Joined: 08 Jun 2004 Posts: 11 Location: California
Lupus Tia ? Posted: 06-08-04 18:43pm
I was diagnosed with lupus at age 36, and
i'm now 52. In 1996 I had severe central
nervous system vasculitis that was treated
for 6 months with high dose iv steroids
with cyclophosphamide. Now I have
epilepsy from it which after all these
years is finally under control. I also
have a lot of brain atrophy not only from
the lupus but also from a near fatal car
accident as a teenager.
The weirdest sensation happened to me last
night walking my dog: suddenly, out of no
where, I got this terrible feeling like I
was having a hard time walking and then I
became dizzy and off-balance as if the
ground were moving. What the heck was
that? It lasted for about 5 minutes. I
came close to yelling across the street
for help from my neighbor. Felt kinda
funny afterwards. First thing this
morning I called my neuro and asked
whether or not I could have had a stroke
and he said probably not because a stroke
would last much longer. However, today
around noon I developed numbness in my
fingers and toes to the point of being
sorta painful. Has anyone else had this
experience?
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Tallwoman
Experienced User , Rather EHEALTHy
Joined: 17 Apr 2004 Posts: 59 Location: US
Yep. Posted: 06-15-04 19:45pm
I have those all the time. They don't
even faze me too much anymore. I just get
kind of annoyed like, "how am I supposed
to have a life and work when this is
happening?" of course, there's no one to
give me any good answer. So life goes on.
I have neurological involvement, but no
diagnosis yet except for possible
vasculitis.
I get numbness and tingling in my toes, in
my left hand, in my left leg. Sometimes I
get dizzy like that where my balance goes
for a minute. Then i'm fine again. One
thing you'll find, when it comes to stuff
happening in your brain, the diagnosis is
pretty difficult. It's not like they can
cut into it and make sure.
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LadyBrannon
Active User, Really EHEALTHy
Joined: 17 Jul 2003 Posts: 506 Location: TX
Posted: 06-16-04 21:01pm
Hi all! Just wanted to add my $.02
worth...
I, too, get dizzy spells, black spots in
my vision, i've lost feeling in my left
pinky finger (looks to be permanent),
tingling in all my other extremities, loss
of balance, etc.
I have been having tests for this for over
a year...And they are still searching.
They just say it is due to the lupus, etc.
