Please Go Through Mail And Help Me Posted: 05-11-04 18:30pm
Dear sirs
i am maddina age 32 years from india.
Exactly two and half years back I had a
seizure.Before that I want to give some
information about me sir.From my childwood
I have some what dipressions.Before this
seizure was happened(almost 4 and 1/2
years back from now) I had dizziness( I
want to say my mind was not active and I
was not intrested to speek to others). At
that time I felt that this is due to
dipression because this was happened
during my education holidays, after that I
joined in the university where these are
almost disappeared.Now come to 3 years
back, this time also holidays,ofcourse
this time I had some dipressions. During
this time I am getting good sleep
irrespective of dipression,in the sleep
some times I am with deeper and deeper
sleep,when I woke up these symptoms were
appearing and I came out of that when
shake up my head only,this time also I
neglected.Are these symptoms of seizure?.
Now it was two and half years back,that
day I walked up to 2 to 3 kilometers,then
after 2 to 3 hours I went to my lunch
there I suddenly felt down
unconsciously.Immediately after this
incident I met doctor nuerophysian, he
diagnosed me with eeg and ct plain brain
scan.Eeg came abnormal,brain scan came
normal.After that he put me on medication
for seizure(can I think that this is the
my first seizure). Now I am using
tegritol cr 200 mg two per day,last two
years went well with some times lack of
concentration.No seizures at all in these
two years,these days also I am getting
good sleep,i dont know wether I am getting
seizure or not during the sleep.After
these two years I felt unnecessary
tension,from that time I got vomting
sensation,nerves
week,giddiness,unsteadyness,jerks in the
body and even in the brain and also
vibratins in the back part of my
head.Immediately I met my doctor,he tested
my blood for testing of liver problems and
other blood tests for know the side
effects,but the report came normal, after
that he told I will continue the same
tablets and will use the anti- anxiety
tablets(deanxit) for three weaks.I used
those tablets.Still jerks in the body and
vibrations in the brain are there.And
unsteadyness is the main problem now.Now
it was 2 and half years ,recently I met my
doctor he added clonazepam tabs with
tegretol .He tells that these are only due
t0 anxiety not with medicines.Still jerks
are there. So I am some what fear due to
that I am not concentrating on my work.One
more thing is that I met new nuerophysian,
he told that these are happening due to
medication and told that I will
discontinue the medicine in three
months(eeg came normal now).So I am some
what confusing state because old doctor
told that atleast I will be on med for
three years.
I want some help sir, regarding these
factors if you can spare some time for me
sir.
1.May I be think that I had only one
seizure irrespective of immediate
medication after my first unconscious.
2.How many years I will be on
medication.Can I discontinue or continue
3.Are these fealings disappear after
stoping medication
4.Is there any guaranty that I had
succefully eliminated seizures in the
future.
6.I am bachelor now,am I going to
marriage
7.If any help ful information is there
regarding my discriptions.Please provide
me sir.
Thank you for pay the patience to read
this mail.
I am expecting your valueable
suggestions.
Thank you sir
best regards
maddina
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RyGuy
New User, Becoming EHEALTHy
Joined: 06 May 2004 Posts: 19 Location: MD
Posted: 05-11-04 23:30pm
Well, nobody on here is a doctor, so we
can't tell you if you'll get better, or
when to stop taking medication. But we
can tell you personal experience. Doesn't
mean it will apply to you though.
It's good you're trying different
medicines to find the right combination
for you.
Hopefully the shaking stops, but be
prepared to accept that maybe it just wont
ever go away with medicine. For alot of
people medicine just doesn't do anything.
They just have to live with it or find
other ways of coping. For others medicine
changes lives and makes you seizure free
forever as long as you're on it. I know
you're discouraged, and you might not be
able to help with medicine, but you
haven't tried all the different ones out
there. So it sounds like you still have
alot of 'experimenting' with different
ones, but either way time will tell. Good
luck
-ryann
p.S. Congrats on your marriage!
|
maddina
New User, Becoming EHEALTHy
Joined: 11 May 2004 Posts: 2
Thanks Ryann Posted: 05-12-04 14:20pm
Hi ryann
thank you for gave valueable
suggestions.Can you give some brief
introduction about you
regards
maddina
|
RyGuy
New User, Becoming EHEALTHy
Joined: 06 May 2004 Posts: 19 Location: MD
Be Patient... Posted: 05-13-04 00:12am
With yourself above all. But keep in mind
that most epilepsy meds take about 3 weeks
before you can really tell what's going
on... Good or bad. Ryann is my wife, my
love, my support. I'm the one with
epilepsy. So, hi everyone. I'm one of
the lucky ones... I can feel my seizures
coming and for the most part, i'm able to
have a quasi-normal life.
I've found that meds affect me in
different ways... And ways that are often
not noted in the side-effects/drug
descriptions. On a new med, the first 3
weeks are weird. For example, when I
first started taking tegretol, I swear I
was ocd for about 1 week... Everything
had to be in right angles to everything
else and the round shape irritated me.
Weird huh? But, it passed and tegretol is
now part of my daily meds. Over time, I
adapted, my life and its stresses changed,
and tegretol wasn't enough. Adding
keppra, was a miracle drug for me. It's
effects were immediate.
Stay patient with the meds and more over
yourself until you find something that
works. Also, don't be afraid to call your
doc often. You don't have to wait for
your next appointment and you'll find that
neurologists are very accessible by phone.
