Joined: 27 May 2004 Posts: 1 Location: Houston, Texas
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7yr Old, 1 Grand Mal, Need Meds? Posted: 05-27-04 13:17pm
Starting up front by saying I am sorry
about the length but I want to make sure
that you have all the info to answer my
questions at the bottom if you can.
These questions are geared more to a
physician but any input would be most
appreciated. :d
on february 25 of this year my 7 ½ year
old son collapsed/passed out on the floor
at school and with a seizure. He had
just gotten up out of his seat to go get a
drink. The seizure was on both sides of
the body and was less than a minute - he
didn’t bit his tongue nor did he wet his
pants. When he started coming around he
was disoriented and his hands were clammy.
We saw his pediatrician that afternoon.
He was diagnosed with a viral infection
(with severe cough and congestion) and we
were told to continue the usage of the
decongestant. There was no fever
involved with any of these symptoms to
this point and over the previous 3 weeks
that he has had the virus. The same day
he also had ekg done (normal) and blood
work (normal for viral infection). The
pediatrician stated that the seizure was
most likely due to the viral infection but
an eeg was scheduled for the next
available appoint on march 26. Please
note that 1week after the viral infection
diagnosis we were back in the
pediatrician’s office with a fever and he
was now diagnosed with strep throat &
received a penicillin shot. For the
march 26 eeg appt he was symptom free for
any infections. The march 26 eeg
results: technical summary: the occipital
dominant rhythm is 9 hz and is mixed with
fused slower waveforms. There is low
voltage 18-22 hz activity in the anterior
regions and moderate voltage 6-8 hz
activity in the central regions. There
was a single burst of 2-3hz abortive spike
and wave activity seen.
Hyperventilation: there is no significant
change with three minutes of moderate
overbreathing. Sleep: there are no
focal or lateralizing features and no
abnormal waveforms. Photic stimulation:
during photic stimulation the patient
experienced a photoparoxysmal response
with bursts of generalized abortive spike
and wave activity elicited with various
frequencies of flickering light. There
were no clinical changes during these
bursts. Impression: the
electroencephalogram is considered
abnormal in the presence of generalized
abortive spike and wave activity and a
photoparoxysmal response. These findings
may be seen in patients with primary
generalized epilepsy. The background
activity is within the range of normal
variation for age.
His regular pediatrician wanted us to see
a pediatric neurologist. Our first
available appointment was may 26th. We
did not want to wait to see the pediatric
neurologist. We saw an internal med
physician with a pediatrics board cert who
stated that a “watch & wait” approach
for a seizure to happen again but wanted
to get us to an adult neurologist for a
differing opinion since we couldn’t get in
to see a pediatric neurologist for 2
months. The regular neurologist stated
that she was concerned that he was too old
to have febrile seizures, but did not have
enough knowledge of pediatric epilepsy and
needed further information but for now it
was our decision to “watch & wait” or
to medicate. She scheduled a mri without
and with intravenous contract to look for
scar tissue – the mri was normal.
Other history that might be pertinent:
our son was a tracheoesophogeal fistula
baby and had corrective surgery at birth
(he was considered a full term baby). He
was diagnosed with a cognitive learning
disability at age five. Three weeks
after the march 26th seizure he was
diagnosed with moderate-to-severe adhd and
was started on adderall 10mg per day.
His maternal great-grandfather died at age
37yrs old of a grand mal seizure (of his
great-grandfather’s siblings 4 of the 7
had seizures).
Snap shot of the may 26th pediatric
neurologist appt stated: that greater
than 50% of the time at any time he could
have another seizure. His brain activity
shows seizure discharges all over – not in
one area. He is never to take a bath by
himself, nor is he to ever go swimming by
himself. His motor skills are that of a
6 year old. The pediatric neurologist is
recommending lamictal. We will start off
at 25mg per day and over the period of 5
weeks we will build to a dosage of 150mg
per day. The pediatric neurologist
stated that lamictal was relatively side
effect free – there would be no issues
with it interfering with the learning
process and he wouldn’t have that “doped”
effect. It also would not interact with
most other drugs. He might develop a
rash and if so we are to immediately stop
the medication and call.
My questions are as follows:
1. Is lamictal actual this fantastic for
a child with minimal to no side effects?
(ie was what the pediatric neurologist
stating correct?)
2. For a child who has only had 1 visible
seizure and he was sick at the time, would
medicating for seizures at this time be
reasonable & necessary or would you
recommend “watch and wait”?
3. Without medication where do we stand
in our son actually having another
seizure? Petit mal? Grand mal? What
cognitive impairment could we expect?
4. Would you recommend a low-carb or
ketogenic diet before medicating?
5. Any additional information about the
eeg and the severity of it would be
helpful in understanding it.
|
SleepyJen
New User, Becoming EHEALTHy
Joined: 31 May 2004 Posts: 41 Location: NYC
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See a Specialist Posted: 06-10-04 02:28am
I'm not a physician, but I can offer some
advice. See an epileptologist at a large
comprehensive epilepsy center if you can.
There must be one there in houston.
Even if you have to drive 2 hours it will
be worth it. Pediatricians and general
practitioners know close to nothing about
epilepsy, and most neurologists don't know
nearly enough. I didn't get help until I
found an epileptologist, even though I had
been to various pediatric and adult
neurologists for years. And make sure
you like and trust the doctor.
Also, i've tried numerous meds for
seizures and i've been on lamictal for 5
years. All anticonvulsants have side
effects. (think about it; they're
messing around with the nervous system!)
do some research online about it; you
should find a lot of useful info.
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