Developmental Delay And Seizures - Need Help Posted: 07-16-04 11:57am
My son has a neurological disorder that
manifests itself in a severe developmental
delay. 18 years old outside but 12-36
months inside. He is non-verbal but
understands the majority of what is said.
Question: he had one small seizure 4
years ago. Lots of doctors/tests
done/idiopathic. The neuro did not put
him on chronic seizure med. A few weeks
ago, I heard a strange sound and found him
on his side (thankfully), biting his
tongue, and turning a horrible shade of
purple. I was able to get his tongue
over with my finger, and he took a gulp of
air but still seizing. By the time ems
arrived, he was still purpleish, but more
on the red side and breathing. This
seizure lasted over 5 minutes and they
thought he was beginning to seize again
after they had begun treatment. We see a
new neuro in a few days. I'm worried
about the effects of meds, especially when
he can't tell me how he feels. I'm
frantic that this will happen again during
the night, or when i'm not home with him,
and he won't recover. Anyone with
information? I have a baby monitor, but
that is certainly not going to keep him
safe. He doesn't sleep, either. He
stopped when he was around 4 years old.
Neuro said just a part of his disorder.
Sorry about the length. Help anyone?
