Joined: 26 Jan 2007 Posts: 1857 Location: Strumica, Macedonia
Thanks: 20
Thanked:10
Posted: 04-22-08 05:29am
I'm really sorry you had to go through
another medical problem.
Have you sometime experienced blood in
your urine?
Are you prone to frequent UTI?
For how long you are having this sleeping
problem?
Have you tried sleeping pills (but didn't
find them helpful)?
I think you may suffer from Delayed Sleep
Phase Syndrome, having a slightly
different body clock that is out of sync
with everyone else’s. You have
difficulty falling asleep and difficulty
waking up because your natural biological
clock is out of phase with the sleeping
and waking times you need to go to work.
This is a circadian rhythm sleep disorder
and one of the most common complications
of sleep-wake patterns.
I'll try, to be more informative and
supportive for everything you wrote, in my
next post.
Have a good, healthy day!
Marija
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lilies88
New User, Becoming EHEALTHy
Joined: 22 Apr 2008 Posts: 1
citric acid allergy?? Posted: 04-22-08 15:49pm
Hi,
I found this site through google and saw
some good posts on citric acid allergies
so I'm hoping someone can help.
I had a history of a lot of allergies as a
child, and grew out of most of them. As
an adult, I have only seasonal allergies.
Over the past 6 months, I've had swollen
lymph nodes in several areas that do not
subside. Sometimes they get worse, but
they never get better. I have been tested
for everything under the sun. Have been
to a dermatologist, surgeon,
rheumatologist, had CT scan, had abdominal
ultrasound, all okay. The only thing that
was "wrong" was a positive ANA test but
rheumatologist confirmed it is not lupus.
The only other symptom I have is scalp
pain and hair loss. The two seem to be
connected - I'll get seering scalp pain
and will find hairs falling out in the
area of the pain. I'm now thinking it's
tied to food. For the past few days I've
tried to do an all organic diet to rid my
body of toxins and hope to identify the
source of the allergy. The other day I
ate some fresh pineapple and my tongue
swelled up and the scalp pain flared up.
But it didn't happen when I ate pineapple
last week. Yesterday the only foods I ate
were bananas, organic apples, organic
pears, rice cakes (totally plain, no salt)
and tuna. In the afternoon I decided to
try some organic grape jelly and the pain
and hair loss started about an hour after.
The only ingredients are grape juice,
water, pectin and citric acid. Today all
I ate were the same fruits and rice cakes
and everything was fine (so I eliminated
those as causes). This afternoon I
decided to try skittles. Within 45
minutes, the same symptoms came back. Now
these have many other ingredients, but the
only thing in common with the jelly is the
citric acid.
I don't know what to do, I do have an
appointment with an allergist this week.
But can they test for citric acid
allergies? And these are not normal
symptoms (previously my allergic reactions
were hives or itching) so is it maybe not
an allergy but some other immune reaction?
Help!
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Seraph
Experienced User , Rather EHEALTHy
Joined: 22 Jan 2008 Posts: 276 Location: , South Africa
Thanks: 2
Thanked:0
Posted: 04-23-08 11:02am
Hi Lilies
Heh...I know how you feel. I am thinking
it's similar as what my sister's dogs are
having problems with. For a long while
they were o.k. with a new dog food and
then suddenly one of the dogs started
having epileptic fits. The vet told my
sis that it is due to "Saturation". In
other words, your body can tollerate a
certain amount of a specific substance
(like citric acid) and then it start's
telling you "No more...stop eating that!".
That might be why it seems that some days
you are more susceptable to certain foods
than other days. The one day you would be
fine with a whole bag of crisps and the
next you can't even tolerate one crisp
containing citric-acid.
What causes this intolerence isn't known
to me at this point, but you might want to
look at your vitamin intake? It might
just be your bodies way of saying that you
have too much of one type of vitamin and
too little of another. And yes, too much
vitamins/minerals can be bad for you...
Marija
I have never had any problems with blood
in my urine untill now. Obviously, now
with the stent and the pieces of the
broken up stone running around inside me,
it's like grape juice most of the time. I
am trying to drink as much fluid as I can
though.
I haven't had any UTI before this either.
Both my dad and sis has had kidney- as
well as gal-stones but as far as I know,
it's not really hereditary. It might just
be that our family is more susceptible to
it due to the broken Fibrilin gene causing
our bones to get hurt more often and our
bodies producing excess amount of calcium
to cope with the constant repairs.
I have always had problems going to sleep
at "normal" times. The one thing that I
noticed very clearly as of late again, is
that when I work late, my mind seems to
get sharper the later it gets although my
body keeps on getting more and more tired.
It's like my body and my brain are on two
different sleep patterns. Also, if I try
to force my self to go to sleep earlier, I
end up tossing and turning so much that I
eventually only get to sleep very late and
wake up more tired than usual.
As for sleeping pills, they usually cause
more problems than anything else, causing
me to fall asleep during the day rather
than at night.
You have been very helpfull and I truelly
appreciate it. My health is turning out
to be a rather complex jig-saw puzzle with
a heck of a lot of inter-related issues.
So it is very difficult to post these
topics in different areas, as I would have
to explain everything all over again.
This is the major problem with getting
help from the medical professions as well,
as they see every problem individually
instead of as a part of the larger MFS
problem.
Even my psychological state might be
attributable to the MFS disorder making it
appear as if tho I present with Bipolar
disorder. Difficulties with sleeping,
digestion, fitness and so forth most
definately has an impact on one's mental
state of being and it has been proven that
MFS cases can present with Anxiety due to
problems with their lungs.
I hope all is well with you. All this
time I am dumping one problem after
another and never enquired as to how life
is treating you
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MandMs
Extremely EHEALTHy
Joined: 26 Jan 2007 Posts: 1857 Location: Strumica, Macedonia
Thanks: 20
Thanked:10
Posted: 05-05-08 04:43am
Thanks for asking. I guess I'm doing
well, without some major medical problem,
but, like everyone else nowadays I'm
stressed and nervous to get with every day
life (working, studying, being a mum,
taking care for the house and
family...sometimes is too much and I just
wanna to have opportunity to switch myself
off and be only a watcher)
I'm very glad you feel comfortable to
share all of your health problems with me.
It's kind of pleasing (I hope you find me
as a friend to talk to) and I'll always do
my best to be supportive and helpful.
I agree with you that our mental state is
connected with how is our body
functioning.
Trying to identified the problem, finding
the "name" for it, learning to live with
that (like in your case), I guess takes
more energy that we usually have.
Please, try not to be disappointed, but,
show yourself once again, that you are
powerful enough to control this condition
(courage is sometimes only our will to TRY
AGAIN TOMORROW)
I'll suggest you to take more seriously in
consideration the Delayed Sleep Phase
Syndrome, as I'm sure you have it. It
needs to be treated (sometimes the
treatment is very difficult and the right
one can be given only from the sleep
specialist) because very rare goes away on
its own.
Also, depression or other psychiatric
problems are present in about half of the
adult DSPS patients, which is about the
same for people that suffer from other
forms of insomnia.
About your kidney's condition, I'm curious
if you underwent some kidney tests and
examinations.
Can, you, please ask your kidney doctor or
the one that's following you as a patient
with Marfan's about Medullary sponge
kidney.
It's an appearance of the inner part of
the kidney (is characterized by
ectasia-widening and cystic formation in
the medullary collecting duct, cysts give
the kidney the gross anatomic appearance
of a sponge)
This is usually, an asymptomatic
nonprogressive condition, but, when there
are symptoms, kidney stones, blood in
urine and urinary infections are present.
The Medullary sponge kidney, can be a part
of a Marfan syndrome.
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