Joined: 15 Feb 2008 Posts: 100 Location: Chicago, IL
cyst on right side of TMJ condyle Posted: 02-15-08 17:26pm
I been having pain since I had some dental
work early 2006. Recently, in May 2007,
and then October again, I had MRI done,
both times it showed a cyst on the right
side of TMJ condyle. It is approximately
0.3 mm in size and could be seen as a
white dot on the MRI. What's hurting
me most is that I am unable to function
properly anymore. I have strong desire to
continue my education, work, but I am
unable to do so because of pain. This
strong pain recently was also joined by
loss of energy, serious loss of appetite.
I now know that I can end up in hospital
if I do not force myself to eat. I used to
eat 3/day rich food. Now I depend on soy
milk, soft foods such as fruit. Today I
did not eat yet, it's now 3 pm. I do not
want to eat due to extreme pain,
difficulty getting up. What's more
stressful is that I am young (24 yo male)
and never faced such condition before,
only thing that I can compare this to is
an instance of very bad flu (when body
hurts, you cannot get out of bed easy).
To complicate things more is facing
egoistic doctors who are so used to people
complaining of aches that when you say
pain, or even worse, chronic pain, and it
passes their heads in one ear and out
next. It's hard toy
understand why doctors do not take pain
serious and look at it pervertedly. I
almost feel that unless patient come in
with a visible tumor on his head, doctor
is not willing to do much. Even then, who
knows
how some doctors might response, I bet
some might yawn and look the other way.
It is strange, that when I saw oral
surgeon, he was more concerned about a
"cyst" which he though I had in my
mandible (jaw) on the other side of the
face, even suggesting surgery to remove
it! I told him, "Doctor, I do not care
much for that, I have a problem on my
other side of the face, remember - it has
a cyst"? To which he continued, I do not
think you have a TMJ problem, appearance
of cysts is quite common and unusual, I
would not be concerned about that." This
is nothing compared to what the other oral
surgeon said after I left him a CD with
MRI results. He called me and said that he
does not "see anything wrong". Now I am
waiting to see oral surgeon at UIC who is
the head of the department there. After my
first visit there he prescribed physical
therapy and appeared very unconvinced. He
also conirmed a possibility of a cyst on
the other side of the jaw and suggested to
remove it, while not showing any care for
the one on the other sided in the condyle.
It almost feels as if they do not know or
do not want to do anything surgical about
my TMJ, although they would be willing to
operate on "a cyst" on the other side of
the jaw which is not causing a bit of a
problem and was found coincidently.
It makes me feel that it is better to keep
quite about your feelings, and hope that
your body starts shaking, your skin
becomes pale, body temperate changes -
otherwise, you can talk all you want. One
more thing, DO NOT dare to use medical
language or appear smart in front of the
doctor, they might just label you
"obsessive compulsive person who reads
everything too much, schizoid paranoid
type personality." It appears there is a
huge emphasis on SYMPTOMS versus SIGNS in
medical community. I am hoping to get into
occupational therapy masters program, and
from my initial reading of "Occupational
Therapy by Willard and Spackman" it is not
uncommon for doctors to show lack of
concern about overall well being and
health of a whole person. Doctor's will
cut of the arm and send the patient home,
not realizing how it might impact his/her
ability to function.
Most distressing is not knowing what
future holds or what can be done. I cannot
imagine how to continue normal life and be
able to take care of myself long term in
such conditions, I just feel like I'm
wearing completely down, barely able to
shop for groceries, cook, clean up, talk,
do homework for school.
By the way, I have recently developed a
strange lump, which was diagnosed as a
salivary gland inflammation and also a
small nodule on the back (dorsal) right
mandible.
Here is the copy of MRI report, which I
scanned and ran through OCR program.
MRX1 -%u20AC751
10/09/07 06:06 PM
INGALLS MEMORIAL HOSPITAL
-------------------------------------
M --
MR#: ----------------
INDICATION: PAIN. RIGHT JAW PAIN.
RIGHT SIDE:
THERE IS A TINY HIGH SIGNAL ROUND LESION
IN THE RIGHT MANDIBULAR
CONDYLE, BRIGHT ON T2 IMAGES, SERIES 6
IMAGE 9, CONSISTENT WITH A TINY
3 MM CONDYLE CYST.
THE RIGHT SIDE CLOSED-MOUTH IMAGES SHOWED
THE POSTERIOR BAND AT 11
O'CLOCK POSITION. THERE WAS NO TRANSLATION
FROM CLOSED TO OPEN MOUTH
POSITION. THE POSTERIOR BAND REMAINS IN
THE SAME POSITION.
LEFT SIDE:
THE BONY ARCHITECTURE LOOKS NORMAL. THE
POSTERIOR BAND IS FLAT AND AT
THE 12 O'CLOCK POSITION. THE LEFT SIDE
SHOWS MINIMAL TRANSLATION TO
THE OPEN MOUTH POSITION WITH THE POSTERIOR
BAND MOVING TO THE 1
O'CLOCK POSITION.
IMPRESSION:
1. POOR TRANSLATION RIGHT MORE THAN LEFT
SIDE FROM CLOSED TO*OPEN
MOUTH POSITION.
2. RIGHT MANDIBULAR CONDYLAR CYSTS.
DICTATED ON: 10/08/2007 03:18 PM
TRANSCRIBED ON: 10/08/2007 03:19 PM
SIGNED ON: 10/08/2007 07:12 PM
LAST PAGE
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Tmddyan
Moderator
Joined: 13 Jun 2006 Posts: 4349 Location: post falls, id usa
Thanks: 93
Thanked:63
Posted: 02-17-08 15:46pm
hey i had one of these and i used heat on
it and it went away. its worth a try
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catswold
Supporter
Joined: 10 Oct 2005 Posts: 404 Location: Flint, Michigan
Posted: 02-17-08 17:16pm
You are discovering the oddity of TMJ in
that the side that is NOT in pain is
usually the problem side. This seems to
be quite common and normal for jaw
problems. The jaws are actually one jaw
that must work together to do its job.
Balance is necessary. When one side has a
problem (disc displaced, etc.), the OTHER
SIDE experiences the pain.
If I were you, I might concentrate on
"fixing" the side with the cyst. Most
cysts, I believe, are quite harmless, but
it might be forcing your jaw just slightly
out of balance and causing the pain on the
side without the cyst. I know just about
nothing of cysts except that cysts on the
ovaries can burst and cause a lot of
problems. I would definitely take the
cyst more seriously.
God bless...
Carol
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edgaras
Supporter
Joined: 15 Feb 2008 Posts: 100 Location: Chicago, IL
Posted: 02-17-08 21:56pm
Thank you Carol for the blessings, prayers
are all that keep me going. I cannot
imagine anyone else surviving such a
struggle. I can tell that medicine
provides some comfort, but it's it feels
like a drop in the ocean.
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edgaras
Supporter
Joined: 15 Feb 2008 Posts: 100 Location: Chicago, IL
Posted: 02-17-08 23:33pm
Tmddyan
wrote:
hey i had one of these and i
used heat on it and it went away. its
worth a try
I am not sure what you
had, are you sure it was a growth
associated with a condyle, and not a
collection of fluid?
If you would like to look at my profile
you would see the imagine with a black
dot - a negative image cropped from an
MRI. Just click on the image by my name.
THe image is very much shrinked but you
can still see the condyle.
By the way, would you happen to happen any
of your MRI/CT scans?
I am trying to put my online so it can be
compared to other patients in case some
carious person comes along.
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Tmddyan
Moderator
Joined: 13 Jun 2006 Posts: 4349 Location: post falls, id usa
Thanks: 93
Thanked:63
Posted: 02-19-08 15:01pm
yes i have my mri scans but im not going
to put it here.--im sure it was what it
was--had a diagnosis
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webo
New User, Becoming EHEALTHy
Joined: 08 Jan 2008 Posts: 22 Location: , Texas
Posted: 02-20-08 22:43pm
edgaras,
I certainly understand your frustration
about doctors. I received very little
smypathy from one of my OSs, even after
the arthrocentesis -- which he said would
only help, or keep my jaw the same --
caused my jaw to lock and redcued the
opening by 21mm. He seemed very
unconcerned. His office even badgered me,
saying they were going to send my account
to a collection agency -- even though
their filing mistake had precipitated the
delay in my insurance company paying the
bill.
I'd suggest that you just keep trying
until you find a doctor who is
sympathetic. They are out there. It's
frustrating finding them, but it's better
than sticking with somebody who has no
empathy.
My prayers are with you. Be strong and
keep the faith.
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edgaras
Supporter
Joined: 15 Feb 2008 Posts: 100 Location: Chicago, IL
arthrocentesis Posted: 02-27-08 02:08am
I am very sorry to hear that
arthrocentesis was not helpful, and thank
you very much for posting and letting us
know about it because one of the OS
offered this to me as well.
I went to major university clinic here in
Chicago and this OS was so agitated and
upset that he would even explain to me as
to possible reasons for having this pain,
and appeared to be bothered, and told us
(me and my mother) "he excepts to be not
disturbed as he is typing the notes on his
PC". It's just unbelievable, even my
mother has not seen anybody in her life
act the way he did. I am happy there is
Commerce Regulation department, otherwise
some doctors would probably not fear
anything at all.
Given that he is working in state
university, I did consider filing a
complaint, us he didn't even look at the
MRI CD which I brought in 2 months ago
outside the time of our appointment. I
wonder if it's the university policy
perhaps that makes it difficult for doctor
to review the record outside the
appointment time.
At the time of my 2nd appointment, OS
concluded that radiologist report was
wrong, and that the disc was not stuck or
displaced as reported, based on the one
set of images, which he viewed over and
over again, to conclude that there was a
fuild arround the joint.
He didn't give an explanation for such
conflicting view, all he said was
"radiologist don't know everything, not
even me knows everything."
I have to say, he tried his best, and I
appreciate he thorough exam. And during
first appointment, he even phoned the
radiologist and left a message saying that
he had trouble viewing the TMJ MRI
results. I have compassion for the person
as he works in public university which has
large inflow of daily patients - must have
had impact on his psyche. Even though he
said that I was the one with
attitude problem and that's why "nobody
wants to treat me".
Moral of the story - arrogance and small
percentage of patients that do come in
with psychogenic pain conditions will lead
to doctors not listening to patients, and
even assume they are inflicting the harm
on themselves (yes, this doctor actually
said, "I wonder if you are putting your
fingers inside your month and touching the
area to make it red."
This reminds me of the Neuroscience course
which I took as undergrad - professor
brought in fine sand paper and a regular
sheet of paper, and gave it to students,
and then asked to close the eyes and
proceed to find out how many of the
student felt the difference on the
surface. About 1/3 of the students didn't
even feel the difference while I sat there
and asked myself - do they have fingers or
plastic prosthesis? It appears that some
people, including doctors have such
limited sensory capacity, that they would
probably never be dependent upon to
examine patients for subtle signs.
Good news - the other appliance (nighttime
one for upper jaw) that TMJ dentist made
is helping the pain although it was very
hard to get used to, recently I forced
myself to wear it as the pain became
unbearable. It appears to move my lower
jaw forward, just as it was before I had
orthodontic treatment, which I am sure
didn't help what might have been the
underlying condition.
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edgaras
Supporter
Joined: 15 Feb 2008 Posts: 100 Location: Chicago, IL
new image Posted: 02-27-08 02:40am
I have uploaded new image.
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edgaras
Supporter
Joined: 15 Feb 2008 Posts: 100 Location: Chicago, IL
new picture Posted: 02-27-08 02:43am
I have uploaded a better quality picture
from the MRI set which shows the condyle
and the "condylar cyst". I was able to
view using 3DView program.
As far as the cyst goes and the
surrounding disk, I have trouble
understanding and not really sure about
displacement. I hope it can serve for
comparison purposes to anybody who might
have interest or similar situation.
Any input would be appreciated.
Some examples (not my pictures).
courtesy of public domain site of
rochester.edu -
Here is the normally positioned disk
image:
and abnormal tmj disk position,
From article writen by Shalmali Pal,
AuntMinnie.com ; . Images courtesy of Dr.
Jessica Lee. .
sagittal MR image obtained in closed-mouth
position shows anterosuperior TMJ
compartment and disk (arrows) anterior to
condyle:
sagittal MR image obtained in maximal
open-mouth position shows anterosuperior
TMJ compartment and disk (arrows) superior
to condyle:
bilateral, right anterior disk
displacement on MRI preoperative:
postoperative MRI - no changes:
Postop lateral displacement of right
disk:
Temporomandibular joint (TMJ) of
32-year-old woman. Diagnosis of disk
displacement with reduction was based on
MR imaging findings. Longitudinal
high-resolution sonogram obtained in
closed-mouth position shows anterosuperior
TMJ compartment and disk (arrows) anterior
to condyle (arrowheads). E = articular
eminence, D = disk, C = condyle. Emshoff
R, Jank S, Bertram S, Rudisch A, Bodner G,
"Disk Displacement of the
Temporomandibular Joint: Sonography Versus
MRI," (AJR 2002; 178: 1557-1562).
Courtesy: Oulu University Library:
lateral pterygoid muscle (LPM) can be
observed
(C = condyle)
Anterior gap (arrow) between the superior
belly (SB) and inferior belly (IB) can be
seen.
superior belly of the LPM (SB) is shown
Image C:
anterior displaced disc with deformity is
found (arrow), but the LPM cannot be
observed. (C = condyle).
Normal imaging of the LPM obtained from
volunteer and asymptomatic TMJs.
A) Mouth-closed, oblique sagittal, Proton
Density (2000/20) (1.5-T magnet) left TMJ
image of a 28-year-old male volunteer who
had no suspicious clinical signs and
symptoms of TMD.
The normal LPM structures show as a
fan-like muscle from the origins to the
neck of the mandibular condyle or disc. A
high signal layer of fat tissue separates
the superior belly of the LPM (SB) form
the inferior belly of the LPM (IB). A
high-signal fat layer can be observed
between the two bellies (arrow). Near the
insertion part of the LPM the two bellies
are fused with each other (C = condyle; D
= disc).
Hypertrophy of superior belly of the LMP
shows in images of a 52-year-old female
with chronic facial pain, jaw movement
pain and TMJ pain on right side for nine
years, symptoms released after splint
treatment:
In mouth-closed image (oblique sagittal,
3000/14, 1.5T, 3-mm-thick) of left TMJ,
hypertrophy of the superior belly (SB) of
the LPM is suggested by the evidently
enlarged size of the belly (compare with
the superior belly of the LPM of right TMJ
in image B). Disc is anteriorly displaced
and deformed (black arrow). Effusion can
be found at bilaminar zone (white arrow).
(B) The LPM shows as normal on
mouth-closed image of right TMJ (oblique
sagittal, 3000/14, 1.5T, 3-mm-thick). The
disc shows anterior displacement (arrow).
Osteoarthritic change of the condyle can
be observed.
[img]http://herkules.oulu.fi/isbn951426643
9/html/graphic44.png[\img]
(B) Atrophy of the superior belly of the
LPM (arrow) is revealed in a 35-year-old
female who suffered pain on jaw movement,
had difficult in mouth opening as well as
facial pain on left TMJ for the past two
years. The symptoms could not be improved
by splint treatment. Painful locking and
severe palpation pain on the LPM are
detected on the left side. In
mouth-closed, oblique sagittal image of
the left TMJ (3000/14, 1.5-T magnet),
atrophy of the superior belly of the LPM
with large area high signal fatty
replacement (arrow) is noted. The inferior
belly appears normal. Anterior disc
displacement (D) and osteophyte of the
condyle (C) are found. The displaced disc
cannot reduce in maximal mouth-open
image:
Imaging abnormalities of the LPM can be
found in TMJs with disc in normal
position. The normal LPM may be observed
in TMJs with severe osteoarthritic changes
(C = condyle). (A) Atrophy of the LPM
superior belly in a 36-year-old female who
has had progressing pain in the TMJ,
facial and temporal pain on the right side
for five years. Palpation pain in the LPM
and movement pain in both TMJs. The
mouth-closed oblique sagittal PD (3000/15)
(1,5-T magnet) MRI image of the right TMJ
reveals atrophy and fatty replacement in
superior belly of the LPM (arrow). Disc
appears in normal position. In maximal
mouth-open images bilateral TMJ
hypermobility is found. (B) Normal image
of the LPM is found in a 35-year-old male
with painful locking, crepitating and
movement pain in right TMJ, palpation pain
of LPM and head-neck pain on both sides
for three years. Pain symptoms have been
released evidently after splint and
psychical therapies, but mouth-opening
limitation became worse. No palpation pain
of the LPM and movement pain on both TMJs,
slight palpated pain on right TMJ. The
width of mouth opening is only 15mm.
Mouth-closed oblique sagittal, PD image
(3000/20, 3-mm-thick) of right TMJ shows
severe erosion on the condyle (C). Disc
becomes thinning (arrow). The LPM appears
normal:
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edgaras
Supporter
Joined: 15 Feb 2008 Posts: 100 Location: Chicago, IL