Does anyone just get shivers and thats
all? The type of epilepsy that I have
the docs think is caused by a head injury,
serious infection or something like
that.....Which I have never had and there
is no history of epilepsy in my family for
as far back as we can search.
Is this a normal thing???????? (by way am
22 and this has just begun)
|
scv_baby
New User, Becoming EHEALTHy
Joined: 30 Sep 2003 Posts: 5
Posted: 10-03-03 14:15pm
I cannot trace back my history to pinpoint
on any of my family members, neither have
I had any injury or things of that sort.
Mine started when I just entered my
teens.
But mine is not the shivers type. Mine is
when I have an episode. But I know
exactly when I am getting it. It starts
with the flickering of eyes, then slurry
speech and then unconsciousness.
But well the fact is I have it and know
what to do about it. I am 29.
I am currently taking lamictal and am
happy with it as the medication is keeping
me under control. I have had no side
effects from it.
There are many different types of
epilepsy. You might want to do a google
search on epilepsy and get tons of info on
that. Actually even this board has lot of
info.
|
feelgood
Experienced User , Rather EHEALTHy
Joined: 09 Sep 2003 Posts: 56 Location: Calabasas
Thanks: 2
Thanked:0
Seizures Posted: 10-04-03 01:36am
Hi, I believe I have at least 2 types of
seizures...1 of them I start shivering, my
teeth start chattering and I feel out of
it...............Go to a doctor and check
it out, if you are having seizures they'll
put you on medication because this could
be the beginning and you don't want to
have anything happen while your
driving..............Good luck and if I
can help let me know ..............Susan
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RoxyGirl
New User, Becoming EHEALTHy
Joined: 06 Oct 2003 Posts: 5 Location: mICHIGAN
Can Anyone Offer Me Any Advice? Posted: 10-08-03 13:13pm
Nobody in my family has had any history of
epilepsy. Mine started when I was about
14 years old and I am 21 now. I have
only had 2 seizures durning that time.
The first one , I blacked out, the room
was spinning and I couldnt speak, the
second time, I felt it coming on, and I
fell out of my chair, bit my lip, wet
myself
,everything was fuzzy and I couldnt speak.
My neurologist put me on depakote and I
hate the side affects. I get horrible
mood swings, sometimes I m really
depressed and other times im super happy,
I zone out alot, I get frequent headaches
and dizzy spells. I have a really bad
memory and it is hard for me to take in
alot of information. Does anyone ever
feel this way or have the same problems?
Does anyone take depakote? Would it be a
good idea to get my medication changed?
Please let me know
thanks so much
laura
|
RoxyGirl
New User, Becoming EHEALTHy
Joined: 06 Oct 2003 Posts: 5 Location: mICHIGAN
Adamsmom Posted: 10-28-03 07:04am
I have been on depakote for 7 years. Did
your son ever complain of getting sharp
pains around his temple area of his head?
I am taking 500mg twice a day. My
dosage was doubled after I had my daughter
because I had a seizure. He said he
wanted it doubled because of my stress and
lack of sleep (new baby).
What does your sons neurologist tell
him about his epilepsy? Meaning, when he
has an eeg, what do they tell him that it
shows? Whenever I get one , they tell
me, "you still have abnormal brain waves,
and you had a partial seizure here..." I
think anyone would when someone puts a
strobe light right in your face. How did
his neurologist know that he would grow
out of it? Did anyone in your family
have epilepsy? I dont know how I got it,
nobody in my family has had it. I just
have so many questions and I can never get
a definate, clear answer..
I'm so happy for your son, he must feel
so relieved and estatic that he doesnt
have to take pills anymore or have a
horrible seizure.
Take care,
laura
|
AdamsMom
New User, Becoming EHEALTHy
Joined: 28 Oct 2003 Posts: 8 Location: Texas
Roxygirl Posted: 10-28-03 15:05pm
My son has been on depokote for 8 years no
side effects . Sleeps alot it seems. But
he was on a low dosage just 750 mg a day .
What dosage are you taking?
He recently was told by his doctor that
depokote can cause liver damage.
So he took hisself off med .
He is scheduled for a eeg in november.
He first had his seizure when he was 12 he
is now almost 20 ( december)
he has always been told by 3 different
neurologist that they feel he will out
grow epilepsy.
There are so many different types of med
now for seizure disorder . I would first
see if you can take a lower dosage . And
if you still have side effects then try
other meds
good luck
adamsmom
|
Hennie
New User, Becoming EHEALTHy
Joined: 21 Nov 2003 Posts: 2 Location: Johannesburg
Types of Epilepsy Posted: 11-26-03 02:31am
I suffer from partial epilepsy, the
complex type - or so the doctors say.
I get two distinct different types of
attacks.
One is only a slight one that causes me to
start vibrate (on the inside) and I feel
very weak for no obvious reason.
The second one is where I lose
conciousness but do not collapse or
anything like that. I am not aware of
anything that is going on and I seem to
continue 'normally' with what I am doing
at that point. If unfortunately
something happens apart from the norm in
that period I will ignore it and still
automatically try and carry on with what I
am doing at that time. If I am talking
at the time of the start of an attack I
will continue talking but mostly pure
rubbish or even some gibberich but all
somehow related to the topic prevailing at
the time of the start of the attack. It
continues for a few minutes and I slowly
come to my senses and it is only about ten
minutes or more afterwards that I will be
able to tell that I had an attack or be
really awake.
Medicines do not always seem to work and
at the moment I am trying to go it without
any medication but with avoiding things
like alcohol and caffeine.
I have found one specialist that has
stated my epilepsy is more due to stress
than anything else. There seem to be
some thruth in this because when I am away
from stress related issues (e.G. On a
hike in the mountains away from work and
everyday hassles) I do not get any attacks
at all. Even at my worst times I did not
have any attacks when I am on a hike in
nature or when I am working say for a full
day in the garden (which I liked doing at
one time).
Anybody else out there with attacks that
seems to be stress related????
|
jamal
Experienced User , Rather EHEALTHy
Joined: 05 Nov 2003 Posts: 60 Location: oroville,Ca
My Episoides Posted: 11-27-03 22:53pm
Hello everyone,
am I glad I found you guys, I do think it
has to do alot with stress. When I have
my petit seizures I have a warning that
its coming. I feel very strange before it
comes. About a min before, then my body
feels tingiling inside, deja vu, my
hearing goes weird, I can't respond most
of the time, funny smell, metalic taste in
my mouth, feels like i'm going to a have a
bowel movment but never do, stomach ache.
This last for about a min or 2. Then
after brain surgery they are lasting
longer. But not as frequent.
The doc. Put me on depakote when they
first diagnosed me in 98 for 2 and half
years. 1500 milgrams a day. Gained
weight, mood swings, tired, and they had
to checked my blood every month for the
liver. Then I went to dilaton, reaction
to that one, next was tegritol, reaction
to that one, switch me to topamax was on
it for 2 years had surgery, then I still
was having g.M. Again so they added
trileptal cousin to tegritol, with topamax
did that for 3 months until the next check
up at u.C. Davis. Told the doc. I feel
like i'm on spped then I come down in the
afternoon and crash. Then again at night
but i'm so worn out my body is so tired of
taking drugs and going up and down all day
I crash. I did go back to work 2 days a
week part time back to my old job. Which
is great. Oh yeah the doc changed the
meds to keppra with topamax. So I did
loose the weight I gained from dep. I was
155 before all this started went up to 176
topamax dropped me to 132 right before
b.S. Because I was pretty scared I think,
and going thru the big 5 year divorce.
Now i'm back to 164 but i'm 44. I'm 5'10'
I should weigh 155 so I guess i'm not that
far off now.
I would like to know all of your
experiences of your seizures. What you
guys feel when you have them. Thank you
jamie
|
sami_1982
Experienced User , Rather EHEALTHy
Joined: 13 Dec 2003 Posts: 200 Location: Australia
Hi Everyone Posted: 12-14-03 07:08am
Hi everyone,\
I am 21 yrs old I
started having seizures 2 months ago. It
began without warnin I would fall back
wards into a grand mal that would last 2-5
minutes. Then I would sleep for 15
minutes after but they would wake me or
try asap.Then I would feel very weak all
over esp my arms and legs probably from
the jerking all over, then went to neuro
he said I was normal had normal eeg he
said I couldnt have epilepsy and that it
was all in my head.But I was very stressed
it showed on eeg then I still was having
episodes where I would find myself staring
or doing something stupid and I would
think what. I would get headaches in the
front of my head going across from temple
to temple then back to front and it would
kill. Then my eyes would have weird
squiggles and lines in them and dotts.
Then I would feel like I was sinking in to
the floor coz my feet would go numb and
tingly and I would feel like dejavu was
happening all the time. Went back to
doctor telling him I was still felling
weird sometimes I get a feeling like I am
sick in the stomach like I have to vomit.
The doctor put me on tegretol and its not
working I am new to all this so I dont
know. Then they told me that I have a
rare temporal lobe epilepsy and that I am
very photosensitive. If I am exposed to
flickering light s my eyes flutter and I
go like I am frozen sometimes I fall back
and go into a grand mal from that. After
I cants speak properly its like I am
talking like a robot and my walking is all
weird I usually fall down because my legs
are like jelly and I get the worst
headache and then when I can I sleep for
hours after that. I know I may look weird
but waring dark glasses helps me. Usually
I cant remember much but this is what I
can remember I have started to write down
in a journal how I feel sometimes when I
can if I can so I can remember later. I
have started to get a longer warning of 5
minutes of severe headache b4 an eoisode
so I guess its the tegretol letting me
have a warning and I still have alot of
those dejavu feelings all through the day
and I hate that feeling its sickening.
Well thats my story.
|
jamal
Experienced User , Rather EHEALTHy
Joined: 05 Nov 2003 Posts: 60 Location: oroville,Ca
Same Syptoms Posted: 12-17-03 00:24am
Hi sami,
I started having the same things happen
to me. Funny smell, stomach ache, hearing
was odd, could'nt respond, sometimes I
tried and it would be nonsense or moaning,
deja vu, flickering of the left eye, and
the weird feeling thru the body. It would
last for about a min. This went off &
on for 20 years after a blow to the head
from a car accident in 1977. Then they
started to get worse when my marriage was
falling apart (stress)!!!!!! Then I left
my marriage in march of 98. 2 months
later I had my first gran mal. With 6
different meds tegretol was one I finally
went for brain surgery in 2001 of june.
My seizures are less. I'm back to work
part-time. I still don't drive. I take
the short bus to work. They pick me up at
my front door for 1.25 one way. You just
find ways to deal with it. I'm fortunate
I have a good group of friends. They
found scar tissue on my right frontal
lobe. M.R.I.S and lots of e.E.G.S at
u.C.Davis and alot more testing. So find
out as much as you can. Take care jamie
|
kitkatbar5000
New User, Becoming EHEALTHy
Joined: 06 Jan 2004 Posts: 6 Location: California
Seizures Posted: 01-06-04 23:54pm
Hi,
i'm 13, and I just started having
seizures a year ago. My mom thinks that I
might of gotten it from her mom, but she
never really talked to her mom, so we
think I got it because my mom dropped me
on my head when I was a baby. I have only
had petite mal seizure (when my eyes roll
to the back of my head and I lose
conciousness for a few seconds), up till a
few days ago when I had a grand mal
seizure. I have been taking depakote, but
it really hasn't helped at all.
|
Kitten Slezak
New User, Becoming EHEALTHy
Joined: 11 Jan 2004 Posts: 3 Location: Nebraska
a Lot to Learn------- Posted: 01-11-04 14:14pm
My son, now 23 has had seizures on and off
since he moved into puberty. At first
they were absance (sp) seizures and we
discovered the problem by reading an
article in a magazine. Doctors tested
him and we just observed for awhile. In
high school he had his first grand mal.
Doctors put him on depakote and he did
well as far as seizures but he gained a
lot of weight and the medication really
slowed him down. He complanied about
feeling slow. When he was a junior in
high school he decided he no longer had
epilepsy and with out my knowledge,
stopped taking his meds. I wondered what
was going on because he lost a lot of
weight. Through some prying I discovered
what he had done and insisted on a visit
to the doctor. Testing was done and
hallelujah---he seemed to be cured.
Quite awhile down the road he had a
seizure and this time they put him on
zorontin, that seemed to work, but I know
he wouldn't take it sometimes.
Ocassionally he would have seizures.
During a period of job transition and
moving he didn't have insurance and I know
he wasn't taking good care of himself.
He would deny it because he didn't want me
to worry.
In the last year he has openned his eyes
to the responsibility of his malady. I
only wish I could take it away for him.
It makes me sad to see him challenged at
such a young age. I know there are many
of you out there with similar mountains to
climb and it really angers me when I run
across know it alls that think their
answer is the only answer. If it were I
believe medical science would have found a
generic cure. The fact is everyone is
different.
My son has also been on several other meds
this last year. The doctors have
recently put him back on depakote and the
seizures have stressed his joints and he
has had surgery on one shoulder with a
probable surgery for the other. Have any
of you experieced these problems?
Tell me more of your stories.
|
jamal
Experienced User , Rather EHEALTHy
Joined: 05 Nov 2003 Posts: 60 Location: oroville,Ca
Up Date Posted: 01-13-04 12:33pm
Hi everyone,
since last nov. The doc. Changed one of
my meds to keppra 100 mill twice a day
with my old med topamax which i've been on
for about 4 years. I've lost 15 lbs in 4
months. So I know topa is a drug they are
saying is being tested for wiehgt lose.
Is anyone else experinceing weight lose
with keppra?
I'm only getting petit mals so far. So
i'm doing better.
|
angeleyes53084
New User, Becoming EHEALTHy
Joined: 24 Sep 2004 Posts: 2 Location: montana
Re: Types of Seizures Posted: 09-27-04 14:00pm
docs dont listen!
wrote:
does anyone just get shivers
and thats all? The type of epilepsy
that I have the docs think is caused by a
head injury, serious infection or
something like that.....Which I have never
had and there is no history of epilepsy in
my family for as far back as we can
search.
Is this a normal thing???????? (by way
am 22 and this has just begun)
hi my name is rebekah I
got 2 types of sizures the first one is
epliciy and the second one is grandmal.
How I got it? Well the docotors put the
wrong vaccine in me when I was a baby for
my tetness shot and now im 20 years old.
My doctor said if I didnt get on tegretol
then I would go into a grandmal
seizure....The kind of eplipicy I have is
where I daze off and act like i'm in a
dream I get really slow at doin things and
sometimes i'll come out of it and some
times I wont..And the grandmal seizure
that I have is where I start shaking
really bad to where I cant controll it I
start to slobber and try to swallow my
tounge talk about really .
My dad told me about what I do when I go
into one of my seizures and that's how I
know what I know...Also with my emplipcy I
would also shiver and my teeth will cling
together like im cold. I've been on so
many pills through out my life to the
point that I cant remember the names of
them or how many ive been on..Has anybody
been on tegretol? If so what kind of
side effects have you had being on it?
Please reply back to me i'd really
appriciate it cuz of how I feel while
taking this meducation..Also do you know
how it reacts while taking zoloft with it?
God bless you!!!! I also dont have a
family history of seizures...It was all
because of the doctor that delivered me is
why I got these seizures in the first
place..
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Kathleen19
New User, Becoming EHEALTHy
Joined: 14 Sep 2004 Posts: 3 Location: California
Types of Seizures Posted: 09-29-04 00:37am
Hi everybody. I'm 19, had first seizures
about 2 years ago. I have grand mal,
petite mal, and partial seizures where i'm
always consicious but I can't do anything
to control it. I'm on tegretol and keppra
but switching the keppra with lamictal.
~
kathleen
|
Wondering17
New User, Becoming EHEALTHy
Joined: 04 Nov 2004 Posts: 1
Re: Types of Seizures Posted: 11-04-04 15:31pm
docs dont listen!
wrote:
does anyone just get shivers
and thats all? The type of epilepsy
that I have the docs think is caused by a
head injury, serious infection or
something like that.....Which I have never
had and there is no history of epilepsy in
my family for as far back as we can
search.
Is this a normal thing???????? (by way
am 22 and this has just begun)
that is strange because I think something
like that happened to me. I was sleeping
and sort of woke up. I was shaking all
over (kind of like a big shiver
everywhere..Legs, arms, head, eyes,
everything) then I "heard" my husband's
voice and "saw" him...The seeing thing I
knew wasn't real, but I thought I really
heard him. I also felt pressure (my arms
were under the covers and it felt like the
covers were too heavy to get my arms out
of) I remember feeling scared and not
sure where I really was, but I do know
that the shakes were not a dream and I
really thought I heard my husband.
I am only 22 as well, have never had a
seizure that I know of, and no family
history
,everything was fuzzy and I couldnt speak.
My neurologist put me on depakote and I
hate the side affects. I get horrible
mood swings, sometimes I m really
depressed and other times im super happy,
I zone out alot, I get frequent headaches
and dizzy spells. I have a really bad
memory and it is hard for me to take in
alot of information. Does anyone ever
feel this way or have the same problems?
Does anyone take depakote? Would it be a
good idea to get my medication changed?
Please let me know
He is scheduled for a eeg in november.
He first had his seizure when he was 12 he
is now almost 20 ( december)
