Viral Myocarditis (how Detectable? How Treatable?) Posted: 06-27-04 20:00pm
I lost my beautiful and fit 25 year old
wife a little over 3 weeks ago to viral
myocarditis. I took her to prompt care
on jun 2nd she complained of neck
pain/migrane like headache, nausea, fever,
and tightness in the chest/ hard to
breath.
The physician ordered a blood test and an
x-ray. The blood test only showed an
increase in her white blood cell count,
common for infectiosn she said. When
taking blood pressure, I think my wife was
a little low 90 over 60, but the physician
chalked it up to an infection and the fact
my was petite. She told her to return
home and rest, and if things weren't
better by friday to return to the clinic.
June 4th my wife passed out shortly after
I returned from my lunch break home with
her. My mother called to check on her
minutes after I left and my wife mentioned
her weakenss so my mother got her to the
clinic. When she arrived in the waiting
room, my wife began having seizures and
wet herself, she kept having seziures up
until an ambulance arrived to take her to
the hospital. At the hosipltal they
appeared to get her stabel with ivs, and
other medications. However 4 hours later
they couldn't stabilize her and she was
gone.
Did prompt care miss something, should an
echocardiogram been orderd, or an mri?
Should something of been seen in the
blood? The heart surgeon said her heart
never enlarged which would ave shown in
the x-ray. They basically said this was
incredibly rare and unfortuante, and the
left side of her heart was horribley
inflammed, lymph sites had taken over so
much it was disrupting her electrical
system......... Basically her own immune
system was the main culprit for the
death... Even though the virus triggered
it.
I believe the surgerons did their best, at
one point they had over 40 people working
to save her... You just don't lose 25yr
old healthy woman to heart failure. My 4
yr old daughter and I would like to be
certain no one failed my wife.... We
don't want to go after anyone if there is
trully no fault involved and she couldn't
of been saved. However, if the physician
failed to order the necessary testing or
failed to find somethign that should show
up in viral myocarditis... I want her to
be held accountable.
Also my wife had been in a car accident
about two months earlier, she was examined
immediately after that and appeared fine.
Her only injuy was from an air bag
(impact to chest worried me). But she
walked away fine. The surgeon believes
her autopsy would have shown some scar
tissue in the heart by then.
Anyone with insight feeling everything was
done right please say so. Also if you
feel this was handled poorly and action
should be taken, please say so. I don't
feel comfortable even after talking to
that heart surgeon, I just want to move
on.
|
mass_9
New User, Becoming EHEALTHy
Joined: 13 Jul 2004 Posts: 1 Location: Toronto, ON, CAN
Re: Viral Myocarditis (how Detectable? How Treatable?) Posted: 07-13-04 17:26pm
I can't even begin to understand how you
feel from this happening to you. However,
I am not writing this reply out of pity.
I am writing this to let you know that it
can happen to anyone.... Trust me, I
know, as it has happened to me.
I am an extremely fit and healthy 23 year
old male, and last january, my life was
almost devastated upon being admitted to
the emergency room of my local hospital.
I thought I had the flu, and being the
tough (stupid?) guy that I am, I just
tried to fight it off and continue with my
normal life. Unfortunately, my normal
life was training to become a firefighter,
and that entails some very hard work. I
went from being in the best shape of my
life, to suddenly, not even being able to
walk and talk at the same time without
having difficulty breathing. I took a few
days off, and when I thought I was better
(from the flu, remember?) I tried to go
back to training. When I passed out in
the middle of my step-mother's hallway
early one morning, she had seen enough and
the next thing I knew, I was being sent to
the hospital, and I still didn't konw
why.
After spending some 3 weeks in the cardiac
unit, I wazs finally let out and went
home. Unfortunately, I was forced to stop
my schooling, I had to stop work, in fact,
I had to stop everything. My breakfast
consisted of about 5 different
medications, and my after dinner dessert
was much the same.
It has now been just about 6 months since
then, and I have just started work again
about a month ago.
As far as I know, this was a very
difficult thing for anyone to diagnos.
They found it in me after 3 days of
keeping me in the hospital cardiac ward,
and the only reason they wouldn't let me
out was because my heart rate was 185
resting, and no one knew why. Jsut as a
frame of reference, my resting heart rate
was normally between 50-55 bpm as I run
(or did) everyday. After 5 months of not
doing anything, I am just now getting
clearence to resume some activities, like
work, light wieght training, and walking,
but no running.
I want you to know that when I read your
post, I felt the tears welling up in my
eyes, because I know that it could've just
as easily been me that didnt' make it.
The only solace I can offer is that god
really does do everything for a reason.
While you may not see it now, and you
probably won't see it for a number of
years to come, he really does have a plan
for everyone one of us. Six months ago, I
would've thought that what I jsut said was
bull, but after being through an ordeal
like that (and, honestly I am still going
through it) I can truly say and mean it.
I'm sure that you would've taken this away
from your wife, and taken it upon
yourself, but it was not meant to be. I
am sorry about your wife. This disease
shouldn't have to affect anyone the way it
does, but trust in god, and have faith in
his plan. Your children are lucky in that
they have a man who is, no doubt, a
wonderful father, and while it will be
hard on them, it will be harder on you.
My mother died when I was four, and until
my father remarried when I was 13, it was
just him. He raised me the best he could,
and I know that you will do the same for
your kids. It takes a special kind of
person to do that. But god wouldn't have
choosen you if you couldn't handle it.
I wonder if you will ever read this.
Mass
|
Jay-Banning
New User, Becoming EHEALTHy
Joined: 27 Jun 2004 Posts: 6
Posted: 08-04-04 21:57pm
I appreciate the reply. I'm at two
months without my wife now. I even had
lawyers review the autopsy report and
medical files to have a neutral party
assure me that everything was done as it
was supposed to be.
It was, its rare for this to happen, even
more rare for it to happen to a woman,
even more rare for it to be this
aggressive. When I say rare I mean
winning the lotto rare. This sort of
thing is not supposed to happen.
I appreciate the reply, and i'm sorry to
hear a heart infection has weakened you.
In regards to thinking all things happen
for a reason, I don't believe that. I
believe many things just happen, no
reason, no good to come of it, they just
happen, and we are forced to move on and
pick up the pieces of our lives or just
waste away ourselves. I believe in god,
I believe one day I will be with my wife
and that day isn't soon enough since I
still linger.
You could name a million things that could
be a reason for this to happen, perhaps
you could say I could get closer to god
now or maybe I will be able to help
someone else in life since I endured this
tragedy and be able to guide them through
a similiar issue. But in all honesty
there are ways to get closer to god and
ways for me to help people without my wife
having to be taken away. I don't believe
or accept things happen for a reason, I
just know things happen.... Horrible
things can and do happen.
The one thing that bothers me most about
the ordeal is that the clinic did
everythign as normal two days before my
wife suddenly went critical. If I had
similiar symptoms an echocardiogram would
have been performed on me and this would
have been found. But this sort of thing
doesn't happen to young woman.... They
can somewhat see it rarely happening to
young men.... But they don't think twice
about this with women, they just assume a
cold isn't showing up in lungs (causing
chest pain). Of all the odds.... Can't
believe my wife was such a rare expcetion
and becomes that one in a million to
succumb to this heart infection of such an
aggressive nature.
|
Jay-Banning
New User, Becoming EHEALTHy
Joined: 27 Jun 2004 Posts: 6
Posted: 08-04-04 21:58pm
I appreciate the reply. I'm at two
months without my wife now. I even had
lawyers review the autopsy report and
medical files to have a neutral party
assure me that everything was done as it
was supposed to be.
It was, its rare for this to happen, even
more rare for it to happen to a woman,
even more rare for it to be this
aggressive. When I say rare I mean
winning the lotto rare. This sort of
thing is not supposed to happen.
I appreciate the reply, and i'm sorry to
hear a heart infection has weakened you.
In regards to thinking all things happen
for a reason, I don't believe that. I
believe many things just happen, no
reason, no good to come of it, they just
happen, and we are forced to move on and
pick up the pieces of our lives or just
waste away ourselves. I believe in god,
I believe one day I will be with my wife
and that day isn't soon enough since I
still linger.
You could name a million things that could
be a reason for this to happen, perhaps
you could say I could get closer to god
now or maybe I will be able to help
someone else in life since I endured this
tragedy and be able to guide them through
a similiar issue. But in all honesty
there are ways to get closer to god and
ways for me to help people without my wife
having to be taken away. I don't believe
or accept things happen for a reason, I
just know things happen.... Horrible
things can and do happen.
The one thing that bothers me most about
the ordeal is that the clinic did
everythign as normal two days before my
wife suddenly went critical. If I had
similiar symptoms an echocardiogram would
have been performed on me and this would
have been found. But this sort of thing
doesn't happen to young woman.... They
can somewhat see it rarely happening to
young men.... But they don't think twice
about this with women, they just assume a
cold isn't showing up in lungs (causing
chest pain). Of all the odds.... Can't
believe my wife was such a rare expcetion
and becomes that one in a million to
succumb to this heart infection of such an
aggressive nature.
|
north carolina
New User, Becoming EHEALTHy
Joined: 18 Aug 2004 Posts: 1 Location: north carolina
Posted: 08-18-04 21:10pm
Hi, I just wanted to tell you how sorry I
was to hear about your wife. I lost my
daughter to myocarditis in july. She was
only 3 and I am going through the same
thing as you. I have went over the
autopsy report, they also did a heart
biopsy and I still have doubts, even
though everyone I have talked to said it
is extremely hard to detect. My heart
goes out to your child, who will not
understand losing a mother but my son is
actually dealing with the loss of his
bestfriend, his sister, better than
expected. I think children are stronger
than we give them credit. My thoughts and
prayers are with you and I hope that you
will keep me in your prayers as well.