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Hysterectomy For Atypical Polypoid Adenomyoma

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midj

New User, Becoming EHEALTHy
Joined: 09 Jul 2004
Posts: 3
Hysterectomy For Atypical Polypoid Adenomyoma
Posted: 07-09-04 20:21pm

Has anyone out there been diagnosed with this disorder? (it is rare!) I have just been diagnosed and a recommendation for a total hysterectomy including removal of the ovaries has been made. I am going for a second opinion,especially as to removal of the ovaries, but would value the input of anyone else with experience with this. Allso- does anyone know if surgically-induced menopause causes hot flashes to last longer into menopause? (i can't have hrt or take estrogen-related herbal supplements because of a strong family history of breast cancer.)

thanks for your responses!
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kgohn

New User, Becoming EHEALTHy
Joined: 18 Feb 2005
Posts: 2
Location: Nashville, TN
Atypical Polypoid Adenomyoma And a Hysterectomy
Posted: 02-22-05 21:32pm

I saw your posting as part of my search for information on this diagnosis as well. My doctor is recommending the hysterectomy even though everything is benign. I haven't gone for the second opinion yet but am to see a gyn oncologist. Can you share any information with me?

Any help will be appreciated!
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midj

New User, Becoming EHEALTHy
Joined: 09 Jul 2004
Posts: 3
Atypical Polypoid Adenomyma
Posted: 03-11-05 15:49pm

Hi -

i wrote you a reply yesterday, but I have the nagging feeling that it didn't go through and I don't see it posted. Please let me know if you didn't get it and i'll be happy to try again.

Sorry!

Judy
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kgohn

New User, Becoming EHEALTHy
Joined: 18 Feb 2005
Posts: 2
Location: Nashville, TN
Atypical Polypoid Adenomyoma
Posted: 03-21-05 10:35am

Hi, judy,

no I didn't get your reply and I am not sure I am going to reach you either. I am scheduled for a 2nd opinion with a gyn-oncologist tomorrow so am anxious to hear from you!

Karen
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baehr

New User, Becoming EHEALTHy
Joined: 09 May 2005
Posts: 1
Location: seattle
Re: Hysterectomy For Atypical Polypoid Adenomyoma
Posted: 05-09-05 13:14pm

midj wrote:
has anyone out there been diagnosed with this disorder? (it is rare!) I have just been diagnosed and a recommendation for a total hysterectomy including removal of the ovaries has been made. I am going for a second opinion,especially as to removal of the ovaries, but would value the input of anyone else with experience with this. Allso- does anyone know if surgically-induced menopause causes hot flashes to last longer into menopause? (i can't have hrt or take estrogen-related herbal supplements because of a strong family history of breast cancer.)

thanks for your responses!


i was recently diagonosed with this disorder and received treatment. The treatment was a dnc followed by three months of progesterone therapy administered via an iud. I am 34 years old and want to have children so having a hysterectomy was not an option. It has been 5 months since my progesterone treatment. At my last ultrasound there was a noticeable increase in the thickness of my uterine lining it went from 10 to 14cm in a matter of a couple weeks. This may indicate that the atypical polypoid adenomyoma is back. If I do not become pregnant this month I will have a saline ultra sound to reveal if I once again have polyps. I am going to see a specialist in accupunture/alternative medicine tomorrow and will ask for alternative treatment options. I suggest strongly against getting a hysterectomy and getting a second opinion.
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