hi. good to hear from you. hope you are
taking it a little easier today. remember
what i said in one of my first posts to
you. when you have heart problems and have
days when you feel good we tend to overdo
it. sounds like you are! please take it
easy! do not make yourself worse. i had a
cardioversion very early this am. i just
woke up from it a while ago. my heart rate
is now 100. still a fever. it is 101. it
seems like it goes down and then goes up
as the day goes on. what do you think of
that. thank you for the input on what i
asked you about the surgery. you are very
helpful to me. i should ask the cardio but
i like to ask you first. this way i look
smart before i blurt out something
unintelligent. maybe green nailpolish for
upcoming st patricks day. thank you for
that advice also. last night i started to
read about stem cells. i never knew you
can use your own. also they can grow heart
valves from stem cells. i hope i read that
right. if i am wrong i will blame it on my
medication. haha i still feel weak. at
least my heart rate is not as annoying.
my trans cardio said luciana can stay with
me for a couple hours as long as i do not
exert myself. i am in bed how can i exert
myself. its pretty bad if making a
movement is exerting myself. i do not
think its at that point yet. the trans
surgeon talked to me about the bivad and
some of his concerns. i will tell ya about
it later. my lunch is here. believe it or
not i am very hungry. they made me fast
for the procedure. only gave me some jello
when i woke up. i cannot eat meat today
because its friday. they gave me mac and
cheese. it looks good. lots of cheese. i
am praying for you. hope your students are
doing better. hope to hear from you soon.
janine redsoxgirl
|
jrod
Experienced User , Rather EHEALTHy
Joined: 30 Jan 2008 Posts: 188
redsoxgirl Posted: 03-14-08 17:17pm
Hi, Just got out of school for spring
break. I'm looking forward to some time
off. You were right about pushing it. My
heart needs a break.
How do you feel after the cardioversion?
You said your heartrate was at 100. May be
it will drop a little more. Did the use
paddles or chemicals for your procedure
this morning. Who did it? Maybe it will
help you strengthen enough to bring down
that temp. I hope so. You don't have to
feel unintelligent asking questions . You
are very up on your situation. We are
learning from you. You mentioned some
concerns the trans cardio had and,again,
about the bivad and some other things?
Yes stem cells can be obtained from your
own body. Bone marrow, skin and thru blood
work. They can grow valves from the cells
but with a mech. valve won't happen. Still
hope they get back with me soon. I'll be
fine.
Hope you could spend some time with
Luciana today and didn't EXERT yourself
too much. Green sounds ok. Love Mac and
cheese. Was the Chicago song You're My
Inspiration?
Hope the kids are all good when the break
is over. I'll miss them. Gotta go, taking
Carol out to dinner. Mexican food.
Don't forget to write .Look forward to
it. Everyting's Good. God bless you.
Jerry jrod
|
redsoxgirl
Experienced User , Rather EHEALTHy
Joined: 01 Mar 2008 Posts: 183 Location: ,
jerry jrod Posted: 03-14-08 18:43pm
hello. i am happy you are on spring break.
you can finally rest. i know you over did
it. the stem cells will come. my prayers
are on it. i love mexican food! tacquitos
are my favorite. you better not be eating
too much salt! that will not make you feel
any better. luciana came. we watched snow
white on the portable dvd player. she was
very good. she threw a fit when it was
time to go home. i hated to see her cry
but i love that she misses me and has not
forgot about me. that sounds terrible. you
know what i mean. i want to be with her
all day. i am just thrilled they let me
see her. my heart rate is 105 now and my
temp 102. it was a cardioversion with
paddles. it was risky but it needed to be
done. my chest is a little sore from it.
they are concerned with the size of the
bvd. am in the middle. the pediatric will
fit like a glove. it may be uncomfortable.
and also i have and have had lots of blood
clots and a side effect of the bivad is
blood clots. my coagulation and heart rate
will have to be monitored closely. no big
deal. i hope i explained that right. i am
glad i sound intelligent. sometimes its so
hard to understand everything said to me.
i also learn from you. tell carol i said
hello. how is your rett girl? i hope the
family listened to you. you got my wedding
song right. when i plan an event that
needs music i never go wrong or went wrong
i should say with earth wind and fire. got
to go. you better have your feet up with
the remote control in your hand after
dinner. looking forward to hearing from
you. redsoxgirl janine
|
jrod
Experienced User , Rather EHEALTHy
Joined: 30 Jan 2008 Posts: 188
redsoxgirl Posted: 03-15-08 08:51am
Hi,
How about some hot weather. 92 down
here. It's not even spring. Wish you were
out enjoying mother nature. Gonna do some
gardening this week. Very relaxing.
What's going on with you? Anymore on the
bivad. Since you are so small, the
pediatric makes more sense. On top of that
you can suck your thumb and watch the
blood flow. A little funny. Blood clots
can be a problem so they will probably
keep your anticoagulation numbers quite
high. It will be worth it. How about that
fever/ Down at all? Has your trans cardio
discussed anything else with you? I was
going to ask you what meds you were on
before you entered the hosp. I'm sure i'm
on some of them. Coumadin for sure. Hate
it.
Hope you can spend time with your family
over the weekend. That would be nice.
I've been asked to consult on a couple
of watergardens over the break. That's
what I did after the dealership. Just
consulting ,it's hard work. The results
are gorgeous. I think one might be a
waterfall. They are very restful. Enough
about me. Please write when you can. I
look forward to it. Everything's good. God
bless you.
Jerry jrod
|
redsoxgirl
Experienced User , Rather EHEALTHy
Joined: 01 Mar 2008 Posts: 183 Location: ,
jerry jrod Posted: 03-15-08 09:59am
good morning. wow 92! we will not see that
temp here until july or june if we are
lucky. i love watergardens. i always
wanted to get a waterfall near our pool.
just know your limits. i love to plant
flowers it is relaxing. just make sure you
drink alot when you are gardening
especially because it is hot. ha ha about
sucking my thumb. i saw my huband he
brought me breakfast and we ate together.
he has to work today. he is trying not to
take too much time off so he can save it
for the bivad or transplant. luciana will
come later. my cardio has not really said
anything new. except the pediatric device
will fit but not much room. the adult is
too large and the pediatric may be
uncomfortable. i do not care just so one
can go into me. my temp is 101. i think it
is about time it breaks. i never knew a
fever can last this long. my medications
were and are with a few added that i am
not sure of digoxin now lanoxin vasotec
lasix coumadin coreg procanamide and
the antibiotic and nitroglycerin. do you
take the same? i have to have a kidney us
done again. the trans cardio said it is in
minor distress. nothing to worry about
yet. just keep drinking and i may need a
medication. it is a result of my low ef.
enjoy your day. please write if you can.
praying for those stem cells. i enjoyed
hearing from you. cya janine redsox
girl
|
jrod
Experienced User , Rather EHEALTHy
Joined: 30 Jan 2008 Posts: 188
redsoxgirl Posted: 03-15-08 18:18pm
Hi, How is your day going? Any more news
from the doc?Is your fever getting any
better and how's the chest pain? I think
it's about time that fever breaks too. I
wanna start discussing your new bivad. Or
even better your new heart. Tell the trans
cardio that you don't mind if he ruins
your weekend with an operation. The fever
has lasted a long time but your health is
so compromised that nothing's gonna be
easy. But yes it's about time. Coreg is a
good drug. That's what my cardio increased
on me. It seems to have worked some. Hope
only minor problem with kidneys.
Got back from buying some plants, or I
should say alot of plants. It's suppose to
cool down tomorrow , about 80. I am
drinking alot of water MOM, Thankyou. You
can build a waterfall right at the edge of
a pool. It's easy and fun. You can even
hook right into the existing pump Iv'e
done many. I love them.
So ok lets really believe that it's all
going to happen soon. Don't forget that
Easter egg hunt. Gotta go and make supper.
Talk to you just a little later. Write if
you can. Everything' God loves ya.
Everything's good.
God Bless,
jerry jrod
|
redsoxgirl
Experienced User , Rather EHEALTHy
Joined: 01 Mar 2008 Posts: 183 Location: ,
jerry jrod Posted: 03-15-08 21:31pm
hello. you sounded like you had an
enjoyable day buying your plants. you may
have talked me into the waterfall for the
pool. my husband by the way his name is
jonathan wanted one last year. what did
you cook for supper? i know i would rather
be telling you about the bivad or heart
rather than my fever and heart rate. soon.
the fever cannot stay forever. i do have
chest pain and still a temp of 102. my
heart rate is let me look 112. my family
did visit but i wanted to sleep. they
stayed so long. jonathan tried to hint for
them to leave but you know a bunch of
italians they do not want to stop talking!
luciana did not want to leave again. so
jonathan went and did some errands and
left her with me and got her when he was
done. she fell asleep so it was easy to
take her home. my kidney is stable. he may
start me on some medication for it. i do
not know much about the kidneys. just the
basic things. my cardio said that the
myocarditis i have is a severe case of
it. it will take a while. i am glad you
drank lots of water. just making sure you
do not overdo it. praying for the stem
cells. it will be so exciting when i can
send you a message that i am getting my
bivad. luciana will love an easter egg
hunt. it will be her first one. looking
forward to hearing from you. i am going to
sleep now. i hope no one has any tests
left for me tonite. they did take blood
from my foot. at first was weird after
that was ok. looking forward to hearing
from you. janine redsoxgirl
|
jrod
Experienced User , Rather EHEALTHy
Joined: 30 Jan 2008 Posts: 188
redsoxgirl Posted: 03-16-08 08:56am
Good morning,
Hope you had a good night. I've been a
little under the weather. Maybe bug ,maybe
heart. How's the fever? I guess it will
take some time. I'll write a little later.
Gonna sit back. Hate missing church.
Everythin's good.
god bless,
Jerry jrod
|
redsoxgirl
Experienced User , Rather EHEALTHy
Joined: 01 Mar 2008 Posts: 183 Location: ,
jerry jrod Posted: 03-16-08 09:58am
good morning. you better sit and relax
today. i did not want to say anything but
you should not have been out yesterday.
you needed to relax a couple days. you
better call your cardio. what are your
symptoms? i also feel terrible. having a
really hard time breathing today and just
very lethargic and a terrible headache. i
still have a fever 103. enough about me.
please take it easy! you want to be strong
for the stem cells. i am praying for you.
say your prayers at home. god is
everywhere not only church. hope to hear
from you later if you are up to it. if you
do not feel like writting a lot just let
me know how you are. take care janine
redsoxgirl
|
jrod
Experienced User , Rather EHEALTHy
Joined: 30 Jan 2008 Posts: 188
redsoxgirl Posted: 03-16-08 17:26pm
Hi,
Gee hope your feeling better this
evening. I know what you mean when you
said that people visit too long when
you're in the hosp. I go thru the same
thing everytime. Sometimes I send my wife
home for a couple of days just so both of
us can relax.
Have you talked to the trans cardio
today? any thing new? I'm sure it's
getting to be old just waiting to feel
better. I've gone thru it a few times but
you can,t give up. No way. Even getting up
and sticking my head out in the hallway
helped. Is your headache any better? I am
so sorry I know you can't get up. But you
will be.
Thanks for the prayers. I said a few your
way. Right now my chest has quit hurting.
Gotta be those prayers.
Have you seen Jonathan or Luciana today?
I bet she looks forward to being with
you.I think my grandchildren from San
Antonio will be here this week. Can't
wait.
Probably mic some leftovers tonight.
Don't feel like cooking. Wish I had some
corned beef For st. patty's day.
I think I've rambled on enough. When you
talk to your trans cardio ,it may be hard
but, it might be time for you to ask some
hard Questions. Don't hold back. I promise
it will help. Everythings good. God loves
you.
god bless
jerry jrod
|
redsoxgirl
Experienced User , Rather EHEALTHy
Joined: 01 Mar 2008 Posts: 183 Location: ,
jerry jrod Posted: 03-16-08 18:24pm
hi. i am glad your chest pain went away.
you better take it easy! i was worried.
the prayers do help. i still do not feel
that great. my trans cardio told everyone
to stay home today.he and i have talked.
he said day to day. he is giving me a
saline iv for the acute renal
insufficiency. he just started it an hour
ago. he said it is common and he has it
under control. and for my breathing he
upped my oxygen. i can breathe a little
better. he also upped the lasix because
of the saline solution. i hope i explained
that right. no salty ham and cabbage! you
need to watch your salt! he said he will
do another biopsy of my heart tommarrow.
he said to hang in there he promises
better days are coming. my case is nothing
new he has dealt with it before. he said
if i was hopeless he would not be giving
me all this treatment. you always know
when i get discouraged. thank you for
giving me the courage to talk with my
cardio. i asked him about stem cells for
you and have you tried the mayo clinic? he
is not too up with stem cells because his
patients are usually too far gone for it.
but the mayo clinic is usually up on all
the newest research and technology. red
sox and yankees are playing tommarrow in a
spring training game. will you be cheering
go sox go! i told the trans cardio he
better do the biopsy in the early am and
if by some chance the bivad or heart it
will have to wait til after the game. ha
ha what left overs did you have? that
will be great to see your grandchildren.
just do not over do it! glad your chest
pain is gone maybe you should call your
cardio and give him a heads up on how you
have been feeling. looking forward to
hearing from you. take care! redsoxgirl
janine
|
jrod
Experienced User , Rather EHEALTHy
Joined: 30 Jan 2008 Posts: 188
redsoxgirl Posted: 03-17-08 08:09am
Good morning, Erin go Brau
I wonder if I spelt that right. How are
you ? How's that fever and headache? Your
prayers are wonderful. I feel real good
this morning. I won't push it.Has the
saline iv helped with the kidneys? I'm
glad your trans cardio gave you some
oxygen. It can really help .Hope the
results of the heart biopsy show things
are better. When he told you better days
are coming, that should have made you feel
better. I know better days are coming for
you.
Thanks for mentioning my stem cell
situation to him. I am aware of the Mayo
doing it and also the Cleveland Clinic. I
hope my cardio comes up with something
soon. I'll be talking to him. I always ask
my cardio how my future looks. He's very
honest with me . Ok you talked me into it
.GO SOX GO. I ate an english muffin and an
egg for supper. No salt. Gotta get my day
going I'll talk to you in a while.
Everything's Good.
God Bless,
Jerry jrod
|
redsoxgirl
Experienced User , Rather EHEALTHy
Joined: 01 Mar 2008 Posts: 183 Location: ,
jerry jrod Posted: 03-17-08 12:00pm
good afternoon. happy st patricks day. i
am so happy you feel better today. i pray
for you each day. you also have to take
care of yourself. the oxygen is helping.
the biopsy is done. my cardio thinks the
dehydration is causing alot of problems .
its hard to manage because i need all the
lasix yet again i need fluids. guess what!
my fever is down probably due to the
saline. when they discontinue it and if my
fever stays down i can have my bivad. i
still need the saline.. that is some good
news. luciana is here now but fell asleep
after being with me only ten minutes.
jonathan said she did not sleep. he said
she misses me. she is so young i cannot
believe it affects her that much. she
seems so comfortable with me now. she is
so cute. i love her here by me. you better
not be eating ham and cabbage! i am happy
you are cheering for the sox even if you
are only humoring me. luciana has her
redsox shirt on. how is your chest pain?i
have to go for now. the trans cardio is
here. i do not think luciana is going to
wake up so her can examine me. thats ok i
am tired of tests and examinations anyway.
looking forward to hearing from you. take
it easy today! cya janine redsoxgirl
|
jrod
Experienced User , Rather EHEALTHy
Joined: 30 Jan 2008 Posts: 188
redsoxgirl Posted: 03-17-08 17:59pm
Hi,
Tried to get back with you earlier but
computer problems. Storms in the area.
Well isn't that good news or what. Fever
down . I'll pray that it stays down And
you get that bivad in the next couple of
days. I bet you enjoyed Luciana today. Do
you know that some day she will grow up
and not only be your daughter but your
best friend. She does understand what's
going on in your life , she just can't
tell you. Hope everythings ok with
Jonathan. GO SOX GO. What happened today.
I'm feeling pretty good today. no chest
pain. I'm good, especially with your
news.
The next time I see a bo sox shirt I'll
get it. Not many of them in this part of
the country. GO COWBOYS!
Please let me know how your feeling
later. Write if can
Better go Carol's needing me for
something Everything"s good.
God Bless
Jerry Jrod
|
redsoxgirl
Experienced User , Rather EHEALTHy
Joined: 01 Mar 2008 Posts: 183 Location: ,
jerry jrod Posted: 03-17-08 19:13pm
hi. i am really discusted with my sox
these last few days. they did not help my
stress level today. ha ha luciana was
watching with me. jonathan is a dodgers
fan. he is from california. jonathan is
having a hard time with my condition the
past couple days. he is afraid i am not
going to survive waiting for the bivad. he
told the cardio that. the cardio reassured
him he will not let that happen. my biopsy
was not good. my heart got worse. so i am
so ready for the bivad. the saline i was
told will be finished at about 8pm. so if
my fever does not come back they will
hurry up and give me the bivad. your
prayers help me mentally and thats where i
need the most prayers very much. i am
praying for you. your stem cell procedure
will happen. i am not a big cowboy fan. i
am not a patriot fan either. if i had my
choice of the two i would choose the
cowboys. that was really special what you
said about luciana. it really does seem
like she senses i do not feel well. i
think her and i will be close as she grows
older. i will be a cool mom. she loves her
father too but has been giving him such a
hard time. i feel really bad for him. he
was a little better today. i had a talk
with him. i set him straight. toughened
him up a bit. i bet you did have ham and
cabbage today! i am really glad you are
feeling better. that is probably because
you took it easy today. i hope. wow you
would wear a sox shirt? i am going to go
now. have to have a respiratory treatment
now. it was good to hear from you. hope to
hear from you soon. janine redsoxgirl
|
jrod
Experienced User , Rather EHEALTHy
Joined: 30 Jan 2008 Posts: 188
redsoxgirl Posted: 03-18-08 09:28am
Good morning,
I got the feeling this is going to e a
good day. I hope Jonathan is feeling
better today. Real hard on him. Your
cardio really steps up when needed. Hate
to here about the biopsy.,but hopefully,
it won't make any difference after today.
I'm all positive today. Those darn redsox.
I'm sad. Who takes care of Luciana during
the day? No ham and cabbage on Monday.
Promise. Today's gonna be good.
I'm a little short of breath today
probably the valve. I'll be ok. Sorry this
is short but gotta get some stuff around
the house done. Will write later. Do the
same if you can. Everything's good. God
loves you.
God Bless,
Jerry jrod
|
redsoxgirl
Experienced User , Rather EHEALTHy
Joined: 01 Mar 2008 Posts: 183 Location: ,
jerry jrod Posted: 03-18-08 11:19am
hi. you better no over do it today.
especially if you are sob. call your
cardio and let him know how you have been
feeling. did your grandchildren come yet?
save your energy for them. you do not want
to be under the weather when they come.
luciana stays with one of my friends who
is a stay at home mom. then my mom in law
gets her when she gets through with work.
then jonathan picks her up when he is
home. his job requires him to travel a
couple days a week. when he is away
luciana stays with my mom in law. jonathan
is ok. maybe tomarrow for the bivad. fever
is 99. i feel terrible today. like you
very bad sob despite oxygen my chest hurts
and still a headache. my heart rate is low
52. he said the bivad is looking good.
they cannot wait to implant it. carol has
a list of chores for ya huh. us women love
to make the chore list. i have to eat now.
looking forward to hearing from you.
please be careful. praying for you to.
redsoxgirl janine
|
jrod
Experienced User , Rather EHEALTHy
Joined: 30 Jan 2008 Posts: 188
redsoxgirl Posted: 03-18-08 15:20pm
Hi,
Hope your feeling a little better. Any
more info from your doc.? 99 is good. It
gets way hotter than that down here in the
summertime. Can't handle it. Gotta stay
in. My doctor said it's bad for CHF. your
heart has gone from one extreme to the
other. Instead of tachycardia you've got
bradycardia. Go figure. I bet you were
glad that they are getting ready to
implant the bivad. After that you sould be
able to get out of bed some. That will be
nice.
Don't know if I told you but I had to
have my bivent icd pacer redone in
january.
I originaly had it put in a year ago then
it started extruding thru my chest wall.
They had to reposition it . THe reason I'm
mentioning it is that my incision is
bothering me. I hope it 's not trying the
same thing again. I guess my body is
weird. After both my open hearts my body
rejected the sutures and i had to pull
them out myself and then had to have chest
surgery, incisional hernia, to repair it .
I watch things closely after all that.
Enough about me.
Hope you have that big day tomorrow. If
I don't hear from you i'll know what's
going on.The good Lord will be in there
with you. We'll be praying.
I better go. I think I'll take a nap.
Everything's good.
God Bless,
Jerry jrod
|
redsoxgirl
Experienced User , Rather EHEALTHy
Joined: 01 Mar 2008 Posts: 183 Location: ,
jerry jrod Posted: 03-18-08 21:51pm
hello. i apologize for taking so long to
write. they had to do a whole bunch of
tests on me. after all that i wanted to
spend alot of time with luciana because if
i get the surgery i will not be able to
hold her for a while. how are you feeling?
hows the incision? i keep telling you to
call your cardio and let him know how you
have been feeling. let him decide if you
are ok . you have been having too many
symptoms lately. that must have been
terrible what happened to you and with the
pacemaker. my pacemaker is very visable
because i am thin. it sunk in a little but
not much. my chest scars still hurt and
sternum. my pacemaker incision does not
hurt. i also have a scar from my caesarean
section. i know what you mean my surgeries
were never easy either! i am glad you got
some rest. the surgeon told me he is
removing my pacemaker. it has been
basically useless for me. my heart rate is
only 46 and blood pressure is 70/35. i
know i go from one extreme to another. my
blood pressure was always low. that bottom
number is quite low. jonathan took off
work tommarrow just in case. he is so
anxious. i will try and send you a message
to let you know if i am getting it done.
he wants the temp perfect. one point makes
that much of a difference? maybe i can
have regular coffee since my heart is
beating so slow? i will try anything for
regular coffee. ha ha did you lift
anything like um plants the other day that
would cause your incision to act up ? i
am praying for you and also the stem
cells. looking forward to hearing from
you. i am glad you rested today. take care
janine redsoxgirl
|
jrod
Experienced User , Rather EHEALTHy
Joined: 30 Jan 2008 Posts: 188
redsoxgirl Posted: 03-19-08 10:14am
Hi,
My computer's all messed up. Sorry I
haven't written. This will be quick since
I don't know about your proceedure. Please
let me know how things are going when tour
able. Everything's good.
God Bless
Jerry jrod
