Joined: 07 Jun 2004 Posts: 2 Location: Alameda, CA
Doctor's Appt. to Discuss Test Results Posted: 06-07-04 10:48am
Hi:
i am seeking advice on specific questions
to ask my doctor when we meet to discuss
my tests results. I had a lumbar puncture
and my spinal fluid was tested for ms. I
am having a re-occurance of a paralysis in
my left hand and arm. Originally started
4 years ago. Lasted 3 months then went
away and now has returned since the end of
march 2004. I was also reading about
guillin barre (which my father had) and my
symptoms aren't identical to someone w/gb
- there are some similarities, but no one
has even mentioned the possibility of
that. 4 years ago I had a spinal and it
was negative for ms.
I'm not at all satisfied with the care and
service I have been receiving from my
neurologist. I have had to follow-up each
time I need help at least twice (approvals
from insurance, confirmation of appt.
Times at drs. Office and hospital for
procedures). I also had spinal fluid
leakage after the lumbar puncture and
wasn't able to get ahold of my neurologist
for 6 hours after my initial call. I had
to call his office 3 times before he
called me back and this was the day after
my procedure.
So when I meet with him, I need tips on
how to get what I need and let him know my
care is unacceptable. I am definitely
thinking about changing doctors right now
but feel a little scared and would need to
find another neurologist first.
Thanks for all advice
|
Mehra66
New User, Becoming EHEALTHy
Joined: 11 Jun 2004 Posts: 11 Location: Washington
Posted: 07-02-04 00:54am
My advice would be to get a different
doctor if you are not satisfied. That
makes all the difference. And secondly I
would make a list for the doctor stating
all new and old symptoms and how severe
they are. That is what I do because I
have terrible memory problems. And
sometimes it helps if a friend or
relative/spouse goes with you to help you
remember and to make sure you are getting
the care you deserve. Plus it seems to
make the doctors more adament about
helping you because they don't want to
look bad in front of other people. That
is why my mother comes with me to almost
every appointment, it's good moral
support. I hope this helps and good
luck.
Polly
