I was asked by Janine (redsoxgirl) to send
you a message to let you know she was
having her bivad surgery today. She wanted
to send it to you herself, but she was not
given time to use her computer. The
surgery is completed. She had surgical
complications, but right now is stable. I
want to thank you personally for all the
friendship and prayers you give to her.
She always talks about you. She may be
able to write you tommarrow. If her
condition worsens, I will let you know. If
she stays stable and is able, I know she
will want to write you herself.
Thank You,
Jonathan
|
jrod
Experienced User , Rather EHEALTHy
Joined: 30 Jan 2008 Posts: 187
redsoxgirl -jonathan Posted: 03-19-08 13:35pm
Hello,
Thank you so much for letting me know
about janine. Our prayers will be with her
yourself and your daughter. Again,thankyou
so much.
God bless,
Jerry jrod
|
redsoxgirl
Experienced User , Rather EHEALTHy
Joined: 01 Mar 2008 Posts: 183 Location: ,
Jrod Posted: 03-19-08 16:35pm
Thank you for your prayers. Just wanted
to let you know she finally woke up for
about ten minutes. She is so out of it.
Surgeries are not easy for her. Always
some kind of problem. Again, thank you for
your prayers. Jonathan
|
jrod
Experienced User , Rather EHEALTHy
Joined: 30 Jan 2008 Posts: 187
redsoxgirl Posted: 03-19-08 18:19pm
Thanks again Jonathan for keeping me up to
date on Janine. I know she's been thru
much in the last few weeks. Everything
will be good. Tell her I said hello and
that Im' thinking of her. She"s in my
prayers.
God Bless,
Jerry
|
redsoxgirl
Experienced User , Rather EHEALTHy
Joined: 01 Mar 2008 Posts: 183 Location: ,
Jrod Posted: 03-20-08 09:49am
Just wanted to send you a message to let
you know how Janine is doing. She was up
for a while, but is in alot of pain and
very tired. I told her you said hello and
were praying for her. She was happy and
thanks you for your prayers. She was
concerned how you were. She has a long
road ahead of her. The surgery really is
hard on her. She still is critical. Her
first words when she got up this morning
were how the sox were doing. Then asked
how Luciana and I are doing. The movie
Fever Pitch is exactly what she is like.
She tells me you and her talk baseball.
She
is so funny. She cannot wait to write to
you. Have a Good Day Jonathan
|
jrod
Experienced User , Rather EHEALTHy
Joined: 30 Jan 2008 Posts: 187
redsoxgirl Posted: 03-20-08 10:08am
You got yourself a special girl,Janine.
Always caring how someone else is doing
when she's the one in distress. She's
beautiful. You got a winner there. Tell
her I,m now officially a redsox fan. She
wins. Tell her I look forward to hearing
from her. We'll talk soon . Everything's
good. God bless you all.
Jerry jrod
|
redsoxgirl
Experienced User , Rather EHEALTHy
Joined: 01 Mar 2008 Posts: 183 Location: ,
Jrod Posted: 03-20-08 17:05pm
An afternoon update on Janine. She slept
most of the day, and when she is up very
miserable. She says the device is
uncomfortable she can feel it. They are
cleaning her incisions now , and I know
she is not a happy person right now. I
told her you are now a sox fan. She said
another Yankee fan bites the dust. She
said to tell you hello and again hopes you
are doing ok. Yes I am very lucky to have
her. She is a very kind hearted girl. She
is especially a great mother. She hopes
she can write tommarrow. If she cannot, i
will write again. You have become an
important friend to her as well.
Take Care Jonathan
|
jrod
Experienced User , Rather EHEALTHy
Joined: 30 Jan 2008 Posts: 187
redsoxgirl Posted: 03-21-08 08:19am
Good morning,
Hope janine is doing a little better.
I'm sure she had a rough night. If
possibl, tell her I send best and my
prayers. Everything's good.
God Bless,
Jerry jrod
|
redsoxgirl
Experienced User , Rather EHEALTHy
Joined: 01 Mar 2008 Posts: 183 Location: ,
jerry Posted: 03-21-08 10:12am
hi. it's janine redsoxgirl. iam going to
try and type. i feel like i have not
spoken to you in so long! so you and
jonathan were writing. he said he can see
why i enjoy talking with you. i am in alot
of pain. i cannot wait for the next dose
of pain medication. as long as they are
offering me i will take it. how are you
feeling? how is the incision and other
symptoms? i hope better. i have so many
bandages i feel like a mummy! i am really
sick to my stomach. my cardio ordered
something. hopefully it is a side effect
of the anesthesia. just wanted to say
hello. maybe iwill have more strenght
later and can write more. hope you are
doing well. looking forward to hearing
from you. janine redsox girl.
|
jrod
Experienced User , Rather EHEALTHy
Joined: 30 Jan 2008 Posts: 187
redsoxgirl Posted: 03-21-08 10:46am
Hi,
So happy to here from you. I know It's
hard for you to write at this time. I
don't want you to overdo it. Thanks for
thinking of me when your the one that
needs all the care I'm sure your doctor
will take good care of you. It will take a
little time but this is where you start
the rest of your life. Please don't get in
a hurry.
I'm great. I'm praying for you . Tell
Jonathan I thank him very much for staying
in touch. He is in my prayers also. Bet
you can't wait to see Luciana. I'll write
later .Get alot of rest. Everything's
good. God Bless you.
Jerry jrod
|
redsoxgirl
Experienced User , Rather EHEALTHy
Joined: 01 Mar 2008 Posts: 183 Location: ,
jerry jrod Posted: 03-22-08 10:47am
good morning. how are you? sorry i did not
write back yesterday, but it was a bad day
for me. i hope you are ok and not just
saying you are. everyone is important not
just me. how is carol.? jonathan is ok. he
went to work today, because i told him to.
i figured it would be good to keep himself
occupied instead of sitting here all day.
i do miss luciana very much. the cardio
said she can come tommarrow and the
surgeon said to wait until tommarrow and
see how i am. i do not know if i am crazy
but i can feel the device when i move. is
it possible? i feel strange telling them
that. my vitals on the monitors do not
look that great. how long before the bivad
works? i am still in bed. i thought they
would get me up in a chair. no matter
where i am it is uncomfortable. did your
grandchildren come? i hope so. jonathan
brought me luciana's easter pictures she
is so beutiful! she is being very fussy
with him. he said she has been a handful
these past couple days. how was lenten
service on wednesday? i am still praying
for your stem cells and you also. looking
forward to hearing from you. janine
|
jrod
Experienced User , Rather EHEALTHy
Joined: 30 Jan 2008 Posts: 187
redsoxgirl Posted: 03-22-08 11:47am
Good morning to you,
Great to hear from you. Please don't
worry about writing me if you can,t. Your
recovery is more important. And yes I am
ok today. My chest hurt most of the day
because I lifted something too heavy. Dumb
huh? Carol's decorating the Easter cross
at the church. Other ladies are helping.
Good idea sending Jonathan to work. It
will help him greatly. Remember I told you
how I send Carol off when I'm in the hosp.
Good for both of us. Hope you get to see
Luciana tomorrow if possible. It would be
so nice.
I'm confused. Did they implant the device
partially in your body or did they implant
it completely? Either way it is an
extremely foriegn object to your body and
it would like to get rid of it. As time
goes on it will adjust and it will be
somewhat more comfortable than now. And
about that monitor. How about a picture Of
Luciana over the screen or close to it?
That might help keep you from being a
worry wart over your vitals. You do know
the nurses have the info at all times down
at the station? Maybe one of Luciana's
Easter pics.
No grandchildren this week. They had the
bug .I miss them. The bosox are in Japan.
Probably hanging out at a Sushi bar. YUK!
I better go now. You need your rest.
Everything's good. Write when you feel
like it.
God Bless
Jerry Jrod
|
redsoxgirl
Experienced User , Rather EHEALTHy
Joined: 01 Mar 2008 Posts: 183 Location: ,
jerry jrod Posted: 03-22-08 14:27pm
hi. lifting heavy things huh? you should
know better! my cardio did tape luciana's
picture on the monitor. he said to let him
worry about my vital signs. he said they
are not great but better than they were. i
also got more pain med. he said to enjoy
the good pain med today because today is
the last day. tommarrow tylenol. the
surgeon and him said the pain medication
is very addicting. the bivad is totally
implanted but how you explained it makes
sense. the surgeon said my incisions look
a little red so they have to be cleaned
more often. i hate when they touch them.
oh well it could be worse. i am sorry your
grandchildren are sick and not coming. you
were looking forward to it. i know my
little nephew was really sick with the
flu. it hit him all at once. i hear he
feels better today. yeah i love jonathan
but it was time for him to either go home
or to work. i do not like sushi either!
that is nice they went. they were not
going to go i think it had something to do
with their coaches. i never got the full
story. i hope i can see luciana on easter.
do you have or go to dinner after church
on easter? my sister usually has everyone
over for dinner. i ordered stuff online
while i have been in the hospital for
luciana's easter basket to make it easier
for jonathan. she really does not know
what is going on but just a couple things
for her. i cannot believe i have the
bivad. it is totally implanted i think
the only thing external is one of the
tubes in my chest that is connected i
think to a pump. i have so many tubes i
lost track of what is for what. i know it
takes time. the cross carol is decorating
must be beautiful i love when the churches
are decorated for holidays. what heavy
object are you lifting today? i am curious
to know. i am gonna go i am getting tired.
looking forward to hearing from you.
janine
|
jrod
Experienced User , Rather EHEALTHy
Joined: 30 Jan 2008 Posts: 187
redsoxgirl Posted: 03-22-08 16:14pm
Hi,
I know I was a bad boy. I won't be doing
that for a while. I think that putting
Luciana's picture on the monitor is a good
idea. Everytime you look at it she can be
your life and breath. No numbers needed.
If thy are taking you off the pain med.
your evidently making some progress. That
bivad you have actually kinda hangs in
your chest wall and moves everytime you
do. That's your bridge to the future. I'm
sure you will make it work. Next the
heart. Hope you don't get too attached to
the bivad. How are the vitals looking?
I will miss the family for Easter. It's
suppose to be a beautiful day,75 degrees
and sunny. I guess i'll finish some mixed
planters . That I love to do. Maybe
someone will bring you some food tomorrow.
I need to go. I'll write later.
Everything's good.
God bless and have a nice Easter,
Jerry jrod
|
redsoxgirl
Experienced User , Rather EHEALTHy
Joined: 01 Mar 2008 Posts: 183 Location: ,
jerry jrod Posted: 03-23-08 07:42am
happy easter! i feel bad you will not see
your family. you and carol can have a
great easter. make the best of it. just be
careful with the planters. when do you
start school again? i did not write
because i was taken back to surgery. the
sutures for the left and right vent the
right vent sutures needed to be
restitched. thank god for pain medication.
my family except for jonathan was told by
the surgeon to stay home today. i will not
see luciana because she will want me to
hold her and i cannot. that makes sense. i
am a little sad but it is for the best.
cannot see my vital signs remember? the
cardio put pictures on anything with
numbers. you are right about luciana ..
the heck with numbers she is the
encouragement i need. i am in so much
pain. i hope besides when i get my new
heart this is the last surgery. please
write me if you have time. i know it is a
holiday if you have time. i want to hear
how you are feeling and how your day is.
funny we both cannot see our families. we
are stuck with jonathan and carol ha ha
wish carol a happy easter for me. will say
a special easter prayer for you and also
the stem cells. i thought i would be up
and walking by now. i probably forgot how
to walk.ha ha i am going to go now. need
my heart pillow chest is really hurting
me. cannot wait to hear from you. enjoy
your easter mass. janine
|
jrod
Experienced User , Rather EHEALTHy
Joined: 30 Jan 2008 Posts: 187
redsoxgirl Posted: 03-23-08 11:48am
Hi and Happy Easter to you,
Thanks for the thoughts about our being
alone. We are having dinner with some
friends. Looking forward to it. I wish it
would be Italian food but I'll get by.
Start school on Tues.
Wow I bet having to go back to surgery
scared you a little. You know that having
your heart transplant surgery might be
easier on you than having the bivad
implanted . Very possible. Also do you
know what the make of the bivad was? I
really only know of one that is fully
implanted in the body. By the way it is
more in your abdomen than in your chest.
If you can and feel like it see if you can
find out which bivad you got. Maybe a
Heartmate II. I'm sure that your doctor's
want you to heal as quickly as possible
thats why no visitors Concentrate on
getting rid of that pain. Most of it will
go away. I'm so sorry it bothers you so
much. Do you see your trans surgeon much?
I'm sure he is keeping a close eye on you.
Tell your trans cardio thanks for putting
the photos over the monitor screen Maybe
watch a game today? Hold on to that
pillow.
I better go. Dinner's calling. I'll
write later.Get some rest. Everything's
good.
God Bless
Jerry jrod
|
redsoxgirl
Experienced User , Rather EHEALTHy
Joined: 01 Mar 2008 Posts: 183 Location: ,
jerry jrod Posted: 03-23-08 15:21pm
good afternoon. hope you are enjoying your
easter. i am glad your friend invited you
over for dinner. kind of gets your mind
off your grandkids an children no being
able to come. would you be jelous if i
told you jonathan brought me lasagna and
pasta fasula! i only ate some was
delicious. my stomach is still upset. i
did enjoy what i was able to eat. i am so
tired. i have a heartmate II. I am
confused i cannot see because of all the
bandages i think it is totally implanted
except for the one tube in my chest
conected to something. iplease help me i
feel silly again if i ask that question.
is some of it external? i have so many
tubes and ivs and monitors i am totally
lost what is for what. please help me. yes
i am afraid. i will admit that to you. no
one else. the surgeon said he was
originally going to use a thoratec but
changed his mind. somehow i think you are
right the transplant may be easier. the
surgeon is in alot since my surgeries. he
said i have a low grade fever. he cleaned
my incisions himself today. he ordered an
ekg. he listened to my heart alot. is that
good or bad? he scares me. luciana loves
the one stuffed animal i got for her.
jonathan gave her a picture of me . he
said she will not put it down. that makes
me feel better. she has not forgotton
about me. tell me about your day. how are
you feeling? is your chest still hurting?
how was church? i am going to go now . i
need my heart pillow. looking forward to
hearing from you. sox won today! thought
you would like to know since you are their
newest fan! take care janine
|
jrod
Experienced User , Rather EHEALTHy
Joined: 30 Jan 2008 Posts: 187
redsoxgirl Posted: 03-23-08 18:15pm
Good evening to you,
Our dinner was enjoyable. Gosh, all
that Italian food. Bet it was good. Be
care ful about what you eat . You don't
want to have to vomit feeling the way you
do. It would't be nice. Most likely the
Heartmate II is a completely implanted
device. This bivad is very popular and
very dependable. The tube you see is most
likely for drainage. There should be a
wirealso, running to a battery pack. They
don't use Eveready, a funny Ha; The trans
doctors are most likely listening for any
leaks around the grafts. You have three
grafts. One to each ventricle and one to
the aorta. Don't want any leaks. Sounds
like they are doing what needs to be done.
Very importantly, do not be afraid to
holler for anything you might need. Your
caretakers have,most likely been thru this
before. Your probably not hollering
enough. Your fever is not unusual after
surgery. I kinda think your starting to
heal.
I have a little fluid on me. I usually
weight about 150lbs. but I'm at 154 right
now. hope lasix starts working I'm
planning a trip to Albany this summer.
I'll let you know as my plans progress.
Better go now, and I mean go, love Lasix.
I'll write later. Grab that pillow.
Everything's good.
God Bless
Jerry
|
redsoxgirl
Experienced User , Rather EHEALTHy
Joined: 01 Mar 2008 Posts: 183 Location: ,
jerry jrod Posted: 03-23-08 18:55pm
hi. i just woke up. they gave me some
strong medicine. you better be careful
with the extra fluid. sometimes it is from
eating too much salt. and also lifting
heavy items. please be careful. i know
what you mean about the lasix. i just
wanted to say hi. i am glad you had a nice
easter. jonathan wished you a happy
easter. i am not feeling well. i will
write more tommarrow. just wanted to say
hi and yell at you. ha ha the joke about
the battery is funny i laughed. thank you
for the advice about the bivad. please
take care of yourself. looking forward to
hearing from you. janine redsoxgirl
|
jrod
Experienced User , Rather EHEALTHy
Joined: 30 Jan 2008 Posts: 187
redsoxgirl Posted: 03-24-08 07:50am
Good morning,
Hope your feeling better this morning.
Tell Jonathan hello. Maybe you will get to
see Luciana today. Hope so. Has the trans
cardio talked to you today? Why don't you
ask him how things are looking. Ask him if
everything your going thru is normal. Most
probably is,but ask anyway. It will make
you feel better. Have you seen the trans
surgion? I was wrong you had four grafts
not three. He will be listening for a few
days.
Sooner or later you will have to get
your mind off your hosp. stay. You will
probably need alot of mind activity to
keep you going. You'll figure it out.
Maybe a degree in something. Anything will
work. And baseball season is soon upon us.
Go Bosox. I forgot also,you might have two
battery packs.
Feeling better today. Not floating
anymore. Will take it easy. My stem cells
need to get in my heart. I'm still waiting
for a call. Sooner or later. I am still
worried about my mech. valve. I better go
.Gotta get the day started. We'll talk
later. Everything's good.
God Bless,
Jerry jrod
