
fibrosis but it is not the major
manifestation of the condition. Cystic
fibrosis mainly manifests with lung
infections, gastro-intestinal disorders,
endocrine disorders, etc. If your
child’s medical problems are due to
cystic fibrosis, the sweat-test would be
positive; since is not, cystic fibrosis is
not likely. You can performe the genetic
testing it is likely that the defective
gene won’t be idnetified.
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This page was last updated on June 11, 2008
