Making Verbal Noises While Seizing... Posted: 05-04-04 12:52pm
I have been told that I look like they
exorcist movie when I have a gran mal and
I make noises sometimes. I make moaning,
groaning or whatever, as I am really
seizing hard. I know sometimes when I am
actually somewhat aware when I am fighting
it, it hurts and I have heard myself.
But I don't know unless I am told if I
make noises after I give in and let it
happen. Does anybody else make noises?
Is this normal.
|
littlehunybunny
Active User, Really EHEALTHy
Joined: 28 Mar 2004 Posts: 644 Location: Los Angeles California
My Bf Posted: 05-04-04 12:59pm
My boyfriend has epilepsy, and he makes
noises. He usually just has staring
spells, but he starts breathing funny, the
worse the seizier (sp??) the more noise he
makes. The first time I saw him have a
bad one, I heard him before I saw him. I
am sure its common.
|
sami_1982
Experienced User , Rather EHEALTHy
Joined: 13 Dec 2003 Posts: 200 Location: Australia
Hello Posted: 05-04-04 14:20pm
Sometimes when I have a real bad seizure I
have been told I make a hight pitch
squiel, like the old kettles when they
boil, like letting off steam. I can feel
this. It feels like its all comming out
of my head. I also fight it all the time.
Well I try to.When it takes me over I
call it the lightening. I dont see
anything else but black and lightening.
After my arm is dead usually my left arm
because I am on my left side. I hate it.
Then a few moments later I regain my
feeling in my arm. But I am still very
weak. Also its as if I have been crying
and crying. I always make werbal noises.
When we tell our neuros they say nope.
You cant talk during a seizure. And I
have also been told I look like the
exorcist. And now when I close my eyes to
go to sleep.I feel like I am not me. I
have mood swings, when I close my eyes I
feel like my back wants to bend me in half
or that I want to stand on the edge of my
bed. Sometimes I feel like did I just do
that to myself. And ppl around me say no
way. No one could fake that. With every
seizure I have its like a grand mal. And
if my partner talks to me I can hear her,
its like I still know I am not alone,
otherwise I have no idea who is there
because I cant see anything. I have my
conciousness impared I think but I am not
fully sure. I have no abnormal signs in
eegs except for stress waves and I am
healthy and still I cant get this thing
under control. I still dont know what
type of epileptic I am. But I am thinking
I am partial. And that its very much to
do with stress.
|
RyGuy
New User, Becoming EHEALTHy
Joined: 06 May 2004 Posts: 19 Location: MD
Posted: 05-06-04 05:26am
My husband has this too. When he has
seizures they are almost always grand mal.
He makes noises also. I wonder if he can
feel it, because he yells out in pain
almost and cries really hard. One time he
yelled the word "no" really loud. But his
seizures are pretty violent and the worse
they are the more noise he makes.
It didn't occur to me that he might be
able to hear me during one until I read
this thread. Next time i'm going to try
to talk to him.
He is also sore for days afterwards, and
has all kinds of rug burn, scrapes,
bruises, unexplainable marks from just
thrashing about.
Like another poster, they cant find
anything wrong with him. They don't know
why he has it or how he can rid it. But
they do know he has tonic clonic.
Another thing, he was diagnosed with it at
age 25. He has never had a seizure in his
life, and at age 25 he had one... Was
taken to the er, and they diagnosed it.
He's had it ever since. He hates it as
anyone would. I do what I can to support
him and make him feel loved. And not to
think about it so much.
