Joined: 13 Dec 2003 Posts: 200 Location: Australia
Hello Ryguy Posted: 05-06-04 19:25pm
Your b/f sounds just like me.
Sometimes I can feel what is happening to
me. So far I have had tests and nothing
is wrong with me. They dont know why I
have this either. The medication works
for a short while then it stops working.
It sucks so bad. Sometimes the noises I
make are like a high pitch squiel like a
pig I guess well thats what my g/f tells
me anyways. I am 21 yrs old and this has
only just begun to happen to me over the
past 6 months. It makes me so down at
times. And then you have to deal with the
fact that if you do hurt your self then
the bruises or the carpet burn is there as
a reminder for a week atleast. I dont
bite my tongue. But I can hear sometimes
and maybe I can answer when I am fighting
the initial stages.
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RyGuy
New User, Becoming EHEALTHy
Joined: 06 May 2004 Posts: 19 Location: MD
Posted: 05-06-04 22:28pm
Hey there. I'm sorry the same things are
going on with you, although i'm glad to
have found this forum and find others. I
do alot of research on the internet so I
can understand it more... But i've never
talked or known anyone else with it. My
fiance also will be using this screen
name. So on any given post it might be
from me or from him.
Thanks for writing. It never even occured
to me that maybe he could hear me while
having a siezure. I'm curious to see.
Another thing is i've noticed there are
alot of epilepsy awarness/funded programs
and walks in europian countries. And none
here in the usa. Since your in
australia... Do you know of any around
you? I try to look for anything epilepsy
related, but there is nothing around here.
Kind of sad.
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MickeyFan
Experienced User , Rather EHEALTHy
Joined: 28 Jan 2004 Posts: 73 Location: Algonac, Mi.
Thanks: 1
Thanked:0
Posted: 05-07-04 20:13pm
Ryguy,
i don't know where in the usa your
located.... But the epilepsy foundation
does walks all over during the summer.(in
michigan there is 4) give them a call....
800-332-1000 this the national number.
I'm glad you found the site too.... It
helps greatly being able to talk to other
people who go through the same things we
do.....
I can hear during my seizures too. I
don't always remember everything though.
Jill
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RyGuy
New User, Becoming EHEALTHy
Joined: 06 May 2004 Posts: 19 Location: MD
Posted: 05-08-04 01:41am
Are you kidding? There are walks where
you live? I've tryed to search under
everything I can think of, but I can't
find anything! Good thing I didn't go
into research! Lol
thanks for the number, I will definetly
call it!!! By the way, we live in the d.C
area.
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